Hepatocutaneous syndrome: no hope, just keep her comfortable

December 26, 2012

The day after Christmas and we almost cancelled the visit since Dr. Gimmler wasn’t going to be there, as she was on vacation. We decided that I might be good to get insight from another vet with more experience, so we kept the appointment.

The history part went well, but his approach was FAR different than Dr. Gimmler–he wanted me to understand that the disease is fatal and we just needed to make Zoe comfortable.

It was funny, on the trip down, my husband and I had carried on a similar conversation–we were at the end–no venous access and the fresh frozen hadn’t helped her symptoms at all. We wanted to make sure it was clear we didn’t want them doing a lot of extra measures, but mainly just wanted to make sure there was no “stone unturned”. Evidently, he had similar concerns that I was pressing this just too far and needed to let the disease run its course.

He also wanted to really examine her paws to see if there was anything we could do to help with the infections. After a good conversation, we left Zoe for the exam and went to get some lunch. We were told they would call us when they were ready for us to come back.

We still hadn’t received “the call”, so we drove back to Auburn to the parking lot and just parked and waited for the call. As we waited, we discussed how GREAT the gravy was that I made for Thanksgiving–but it had turned to “gel” in the frige. My husband was telling me how he just did not like eating anything with that much FAT in it!! I argued that it wasn’t fat, but I thought something in the bone marrow and since we were sitting in the car and had time to kill, I googled “what makes gravy turn to gel”. One thing led to the other and shortly I was reading Dr. Ray Peat’s experience with gelatin and how it is made up of amino acids! Just the thing hepatocutaneous syndrome patients are missing!!!! I learned the difference (from another site) between chicken broth and chicken stock! Chicken stock turns to gel when cooled and is made when the bones release their collagen (amino acids). I decided right then and there I was making chicken stock when we got home! Ok, so really!!!!!?…God divinely showed me about chicken stock while waiting in the parking lot to pick up my dog?? Would it make a difference?

We got The Call and went back inside to get Zoe. We were told they gave her a different sedative this time that would be short acting. (Butorphanol instead of the usual methadone). Zoe came out very “drugged” and was really unsteady as she tried to walk. We got her in the car and headed back to Birmingham. By the time we got home, she was vomiting bile (not a good sign when your dog has liver disease!!) They had suggested we change her pain medication to Codeine, rather than tramadol and gabapentin. This wasn’t exactly the outcome I had hoped for!

604 thoughts on “Hepatocutaneous syndrome: no hope, just keep her comfortable

  1. tira ishikawa

    this is similar to what my chihuahua is going through right now…will you please continue with your story and let me know how your baby is doing?

    Reply
    1. Jamiegoff Post author

      Tira, I am SO sorry to hear that!! Zoe is doing fairly well right now, but she has break outs and then gets better, so we are right now coming off on of her worst break outs. How old is your dog and do they have diagnosed liver disease?

      Reply
      1. Tira

        Hi Jamie
        We have been to the vet 3-4 times this week so I have not had a chance to sit still. Or make calls yet but, yes, ultrasound showed he had the Swiss cheese liver damage and they have biopsies in progress from paws, tail, and mouth. When results are back next step is 3-5 days in ICU for amino acid therapy. Was this the treatment plan your pup had? What is the prognosis for Zoe? Has the chicken stock helped? We are currently giving Kuro an egg very day.
        I really appreciate your taking the time to share this with me….

        Reply
        1. Jamiegoff Post author

          Hi Tira,
          We elected to not to the biopsies, but rather with the symptoms and the liver ultrasound, the vets at auburn thought it was pretty clear that it was hepatocutaneous syndrome. We were given little hope, just keep her comfortable. Chicken stock combined with amino acid supplements have helped, as Zoe is unable to receive any more amino acid infusions due to her veins.

          We give her several doses of either eggs cooked in stock or amino acid supplements throughout the day. She is just getting over a really bad outbreak. We added another “dose” of chicken stock with her afternoon meds. I’m going to add a link to the blog that shows how involved our care actually is. (I had to send it to our friend who was going to care for Zoe a few weeks ago, so I’m going to just copy and paste it into the blog.

          How much does your dog weigh?

          Reply
          1. Jamiegoff Post author

            Tira,

            I think that I forgot to answer part of your question. We only left Zoe for an overnight stay, as the amino acid infusion took about 10-12 hours, so there was no need for her to stay several days. Are they doing other procedures while she is there 3-5 days?

          2. Wendy Tan

            Hi Jamie – not sure if you will see this but I stumbled on this board in my desperation to see what else can help my dog who has this disease… his last amino acid infusion was this Friday but he developed encephalopathy so has been very unbalanced and not willing to eat these couple of days. I am desperate. I can’t seem to find the information that you reference about the collagen?? How did you do this and how much do you give? My dog is currently on Royal Canin’s hepatic diet, SAM-e, milk thistle, zinc supplement, fish oil (I recently ordered a fish oil that also has turmeric which I hope will help with the skin lesions)… I am trying to get hold of Propass here in Hong Kong! The amino acid infusions are no longer an option I think so I am desperate to try your chicken gelatin formula??? If I can’t coax him to eat in the next 24 hours… I may have to take him back to the vet where I suspect they will tell me its time to let him go!

            I hope you see this post…. I would really appreciate any help I can get at this point…

            Thank you!

          3. Jamiegoff Post author

            oh Wendy, i’m so very, very sorry you are here! Zoe didn’t get encephalopathy but she didn’t want to eat! we changed completely to a homemade diet including chicken, chicken stock (of course!), beets, sweet potatoes, green beans and added supplements (vitamin and mineral). I hand fed her at this point to try to get food in her! The one thing that I don’t see is Omega Fatty Acids (fish oil contains some). We used Bayer brand Snip Tips and gave double the prescribed amount…..when I ran out and stopped giving (because I forgot about them), her lesions came back, so i do think that they are important! You are right, if he won’t eat, then he can’t survive, but i am praying that he will start to feel better and the swelling goes down and the encephalopathy improves!! please let me know any questions you have!!! hugs and prayers!

          4. Wendy Tan

            Hi Jamie – thanks so much for your reply! I really wish I had discovered your blog sooner…. I feel like I’ve wasted the past 5 months and now mught be too late! :((

            Anyway, I immediately went out and got the chicken feet this evening and the stock is now 4-hours in! I wanted to clarify, does it need to become gelatin?? I ask because am racing against time and I am hoping to get this in him as soon as its ready and not have to wait another few hours for it to gel? I was desperate tonight as he wasn’t eating so I’ve just syringe-fed him a mixture of his raw eggs, fish oil, tumeric and some of the chicken stock even though its not completely ready yet! Its the only thing I could get in him …

            I read that you gave Zoe the chicken stock every 5 hours? Is that correct? My dog is about 8 kgs so am trying to figure out how much he needs?

            Am praying for some sort of miracle overnight… if he still isn’t eating tomorrow, I am considering taking him back to hospital for supportive fluids at least… and I suspect very much that he may not be coming home :((

            Thanks for all the advice you’ve shared…. am really sorry about Zoe but am just so amazed that you were able to get 3 years with her after diagnosis!!

          5. Jamiegoff Post author

            hi Wendy, make sure you don’t feed him raw egg whites (he CAN get raw yolks) Raw egg whites block biotin absorption and can cause different skin issues. You will get more amino acids out of it if it becomes gelatin. At 8 kgs, I would start out at 15 ml of chicken stock 5-6 times a day. You don’t want to start with too much, as it can make them have diarrhea

          6. Jamiegoff Post author

            Also, wanted to say that it takes about 10 days to see any difference in their skin. IF you can just get him to eat, that will mean that you can at least try the stock to see if it works! Adding about a 15 ml of apple cider vinegar when you are cooking the chicken feet will help them release more collagen for your next batch) PRAYING for you and him!!!

          7. Wendy Tan

            Hi Jamie – thanks again for taking your time to respond… unfortunately, my dog passed away this morning :(( I had taken him in as he was starting to get weak and dehydrated and had just finished discussing putting him to sleep with our vet when Ben decided he wanted to go on his own terms instead…. he spared me from having to make an agonising decision and for that, I am eternally grateful!

            I really wish I had found your blog sooner and don’t know why it never came up in all my months of research! But I have forwarded the link to my vet (this is the first such case he’s had and he spent alot of time researching all of Ben’s symptoms before we were able to diagnose his disease) so the intelligence that gathered from everyone else’s experience will still be very useful! So that you for all this and for sharing your own experience…. hopefully, more dogs can be helped in future!

            One thing is for sure, HS is very difficult and frustrating to treat… much of the time, I felt like we were just firefighting and struggling to get on top of the disease – and it was a losing battle. However, After reading your blog and all the discussion threads, I do feel a sense of peace as it does seem that we DID do everything possible (that we knew of) for Ben and while I still wish he was sitting here next to me, I am glad for the five months that we had….

            Thanks again and God bless. You’ve helped to give one broken heart some peace today……

            Wendy

          8. Jamiegoff Post author

            oh Wendy, i’m so very, very sorry!!!! I am so glad to hear that he went on his own, without you having to make that decision and thank you for forwarding on to your vet!! we have a couple of vets who have also recommended the collagen via chicken stock treatment that we use!! I hope you can take comfort that he doesn’t have to suffer at all any more!! Zoe and all the others that have gone before were waiting for him to enjoy playing with no suffering!!

          9. Meg

            So sorry for your loss, Wendy. It’s so hard! I like to think that there is a special little place for all the HS dogs to hang out at the Rainbow Bridge until we get there to be reunited with them! Sending you hugs as I know how difficult it is!

          10. Wendy Tan

            Thanks so much Meg and Jamie! I almost feel like this is some sort of ‘support group’! It’s been such an emotional journey and while I’ve only seen this discussion for just a few days, it has brought me much comfort to know I’ve not been alone in this frustrating battle…. I had little support from my family and some friends, as treatments weren’t cheap and Ben had so many tablets to take daily that he had his own basket for his meds! They had questioned from the outset if it wasn’t better to just put him down from the start…

            But he was a little fighter (and a bossy Scottie to boot!) and as long as he wanted to keep going, I was determined to give him everything I had for a good fight. Its been so worth every cent and every tear for every minute I’ve had with him.

            Bless you all!

          11. Jamiegoff Post author

            Wendy, you are certainly NOT alone!! The disease is simply awful and I do think it’s helpful to know others have walked the same path. Continuing to pray for you for peace and comfort. HUGS!!!

  2. joy's mom

    So glad to hear your dog is doing better, especially after more than a year. Such depressing info on the internet.
    Tomorrow i am going to make the chicken for my dog, who was diagnosed in April 2013 with liver failure. The lesions started in october 2013.
    Just a question… Did your dog tremble/shake, while lying down, breathing in and out? I am trying to understand what this is about.
    Thanks.

    Reply
    1. Jamiegoff Post author

      Hi, thanks so much for your comment! Zoe does shake, but usually when she is standing, not lying down. We were told it is more a function of her age and not the disease. I would love to talk with you, if you’d like!! My cell phone number is 205-296-2323. Thanks so much!!!

      Reply
  3. natasha

    Hi…i am happy to read more about this disease here on this webpage. Bec in Holland there is not allot of information about this terrible disease. My dog chico who is 13.5 had problems starting this year…they first thought he has winterpaws. We cleaned his paws every day but nothing helped. Then from doctor to doctor we heard he has this…also when they saw this they still did an biopsie for his liver. And i am waiting for the results. I dont understand why they did that bec they allready said he has this and that there is nothing to do about it. We now clean his paws 2 times a wk with special shampoo and put socks on his paws so he cant bit them. Also we put calendula to make his paws soft. But we dont know nothing anymore to do…except to give him one egg a day and metacam as a painkiller. He has also 2 little little strange red places on his belly and he shakes his head around since 2 days. Is there anybody who can tell me what will happen? Wil his paws get more worse? Or what else? And how long can he live with this longer? He eats very well…does noy skip any diner and also wants chicken all day long. But we dont walk long outside with him anymore. Just to do his business. We dont have the therapy they give in your country…dont know why. Hope someone can tell me something bec i so wanne help my dogg and have him longer with me bec he is our baby dog in our live..

    Reply
    1. Tira

      Natasha, this site is very helpful… Jamie has shared info that has helped us alot with our chihuahua that has this disease. The following is the course of treatment that we have been doing the last couple of months and he has shown great improvement. There are more details in the information on this website.
      we feed him a egg, approx 1 tbsp of collagen (from pressure cooker turkey necks), 1/2 scoop pro Pass protein powder and some dog food twice daily. We also supplement it with 1 capsule of Milk Thistle and 1 capsule of Pro Cell collagen supplement. both supplements can be found on the internet and the Pro Pass protein powder, too. We also will give him a spoonful of the gelled collagen before bed and as a snack sometimes. I hope this helps… Jamie knows ALOT about this disease and she is very helpful!!

      Reply
      1. Jamiegoff Post author

        Thanks so much, Tira! I know every dog is different, but even if I can help a few, it’s WELL worth it!!

        Reply
    2. Jamiegoff Post author

      Hi, thanks so much for your comment!
      With Zoe, we found that medicine couldn’t give us much hope, unless we did IV amino acids, but after several (about 6) rounds of the IV amino acids, her veins were shot and she couldn’t get any more infusions. That’s when GOD gave me the chicken stock idea and it along with amino acid supplements have allow Zoe to overcome the lesions and live a fairly normal life!

      Reply
    3. Sheryl

      My bot is 11 be has cirrhosis of the liver/ diabetes and Hepatocutaneous syndrome 🙁 so heart breaking. Foot baths 3 times a day with tear less shampoo..pat dry. Coconut oil pat dry. Gentamicin and lidocaine powder is the best they also make it in a spray but it does make the paws a bit dryer so I use the spray sparing it is a bit more cost effective. I bought great shoes at Petco with little zippers a shoe tongue to keep the fur from catching in the zipper and a velcro wrap comes on the ankle to keep them on. It took a couple of days for him to get used to..but now he is fine..walks much better..peppier. don’t leave them On longer than 4 hours at a time as dogs sweat through their feet.these have been a Godsend. Give your dog plenty of vitamins email me if you want a list.Sonny is holding his own right now..it’s been a year since his diagnosis. I’ve been thinking of trying bag balm on his feet, they use it for cows udders.

      Reply
      1. Jamiegoff Post author

        Sheryl, I’m so sorry to hear about your dog’s diagnosis. We used chicken stock to administer collagen frequently throughout the day, don’t know how much you’ve read of the blog. GOD gave that and we got 3 years of mostly lesion free time with Zoe!
        I’m happy to talk through how to make it, if you want to call me 205.296.2323. We are all in this together and want to help each other!

        Reply
        1. Darlene

          Is anybody else having trouble with this site? I’m getting email notifications and when I try to reply or comment I can’t find it on the site. My last post is reading Seot 20 and the Email is saying yesterday Nov 19! I can’t find Nov on the site, There is Hope. Very confused. Thanks

          Reply
          1. Diana

            Darlene, yes I am also seeing the same thing add you. Not sure if my posts are getting through or not, hope so.
            Diana

      2. Diana

        Use the bag balm. I used it on my dog and it with the antibiotic wash healed her paws. I wrapped her paws every morning and night so it soaked in. It was the only thing that helped her. Diana

        Reply
  4. Jodie Ramirez

    Hi, I’m am so happy I just found this site. I just found out last night that my dog (italian greyhound) has this and was told it be best to put him to sleep. I don’t wanna do it. He’s in pretty bad shape but the suggestions you give here make me feel like maybe I can make him feel better. I’ve been crying all night and day trying to figure out when to take him in to put him to sleep. How do you make a decision like that with something you don’t even wanna do? So instead, I’m gonna go buy this stuff (chicken stock, amino acid supplements) and cook him eggs as well just to see if it helps. Thank you thank you thank you!

    Reply
    1. Jamiegoff Post author

      Hi Jodie, thanks so much for your comment! I would love to talk with you,if you are available to talk? 205.296.2323. Thanks!!

      Reply
    2. Tira

      i am so glad you didn’t rush to put him down!! we have been doing this and our chihuahua is currently clearing up nicely…one note though is that, like Jamie has said, you have to be consistent with the collagen, etc. my thoughts are that all it really costs me is time… the time to make it for him and that is well worth that small investment to try to help him… so far the best results have come from the collagen of turkey breasts but We just tried cooking pig feet in the pressure cooker and the collagen was very dense… we’ll see how that goes.. his face is clearing up and his rear end too… his back feet are still crusty but he has been walking around, wagging his tail and taking an interest in what were doing so he’s definitely improved.

      Reply
      1. Byron

        Tira, My wife was devastated to learn our Dog has this, can you please give me a call and walk me through the DAILY routine you did, i’d like to give him a fighting chance. My number is…
        (808) 312-7651 – Byron
        or you can email me at reaperkustomz@gmail.com

        Reply
  5. Jodie Ramirez

    Tira,

    I’m hoping so bad that this works for him as I am pretty much desperate at this point.I talked to Jamie this morning and what a saint she is with all the info she has put here for people like us. I’m so grateful. Can you tell me what exactly you do with the turkey breasts?

    Reply
    1. Tira

      Hi, Jodie…it’s actually turkey necks..we put the necks in a pressure cooker and just cover with water then bring the water to a boil uncovered then put the lid on and turn down to a lower temp and cook for about 4 hours. Then strain the broth and put in a container to cool and let fat rise to top and remove the fat, this leaves the collagen (we toss out the bones/meat when done)…it should firm up like jello squares and then we add about a tablespoon to his food at each meal along with the scrambled egg and dog food…we also give him a square at bedtime sometimes. We also give him milk thistle and collagen capsules… 1 of each twice daily with meals. We also have been mixing Propass whey powder in with his food tho I can’t say whether this has Helped or not but we continue it just in case it is part of the Puzzle. Like Jamie says, each dog is different and it took a little time for us to see the improvement but it is definitely there. Btw, if you don’t have a pressure cooker (we got ours at walmart) you can read Jamie’s entry about boiling the turkey)

      Reply
      1. Joy's mom

        Hi all
        Unfortunately, joy was put to sleep a week ago. We think she slipped on our terrace and caused her leg to dislocate and fracture in a few places, as well.
        Ah, the guilt.

        I just wanted to ask you all if your vets have checked your dogs’ blood for a fungus… Too late for me now, but i finally heard about it.

        Best to you all.

        Reply
        1. Jamiegoff Post author

          I’m SO sorry to hear that!! Did Joy have a fungal infection in her blood? It’s just an awful disease and I am so sorry for your loss! Praying for y’all!!

          Reply
          1. Joy's mom

            Hi jamie, and thanks.
            No diagnosis of a fungal infection but the symptoms mimic hepatocutaneous syndrome. i am in italy and the doctors i saw here kept saying it was eczema,due to liver probs and bile sludge, so i never evr was told an accurate name for her suffering. Now i just wonder if it was a fungal thing.
            I should just stop wondering tho. No reason to feel the guilt. The injured leg at her old age is was caused me to make the decision i made. Her muscles diminished, she lost a lot of weight, etc.
            i havent been ready for them, but in a week, she has been in my dreams twice. Happy and playful, young and rejuvenated! Nice.

          2. Jamiegoff Post author

            If you saw skin lesions with associated liver involvement, that seems to be the hallmark sign of HS. Zoe was misdiagnosed initially with a fungal infection, because of the similar presentation. I think the disease is more prevalent and may just get diagnosed incorrectly.
            I understand about those sweet dreams….I still have dreams about my “heart dog” whom I lost a year before Zoe was diagnosed. We are always so happy to see each other and I love seeing him run and play! Think it’s GOD’s way of telling us they are well agan!

        2. Tira

          i am so sorry about Joy…one thing that has made me feel better when we have lost some of our furbabies was that i knew they were loved every day of their lives… loved and happy….i hope this thought helps you…

          Reply
      2. Jamiegoff Post author

        Hi Tira, where do you find turkey necks? They make such great stock, but haven’t found them in Birmingham Thanks!!

        Reply
        1. Tira

          we’ve gotten them at piggly wiggly here in louisiana and also albertson’s… you might ask the butcher…this last time, though, we used pigs feet and the collagen was very dense and kuro loved it!

          Reply
  6. Jodie Ramirez

    @joy’s mom… so sorry to hear about Joy. Poor baby! She’s obviously in doggie heaven now and well as your dreams are showing you.

    @Tira…thank you so much for your help with what you have been doing. Does anyonw have any suggestions on what to do with my dogs feet? They are raw, bleeding and he won’t stop licking them. I feel sooooooo bad for him and know that it either hurts or is itching and that’s why he’s doing it. I don’t know what to do for him to make them more comfortable for him.

    Reply
    1. Jamiegoff Post author

      I use Resi KetoChlor made by Virbac. It is a leave on lotion that will require a vet’s prescription. Just DO NOT keep his paws covered with this lotion on.

      Reply
    2. Tira

      I have been following Jamie’s suggestions, the only difference would be that we have sprayed Kuro’s feet with Ketoseb spray, which is what the vet prescribed… it might be the same thing as Jamies, just not sure. We have also soaked his feet in some blue liquid given by the vet,i will check the bottle for the name when i get home and let you know

      Reply
      1. Darlene McCabe

        Our Sparky a Westie who’s 8 has a yeast infection and Hepatocutaneous Disease. The blue stuff is Chlorhexidine Gluconate. It’s an Antiseptic – Disinfectant. Our Vet gave us a bottle and it cost us $13. I went on Amazon and got a gallon for $18. Its concentrate so it has to be deluted. 2T to a gallon of water. I brought the bottle to the vet and she said its the same stuff the hospital sells but thats already mixed. I soak each of Sparky’s feet in a bowl for 4 min which softens the stuff between his toes, then I try and pick it out. I spend over and hour on his feet every night. It grows back but at least he doesn’t have a build up growing. Hope this helps.

        Reply
        1. Darlene McCabe

          PS: Sparky also gets Milk Thistle, 200U of Vit E and Sam E. This was recomended by our Vet who’s a specialist. He’s even had 3 Ammeno Fusions in the last 4 months which seem to help a little. The Infusions are very expensive, $600 each! We life in NJ and we take him to Red Bank Vet Hospital which has specialist and is by referral only. We give him a prescript food, Hills Prescription diet, I/D canine, Hepatic Health, can dog food that can only be purchased through a vet. He gets no red meat and no type of dog food or treats. For treats Vet said Animal Crackers, preferably Costco brand. Sparky love them. He gets Yogurt every morning, and I switch like every 3 days his special dog food and Fish! I give him Tilapia fish. I spray Pam on both sides and pan cook it. He gets broccoli and sweet potatoes (both raw) every night which he loves! Almost any kind of fruit, he loves watermellon. And as a special treat after he puts up with me digging in his paws at night, we give him Frozen vanilla yogurt. The hospital we take him to has a dietician who gave us a list of foods he should and can have. He takes his pills in Pill Pockets that can be found at any Pet Store. How this helps!

          Reply
  7. Jodie Ramirez

    Ok thank you for your help girls! Before he was actually diagnosed with this disease, they gave me something called Gent/Betameth and it was working, but not sure because now its something different if it still would. His feet are the WORST they’ve been and he just keeps licking and biting so I’m gonna ask the vet what they suggest.

    Reply
  8. Jodie Ramirez

    Well everyone, unfortunately I had to put my dog down this past Saturday 🙁 He was breathing shorter and faster than normal so I took him in and they basically told me that his quality of life was not going to get much better even if the food did work. The lesions would be gone, but internally he would still be sick. They said his liver did not look like a healthy one. I was having to liquify all his food because he was losing his teeth and feed him in bed. The only time he’d get up was to pee or shake his little body. His face and paws were absolutely unbearable for him to endure anymore. I couldn’t make him suffer or be in pain anymore. It was my very first time having to do this and it was HARD, but it was the best thing for him.

    Reply
    1. Jamiegoff Post author

      Jodie, I’m so sorry to hear that!! I’m praying for you. I know how hard it is to lose your four legged child!!

      Reply
  9. Amy Braun

    We just found out today that our dog, Ranger, most likely has hepatocutaneous syndrome. She was diagnosed about a month ago with a fungal infection, placed on antibiotics and we started giving special baths for her poor little paws. She has been losing weight and shakes when she stands, has difficulty walking and is lethargic. It is so sad. I am so happy I found this site. We need to make decisions about how to proceed. She is only ten years old. She is a Havanese. I love her more than I can even express. My heart is broken!

    Reply
    1. Tira

      so sorry to hear about Ranger…please try all of the suggestions on this site before you make any decisions… it takes some time and patience but as you can see by mine and Jamies comments, it can improve!!!i was so happy to find Jamies site and we started following her suggestions and it took a while but our Kuro has improved immensely!! before, he wouldn’t come out of his crate and had to have food brought to him to eat in the crate, we also carried him outside to go to the bathroom because his feet were so tender…after the adjustments to his diet, his lesions are all clearing up (face almost completely clear) and he now walks all over the house and follows me everywhere..this doesn’t mean he won’t relapse but these suggestions have definitely given him a chance..

      Reply
    2. Jamiegoff Post author

      Amy, what you have described is EXACTLY how Zoe was when she was diagnosed! She was nearer to death than to life! That was 16 months ago and she is doing really well now (at 14 years old her days are numbered, but I’m happy her quality of life has returned!). I am HAPPY to talk with you, if you’d like to call me…205.296.2323. I don’t have all the answers but we all have walked down the same path as you and can tell you what has worked and what hasn’t

      Reply
    3. Darlene McCabe

      Amy, Please look at what I wrote above. Its rather lengthy but our Sparky is doing well with eating and has his good days and bad but mostly good. Its a lot of work taking care of these pups with this disease but Our Sparky eats well and wants too and isn’t in any pain. Only when I dig in his paws to get the stuff out. When Im done he doesn’t hurt. I hope you can find what I wrote. I think you’ll find it helpfut. I’ve done a lot of research on this disease and I’m still learning. I hope I’ve helped you. Good luck
      Darlene

      Reply
  10. JoAnn Stamplis

    My heart goes out to all of you. Our Abby was diagnosed in January 2014 with this vicious disease. She had started licking her paws in the fall and we were moving- thought it was stress-then thought it was the salt the apt. complex used in winter. Took her to a regular vet- was treated for a bacterial infection of her paws which were cracked, crusty and bleeding. Also, had a foul smell. Initially, the infection left then returned. We were also soaking her paws with special solution. Then I took her to a vet specializing in dermatology- Ultrasound showed the “honeycomb liver”. We try to get at least 2 eggs and 7 amino acid tablets twice a day along with zinc, vitamin C and E. Welactin ( fish oil-) which Abby hates.Any protein like salmon and tuna, ham, beef and chicken. Her paws and bottom are doing much better. She can have Ultram for pain. Abby also does not make tears from being placed on Sulfa after developing bladder stones and needing surgery twice. Now, I notice Abby’s fur is getting all matted throughout her coat. Did anyone else have this happen. She is a lab mix and has a thick undercoat. I don’t know what to do.This poor dog is such a sweetheart and doesn’t deserve all of the suffering she has endured in her life. Her spirits seem good and she wants to go for walks again. Any suggestions on the fur matting or is this part of the illness?

    Reply
    1. Jamiegoff Post author

      JoAnn, I’m SO sorry to hear about your sweet Abby! To answer your question, yes the matting seems to go with the disease. With Zoe, we use chicken stock to deliver the amino acids, along with amino acid supplements. I give Zoe about 1/3 cup of chicken stock now about 5 times a day, though when I started, it was about 3 times a day. Zoe weighs about 57 pounds. Please let us know any questions you have as we are all in this together!! God bless you and your baby!

      Reply
    2. tira ishikawa

      I am so sorry to hear about your pup…but there is HOPE! our chihuahua, Kuro, also had the crusty paws,nose, eyes, and back…he was lethargic and didn’t walk due to the discomfort…but we also started supplementing the amino acids and collagen (see my jprevious posts for the regimen) and i am thrilled to say that he is almost 100% back! his lesions have all cleared up and he is active and playful…i don’t know if this remission is permanent or if the lesions will return but he is doing great right now…we changed his diet to include the collagen we make from cuts of pork and chicken. we give an egg with each meal and also give him milk thistle tablet and collagen tablet with each meal..it sounds like more work than it really is, we’ve gotten used to it and it actually takes a lot less time now… but it is so worth it. I encourage you to try this (keep in mind that it didn’t happen over night, it has taken a couple of months)and i wish you the best of luck… please keep us updated.

      Reply
  11. Darlene

    Sparky continues to be doing better! 🙂 My question is, if anyone knows, he had an Amino Infusion yesterday, Monday.. Can I still give him the Collagen or should I wait a few days? Will it be too much at once? The sores on his neck are completely gone! 🙂
    Thanks
    Darlene

    Reply
    1. Jamiegoff Post author

      That’s great!! I haven’t ever given Zoe stock and had infusions, so I honestly don’t know. I do think the only issue might be diarrhea, but your vet may have a different thought. You might want to ask them

      Reply
      1. Darlene

        Thanks for you fast reply. I remember you saying Zoe had the infusions so that’s why I thought I’d ask. I was going to call the vet this morning but I thought you would know. I’ll give her a call tomorrow morning. Did I tell you I made more a turkey stock Sunday and slow cooked it for 10 hrs. It wasn’t quite gelled right. Luckily I put the bones in a plastic food bag and put it in the fridge cause we have a fox now and squirrels that love my garbage. So I thought I’d store it in the fridge and throw it out on garbage night. I put the bones and stock back in the crock pot and cooked it again but for 5 hrs on Monday. Then I poured it in a brownie Pam. Perfect collagen!! I’m so happy. It was like jello! I gave Sparky a little tonight. He just loves it!
        Thanks
        Darlene

        Reply
        1. Jamiegoff Post author

          Hi Darlene, Zoe had already been given amino acid infusions to the point that her veins were shot, that’s when God gave me the chicken stock idea! So, she was never on both at the same time.
          I’m excited you’ve had good success with making the stock!! Hope Sparky continues to do great!!

          Reply
          1. Darlene

            I have you to thank. Sparky’s Guardian Angel! I feel the same way. God lead me to you!
            I was just telling my Neice inColorado about you. When I was looking up Hepatocutaneous on Google I was on something like page 20 when I came across your blog site. I found it so interesting but had to leave. I forgot to write it down. When I got back to look again I couldn’t find you. Days later I looked again and your site just appeared without me even looking for it! Meant to be? I think so! I Thank God for directing me. It was meant to be! I’ll continue with his updates.
            Love
            Darlene and Sparky

  12. Audra and Portia

    Hi all,

    I am also going through the same situation. I have been going to vets, dermatologist & internal medicine specialists.

    My 7 year old boxer’s paws, jowls, nose are crusted and cracking. The front and back thighs are dry and crusted also along with her armpits.

    Originally started October of 2013 with an ear infection. Then she had vaginitis/UTI (November) prior to the above description. She was put on antibiotics. It did get better but then lessons started on her rear part of her body (front & back of her thighs and belly). Which I thought it was a yeast infection because she was not on a probiotic.

    Her paws are what truly alarmed me. They were so swollen & had pustules on them and cracking. This is when I got a second opinion.

    It is uncomfortable to have a paper cut on my finger. I can’t imagine what she is going through.
    The dermatologist thought it was drug eruption due to the antibiotics. We put silver sulfadiazine on her paws. When this didn’t work we were set to a internal medicine specialist.

    This is where I am at now. We have done 2 ultrasounds, x-rays (kidney stones), blood tests, urine & stool sample. The ultrasound & x-rays have come back fine. There was no sign of swiss cheese or honeycomb patterns in the ultrasound. We got a biopsy of the tissue & that is what came back negative :0(. I am heartbroken. I am so glad I came across this blog. I will sure try it all. Anything to make my baby better!

    I am not going to be able to afford the amino acid injections which the doctor has already mentioned. We are already in for about $5,000. I wish I could afford more. I know the time will come that I cannot keep her comfortable but I will try all I can until then.

    Reply
    1. Darlene McCabe

      Hi Audra , I stumbled across this site too and it’s been so helpful. Do try the Collagen. It’s working for out Sparky. His sores on his body are almost gone. Takes longer for the feet. If no one responds let me know. Jamie is amazing with this stuff and helped me a lot. Sparky wasn’t playing or walking much and this week he’s interested in everything that’s going on and is starting to play. I wish you luck and hope this works for your baby too.
      Darlene

      Reply
    2. Jamiegoff Post author

      Hi, I am truly sorry that you and she are going through this! I had another poster tell me they had the same skin issues, but had normal liver ultrasounds. They got benefit from the stock, but then had issues with diarrhea. (We control diarrhea with probiotics, but others use canned pumpkin to help with any diarrhea.). I am happy to answer any questions you may have about how to make stock, as I was the one looking through page after page of online info describing how there was nothing to be done for these sweet dogs! My cell phone is 205.296.2323. Jamie

      Reply
      1. Darlene

        God Morning all, I am making collagen as I write. It’s been in the crock pot all night and I will add another 5 hrs today. Sparky loves the collagen. If he hears the fridge opening he comes over and tries to go into the fridge, which he’s never done! When he was well he used to run to the bedroom window, jump up on the bed and look out the window whenever we left him to go out. It was so cute seeing him in the window. If he saw we were in the car he would watch it pull out of the driveway and jump down. If we were just in front of the house he would stay there and watch us. He hasn’t been in the window since early fall. I missed seeing him there when we left the house. I always looked for him but he wasn’t there anymore. It’s like he lost interest and didn’t care we were leaving. Well yesterday we were going to Costco, as we pulled out I looked in the window and there he was!! We were both so excited!!! Sparky is an 8 yr old Westie. We were waving and yelling to him like idiots!! Just overjoyed at something so simple!
        I no longer have to muzzle him t work on his feet and rear end. He’s happier and doesn’t sleep all day. And is walking around more and runs a little.
        His feet rant as bad as they were but he has a way to go. I’m still soaking them every night but instead of applying the Miconazole Lotion from the Vets I’m applying Neosporin ointment that Kristin suggested. Makes more sense because it softens the pads n crust. Then I put his doggy socks on and he goes to bed.
        It seems to be working better. I’m getting whole pieces of crusty stuff just peeling and hanging off his pads! Instead of pulling this stuff off after I soak his feet I cut it off. Less pain for him.
        Jamie, I bought the Ezekiel bread and Sparky won’t even try it! Oh well, was worth the try.
        Now I’m trying to figure out a way to avoid diabetes . There has to be something I can start him on. His GLU is 198, normal is 70-143. He at the low end of high. Our Vet said she doesn’t start injections till about 300. Does anyone have any suggestions? My eyes hurt from hunting on my Ipad!
        Thanks
        Darlene

        Reply
        1. Jamiegoff Post author

          Hi Darlene, I use alpha lipoic acid 50 mg for Zoe. It works really well, in fact, I forgot to give it and had to increase her insulin as a result

          Reply
          1. Darlene

            Wow, that’s funny cause I bought that yesterday! But I bought 100 mg. do you think that’s too much for Sparky? He’s 20 lbs

      1. Tira

        Hi….I have been reading the comments and I just want to tell you that though the process is not fast the collagen and supplements DO WORK,, our chihuahua, Kuro, has improved tremendously !!!! He had lesions and cracks on his snout ans all over his back and foot pads… He was weak and couldn’t walk because of the crust and pain….. We really were afraid of what the outcome would be so I started researching and found Jamie’s website….. We stared cooking the collagen until it was a thick solid gelatin consistency and giving him egg with each meal and the milk thistle and protein powder and collagen tablets and his back and face are completely lesion free and he is even growing some hair back…3 of his feet are cleared up and the remaining foot has only a ridge of crust around the outside of two of the little pads…we have stared putting bag balm on it (originally made for cow udders) and the pads are clearing up and he has been galloping (not quite a run) and he is again playful and happy… Please don’t give up!!!! The regimen sounds like a lot of work but once you get in the swing it isn’t that different from a regular feeding time… We give him all of. It with each meal and a snack of the collagen….though perhaps not cured. We have already had him much longer than the vet and he is happy and comfortable….please try this regimen,,,

        Reply
      2. Tira

        Hi….I have been reading the comments and I just want to tell you that though the process is not fast the collagen and supplements DO WORK,, our chihuahua, Kuro, has improved tremendously !!!! He had lesions and cracks on his snout ans all over his back and foot pads… He was weak and couldn’t walk because of the crust and pain….. We really were afraid of what the outcome would be so I started researching and found Jamie’s website….. We stared cooking the collagen until it was a thick solid gelatin consistency and giving him egg with each meal and the milk thistle and protein powder and collagen tablets and his back and face are completely lesion free and he is even growing some hair back…3 of his feet are cleared up and the remaining foot has only a ridge of crust around the outside of two of the little pads…we have stared putting bag balm on it (originally made for cow udders) and the pads are clearing up and he has been galloping (not quite a run) and he is again playful and happy… Please don’t give up!!!! The regimen sounds like a lot of work but once you get in the swing it isn’t that different from a regular feeding time… We give him all of. It with each meal and a snack of the collagen….though perhaps not cured. We have already had him much longer than the vet and he is happy and comfortable….please try this regimen,,,

        Reply
  13. Lindsay

    Hi Jamie,
    I recently got results back for my 10+ year old aussie shepherd rescue, Maddie, that she has hepatocutaneous syndrome. Her 2 front paws have bad lesions for weeks and it has just started to move to her back two paws. We got an ultra sound and x-rays, but everything came back clear! When we got a biopsy on the paws, we were told it is hepatocutaneous. She has a history of high liver enzymes, but this is new. She is hardly walking… she won’t even stand up to eat. Our vet has put her on a couple supplements, and she is eating about 6 egg yolks a day. Today, she would not eat her food, so I gave her some fresh chicken soup, chicken, and carrots that I made – she loved it! It was the first time she stood eating in weeks.
    So my question to you is how often do I give her this chicken soup? I have put it in the fridge, so I am hoping that it will solidify. Do you have a specific recipe?
    It is so heartbreaking watching our girl so helpless. We are trying everything that we can, but nothing seems to be working. Her paws are just getting worse. Do you keep them covered? She tries to lick them all the time, and right now they are covered from her biopsy.
    Any advice would be grateful.

    Thanks,
    Lindsay (and Maddie)

    Reply
  14. Darlene

    Our Sparky, an 8 yr old Westie has had this disease for about 9 months. He wasn’t playing, sleeping most of the day, not walking much and no running. I’ve been making the collagen from turkey carcasses. I got from our local butcher for free. I put one in the crock pot, I usually have to cut off the top To fit it in pot. Almost cover it with water and add 2T apple cider vinegar I cook it on crock pot for 15 hrs. Then I pour it in a brownie pan so it jells like jello. I pour it into little containers. He gets about 2/3 cup a day. He’s 20 lbs.. He loves it. I give it to him throughout the day like every 3 hrs a little at a time. One container a day. I freeze the rest and every day I take the next days container out to defrost. His sores on his ears and neck are gone! Took about 2 weeks. ! Under his tail was pretty bad and it’s about 2/3 better. His feet are so much better too. They take longer. .I’ve been soaking them for 5 min each foot every night. The vet gave us Miconazole lotion which I’ve been putting on and then I put doggy socks on. I do this at night n he goes to sleep w them on. A lady from this site, Kristin told me she uses Neosporian ointment. So I’ve been doing that every other day. One day the lotion and the next day the ointment. Kristen bandages the feet all day, I don’t. Recently the stuff on his feet have been peeling off! It’s painful to pull it off so I try and cut off what’s hanging and loose. He is now walking better and just started to play and run a little! Amazing! His feet have a way to go. If you stop giving the collagen it will come back. So this will be a way of life for you and Maddie. But it’s worth it. Slowly we are getting our Sparky back Thanks to Jamie. Call her she knows best! If you want to just talk, you can give me a call too, 732-671-4857 or Email at dollyandharry@aol.com. We all understand what your going through. It’s so hard watching your baby suffer. Good luck. Darlene
    Ps: our groomer gave me a flea comb and it will help take away the flakes and gooey stuff. Under Sparky’s tail was so bad and scaly and hard. I’ve been combing it off with the comb and he’s feeling much better back there. I wouldn’t use this on the feet though. I did use it on his neck.

    Reply
  15. Darlene

    Also, our Sparky does not get any doggy products. Instead he gets kids Animal crackers for treats. Vet said Costco Kirkland brand. I give him fish 2 to 3 x a week. I just spray both sides w Pam n cook on top of stove. He gets canned Hills prescrip food for liver problems from Vet. I alternate . In morning he gets yogurt, and Wheat thins, got it from whole foods, no sugar. He loves it. I give him raw sweet potatoes and raw broccoli almost every night. He doesn’t like the florets. He gets watermelon, blueberries, eggs, at night after I do his feet, which takes an hour, we give him a little frozen yogurt . He thinks this is a real great treat.. Hope this helps. And Sparky loves canned pumpkin? This is good for both diarrhea and constipation. Don’t ask why it works for both but if you look it up that’s what it says. I usually give him about 2-3T every other day.
    Darlene

    Reply
  16. Lisa

    My dog Alex was diagnosed with this about two weeks ago. He’s a 12 year old 45lb mixed breed dog that I believe is mostly Australian Shepherd. I’ve had him since he was 8 weeks old and he’s been the best dog ever. He’s a certified therapy dog and multiple elite agility titles. He loves everyone and has never met a stranger.
    Like many other have said I assumed this horrible winter had done a job on his poor old paws with all of the ice and salt that’s been on the ground. I asked the vet to take a look at them when I was in for his annual visit in February. He said he didn’t think anything was that wrong with them and encouraged me to soak them every other day or so until the redness went away. We ran a full blood panel as we had the year before and his liver enzymes were high. He asked me to put him on Denamarin and said we would recheck his blood work in about three months. About a week later his feet had gotten much worse and we were back at the vet. The vet gave him a cortisone shot, antibiotics and used a healing laser on his feet. The drugs helped for about a week but then his feet began to deteriorate again and his appetite waned (he has NEVER walked away from food or turned down a treat in his life before this so I was scared). The day of the last antibiotic pill we went back for a recheck. The vet took a very close look at his feet and noted some crusty portions that were on all four of his feet right where the pad met the skin. He felt it was something auto immune and I agreed to have his foot pads biopsied and a full thyroid panel done. In the meantime he put the dog on a different type of antibiotics and prednisolone. The biopsy came back about a week later and indicated hepatocutaneous syndrome (HS). I went back to the vet with him the next morning and we did an ultrasound. The “swiss cheese” appearance of his liver confirmed HS. That day we launched an intensive protein and vitamin regimen of 400mg of Vitamin E, fish oil, zinc, antibiotics, ursodiol, denamarin, egg yolks, turkey, homemade high protein dog food made from potatoes and tilapia to decrease the toxins he would be exposed to and decrease the effort of his liver.
    About a week later his pads were quite a bit worse. The vet called me to say his thyroid panel had come back and he was hypo thyroid. We started medication. While I had him on the phone I asked about his pads and the vet felt it was because he was licking them too much. I began nightly soaks in Epsom salts, slathering them with Neosporin for pain, and taping socks around his feet so he couldn’t lick them. While his feet seem marginally better (or maybe it’s wishful thinking?), he’s starting to look like he has mild rug burn on his belly where it was shaved for the ultra sound and his nose is dry and cracking. Despite this he’s still in super good spirits. He follows me around the house and lays by my feet, refuses to miss out on anything going on in the kitchen, wolfs down any cookie offered him and seems to enjoy rolling around in the grass and lying outside in the sun. The only indication anything is wrong are his inflamed foot pads and limp.
    The vet offered me the Aminosyn treatment and I turned him down at first. Alex has separation anxiety when kenneled and would need to be sedated for the 8-12 hours the infusion would take. I hesitate to ask him to selfishly endure this treatment on what could be one of his last days if he doesn’t respond to the treatment.
    I guess I’m asking for a sympathetic ear and some knowledgeable guidance in this hard decision? Should I try the amino acid infusion? Should I give him more time before deciding? I don’t want him to suffer for my inability to let go but he seems to really enjoy life still and I have a hard time cutting it short if he is not ready to go.

    Thanks a ton in advance!

    Lisa (and Alex!)

    Reply
    1. Jamiegoff Post author

      Hi Lisa,
      Do you want to call me to talk this over? I have time now, if that works for you: 205-296-2323. Jamie

      Reply
      1. Tira

        Lisa…please call Jamie when you can… I spoke with her and she was soooo helpful and I credit her with all of her suggestions and research for helping our Kuro!!!!!she is wonderful and is so helpful!!!! She gave me hope…..

        Reply
      2. Lisa

        Quite sorry I didn’t check back right away! I didn’t expect such quick and fabulous support from you all! I fear it’s a bit late now but I’ll be free to talk most of the day tomorrow. I’d love for my boy to enjoy a few more nice walks and squirrel chases before the curtains close on his time with me. I would give almost anything. Feel free to let me know when a good time might be or call 314-409-9667 anytime after 10am EST. Thanks again.

        Reply
    2. Tira

      I would strongly suggest you give him more time…we have changed our pups diet and include collagen supplements and milk thistle (see diet details in previous.comment) and Kuro is lesion free right now and plays like his old self! It took 2-3months to get his paws, eyes, back, and mouth cleared up but he is doing good now… I don’t know if or when it may return but the changes we’ve made have given us more time with him and he is happy…. He gets a scrambled egg with each meal 2x day and we make collagen gel and give him about a heaping tablespoon with each meal and also protein powder and mix all with a little dog food and he eats it up…we also give him a collagen tablet and a milk thistle capsule with each meal….it is so worth it to us…

      Reply
      1. Darlene

        Tira! Don’t give up! We have all been there! Sparky didn’t play or even walk around. Forget about running. The collagen is amazing and so are the supplements and vitamins. Follow what Jamie or anybody on this suite has to say. Your not going to believe it’s the same sick pup. This won’t cure him but it keeps the illness at bay. He will play again n be almost back to normal. Just be patient it takes time. Good Luck and keep posting. We are all here for you!
        Darlene

        Reply
    3. JoAnn Stamplis

      My vet-who is a specialist in dermatology instructed us to crush 7-8 amino acid caplets and add to her food. The problem with this disorder is lack of amino acids. Our vet said she had tried the infusions on a few dogs– they are expensive, traumatic to the dog, and short lived. So, please check with your vet. The dose is based on the dog’s weight. Also, we give her Omega 3’s (in the form of welactin-
      can get from the vet)try to give her salmon, eggs, fish, beef, anything that is high protein. there also are “treats” that have Omega 3’s in them- can find at walmart. And we give her 1/2 zinc, milk thistle to protect the liver,Vitamin C and E. The vet recommended EVO dog food which is one of the highest in protein. Abby is doing so well-you would not know she has an illness. When her paws were raw and bleeding, the vet gave us soaks, but I also bought Vetericin. It is a spray gel that tends to adhere to the wounds. it is safe if they lick it. I tried to use it before bedtime, so she would be more sleepy- she was also given Ultram for pain– and I played soothing music for her. We had originally been told Abby had weeks to months to live- she is a black lab mix from a shelter and is 11 years old. She was diagnosed in January. I accept her healing as a gift from God-she is walking well- has lots of energy and seems back to her old self. I hope this gives you some helpful tips to deal with this terrible illness. Nutrition and God is saving her life! take care, JoAnn

      Reply
        1. Darlene

          Hi all, I bought Twin Labs Amino Fuel but they are huge like horse pills, I’d have trouble swallowing them! I cut them in half and they are still big. Problem is you can’t see the pills inside some bottles. I would like another brand.
          Also, our Sparky has had 4 Amino Infusions already. The did help a lot. A dramatic difference in how he felt. That’s when he started to get his energy back he was getting them Avery month to 6 weeks. And yes they are very expensive. $600 and if they did blood work add on another $200 or more to that! But we did this before I found this site and started with the collagen. He was sedated but not knocked out. He was there all day. I can’t say it was traumatic for him because he loves our Vets which is a hospital and everyone knows him from all the visits! He’s like a celebrity there so he loves it there. Our vet won’t do any more than 4 because you have to worry about the vein collapsing after so many infusions. So we are done with those. My husband said we could have had 2 more Westie puppies with what it cost! He was kidding because it was his idea to keep getting them. Plus we had no choice because back then there was no hope.
          Keep posting so we all can keep up with our special pups a,
          Darlene

          Reply
          1. JoAnn Stamplis

            Hi Darlene- I was using the same as you- Twin Labs Amino Fuel Pills. We just moved an the GNC here didn’t have them so we purchased the PRO PERFORMANCE AMINO BURST 3000.We crush them with a meat tenderizer pounder. Sometimes we put the caplets in a plastic bag- sometimes my son pounds them in a plastic container- then I mix the powder with an egg and her omega 3’s and actually hand feed her the combination wrapped in thin ham for breakfast..For supper we pound them again and put them in hamburger- or salmon- or chicken-she is supposed to get 6 egg yolks a day, but the vet that told me this also said there was a dog that developed cholesterol plaques on it’s eyes. So I am happy if she gets 1-2 eggs a day. She had weighed 70 lbs… which was too heavy for her. She is in the 50’s range. She seems a little on the thin side, but she is very happy, and has energy, and loves going for walks again. It is so heart warming to see. God Bless! joAnn

          2. Darlene

            Thank you Joann, I have. GNC nearby, Sparky’s only 20 lbs. I guess all the Amino pills and big . He likes walks too but his paws are still healing. Our last Westie had cancer in her back paw and we had to have her leg amputated! She too loved walk so I made her a stroller. Which I called the original doggie stroller because Jon existed it was stollen from me at an ASP dog walk! 2 ladies asked if they could take a picture and 6 months later it showed up on the market! Oh well! :(. Anyway, I never thought I’d be using it for our next Westie! The sidewalk hurts his feet so I push him every day. I noticed he was getting depressed not going for his walks. It helped him tremendously. So he’s still bring pushed around. I take him everywhere. He gets so much attention which has helped him.
            Last night a huge chunk came off! I called it his 5th toe! I have to call our Vet, who’s a specialist and ask her why she said no beef!
            Thanks for the info!
            Darlene

          3. Lisa

            I went to the Vitamin Shoppe after work today and found that Twin Labs also makes a liquid collagen supplement that appears to have a similar amino acid makeup to the huge tablets you mentioned. Since it’s a liquid you can easily give him an amount that’s right for his size. I assume the home made collagen would be largely the same but probably better and safer since it is all natural. It definitely smelled a bit icky to me but Alex didn’t seem to mind it mixed in his food with dinner. I’m going to give it a shot until I succeed with the homemade version 🙂

        2. Darlene

          Hi all, we did the Amino Infusions. Sparky had 4 already. The are expensive, $650 plus blood work you can add another $250 or so. They worked for him but not as well as the collagen and other supplements he is now getting. Our vet said after 4 infusions you have to worry about the vein collapsing so we are done with infusions.
          Sparky was sedated but not totally knocked out. It was an all day event but he loves our vets.. It’s a big hospital and everyone there knows him. He’s like a celebrity there because we’ve been there so much. So he gets a lot if attention there.
          My husband jokes we could have bought 2 Westie puppies. But he is joking because he had no problem having the infusions for our baby. We had no choice because I didn’t find this site till after we had them done. I guess they helped him, pumping him with a lot of Ammino and we did see a difference in him. But using the Collagen has been amazing.
          Please keep posting about your pups so we can all keep up with their progression. Plus it’s nice to know your not alone! We are all in this together! There is hope and this is not a death sentence as most vets say it is.
          Darlene

          Reply
      1. Lisa

        Thank you so much for the help and advice!! I’ve had Alex on a home-made food of equal parts tilapia, potatoes and yams plus a half part string beans and broccoli for a couple of weeks now. In addition to this I’ve been giving him two egg yolks twice a day. He’s also on Denamarin (a prescription drug much like milk thistle), Ursodiol (for liver inflammation), Simplecef (an antibiotic) L-Thyroxine (for hypothyroidism) omega3 capsules 2x a day, vitamin E 400mg 2x a day and 50mg Zinc. Talking with Jamie today really helped and I have much more hope and am armed with a few new things to try. I’m headed home to slow cook a chicken and try my hand at making stock tomorrow. I plan to hold off on the amino acid infusion to see if and how well this added element improves his condition. My vet quoted me an incredibly reasonable rate for the infusion compared to what others are saying so it’s not the cost as much as the stress it may cause him that’s my concern. Fingers crossed I succeed in making a bit of stock and can see some positive developments soon! Thanks again!

        Reply
      1. Lisa

        I’ve been insanely busy and haven’t had much time to write these past few months with taking care of a sick dog, working full time and trying to run a small business on the side. To recap – Alex was diagnosed with hepatocutaneaus syndrome by biopsy and ultrasound in March of this year. The homemade food + collagen and bi-weekly foot soaks have kept his feet in fairly good shape. The lesions have come and gone over the last few months on his skin and feet but they’ve never gotten super bad and he’s been able to take a few walks and enjoy some time outside, good food, and visits with friends for a good while now. Unfortunately his liver isn’t the only issue and a very aggressive tumor has grown on one of his upper legs. It’s causing him to limp badly and he’s hesitant to go outside for even a brief walk unless he really needs to. The vet has looked at the tumor and agrees with me that it is a bad one that is causing the limp and minor discomfort even when lying down. It’s also one that couldn’t be helped by surgery even if his liver could handle the strain. I’ve had to make the tough decision to have him put down. The vet is nice enough to come for a house call on Monday so he doesn’t have to head to the vets office to have it done. I’m spending my weekend spoiling the hell out of him. He’s getting to eat hamburgers, tuna, salmon, ice cream a couple nice meaty rib bones and anything else he wants along with lots of hugs and being told he’s the best good dog ever. Hopefully he’ll cross the rainbow bridge peacefully while eating ice cream and feeling loved. I wanted to say thanks again for all the advice and support, especially from you Jamie for taking the time to call and talk to me and everyone else that chimed in. I hope you all have as much success as I did keeping this syndrome at bay with your own dogs and will get to have a few quiet happy days and a peaceful end as I hope Alex will. If I can do anything to help or answer anyone’s questions about my experience feel free to look me up on Facebook or email: lisa@carpegecko.com.

        Reply
        1. Jamiegoff Post author

          Lisa, I’m SOOO terribly sorry! It’s so hard to say good-bye to our sweet babies! I’ll continue to pray for you as you walk Alex through this. I know you are doing what is best, but it is never easy! Hugs and kisses to both of you and know you are in my prayers!

          Reply
  17. Darlene

    PS: I’ve been giving Sparky Twin Labs Amino Fuel pills. They are huge! Like horse pills. I wouldn’t be able to take them they are so big. I cut them in half but they are still big. The problem is you can’t see the size when you buy them. Does anyone know of a better brand that aren’t so big?
    We use Greenies Pill Pockets to give him his pills and I got a 7 day pill box to keep track of his pills. I think Sparky gets 7 pills throughout the day. I cut the pill pockets in half so I can give him 2 pills in one pill pocket. This way it’s not so expensive and he’s not getting so many. He loves the pill pockets. When he hears the bag opening he comes running! Yes I can now say he comes running! 🙂
    Hope this helps someone.

    Reply
  18. Lisa

    I hope I’m not overstepping in doing this but Jamie was so helpful today and I’m so captivated by all the stories that I created a Facebook page for the syndrome. I would love to be able to share pictures and stories easier with you all and I feel this platform may make it easier? If this is not wanted please feel free to delete my comment! Thanks!

    Link to the group called “Hepatocutaneous Syndrome”: https://www.facebook.com/groups/630011790420368/

    Reply
    1. Jamiegoff Post author

      Hi Lisa, you are welcome to use this site, or the one that I created months ago that is just hepatocutaneous also on facebook. There are others on that page that also are diagnosed with HS. (Either is fine with me…..just want to have this lovely open dialogue about what is working and not, so we can learn from each other!!!)

      Reply
      1. Lisa

        Thanks! I was searching for a group and didn’t notice you had a page on Facebook. I’ve liked it and will see if I can share photos on it in the morning 🙂

        Reply
          1. Darlene

            Good Morning, I just wanted to tell everybody I was working on Sparky’s feet last night and 3 of his, what I call extra toes came off last night!! I’m so excited! At the end of his paws under his toe nails were long hard crusty things that looked like toes! It had to hurt because it was right under his nails! He still has one more large one and a smaller one to come off. This has to make him feel so much better! I know it makes me feel better!
            I can’t wait to show him off to the vet and his groomer!
            Be patient all, there is hope!
            Darlene

  19. Lindsay

    Hi everyone,
    It has been a few weeks, busy ones at that! Maddie has started her Amino Acid IV treatment… Thursday was her 2nd one. After the first week, she seemed to be doing much better. Walking a lot more and the crust have slowly been coming off her paws. Her elbows are almost all clear now too!
    As I mentioned earlier, her liver looks like a normal liver. But when she went in on Thursday, the vet took another x-ray on her liver to see if there was any change, and they found a 3cm mass on her liver. (My vets are very interested in this disease, and they are doing additional care/research for free!). The mass appeared in 2 weeks, since we started her on her new regimen of hepato vitamins, ursadile, sam-e pills, eggs, and collagen. I do not know if this is the reason for the mass, but it is there.
    My vet’s are definitely pushing to take a biopsy of the liver, but I do not want Maddie to have another surgery. She is going through too much. Next week I am sure they will do another x-ray on her and hopefully the mass will not change in size…

    Yesterday her appetite diminished – she is licking up the collagen, but it not eating her food. We are going to try to start cooking for her. Fish, potatoes and veggies. Jamie, how much food should we give her a day? She is supposed to be about 45lbs, but she is 57lb right now (She has gained 3 pounds in a week because she has no exercise 🙁

    Hopefully she will prefer to eat cooked food instead of her special liver food. But I will tell you, she is doing SO much better than a month ago when we thought her life was over. Today we are going to try to take her to my parent’s house – her first excursion in months! (besides the vet, of course)

    Reply
    1. Jamiegoff Post author

      Hi Lindsay, I would worry that the mass is the reason for her symptoms, but was too small to see on ultrasound initially.

      I give Zoe about 1 and 2/3 cup of mixed cooked food twice a day….she weighs 57 lbs and that’s her correct weight. Her meals are made up of cooked chicken, green beans, sweet potatoes, raw beets and raw carrots. Here are the ratios from Dr. Dodds:

      Dr. Dodds’ Liver Cleansing Diet

      W. Jean Dodds, DVM

      White potato + sweet potato (50/50) cooked
      White Fish lightly cooked eg: cod, halibut, mackeral, smelt, snapper etc
      Ratio is 2/3 of potato mix with 1/3 of fish . Season with mixed Italian Herbs or fresh parsely, salt and pepper. Later chopped carrots and green beans ( both cooked) can be added as can scrambled eggs. Yellow squash can also be added. Give a liquid childs multivitamin or a supplement such as Missing Link ( source of calcium)

      Note from Dr Dodds :- I have some patients that have been on the diet for 7 years now– that were near death before– and are thriving! Testimonials are numerous, without one negative comment other than some won’t eat fish and so we give chicken to them.

      W. Jean Dodds, DVM
      Hemopet
      938 Stanford Street
      Santa Monica, CA 90403
      310-828-4804; Fax 310-828-8251
      Hemopet@hotmail.com

      Have to say a mass that is growing that fast is of great concern, though! I hope you and she enjoy your outing today!!

      Reply
    2. Darlene

      Lindsey,
      Don’t be afraid of the Liver Biopsy. Sparky had one and it was not invasive and he didn’t seem to mind it. I’d have it done. We had it to verify the disease. The Dr suggested waiting and I said no let’s have it done to rule out this disease. Well I’m glad we had it done because we didn’t waist any time. Don’t be afraid we are all praying for Maddie.
      Sparky is doing remarkably well. He still has the stuff on his feet , elbows and under his tail but it’s doing a lot better and his old self has returned.
      He doesn’t like the dog Liver can food anymore. He’d prefers the chicken, fish and turkey! Out vet changed him to cat liver can food which he seems to like but I only give it to him once a week or so.
      Keep up the good work with him and I’d still get the mass looked at to see if your dealing with something else.
      Keep us informed.
      Darlene

      Reply
    3. Darlene

      Lindsey, sorry about the mass. I would definitely do the liver biopsy! Sparky had it and it wasn’t as bad as it sounds. It’s just a needle going in, very small and not invasive at all. Sparky didn’t seem to mind it as much as I did. I’m so glad we had it done. At first the Vet mentioned it to see if he had this disease but said we could wait and see. I said let’s do it to rule out the disease first. I’m so glad we did it as we didn’t waist any time with the disease. Ask your vet more about the procedure.
      Sparky loves the fish, chicken and turkey and veggies. He too just stopped eating the liver can food. He used to eat it but I thought he stopped because he likes the other stuff better. Our vet put him on cat liver can food! He likes it but I only give it to hi. Like once a week. It’s like mush. It’s cat food! I only give it to him because I figured it might have some qualities he might need. I prefer giving him the people food. He LOVES chewing on raw broccoli! He’s not fond of the florets just the stalk. Try giving it to Maddie and see if she likes it. He will eat the florets if they are cooked! Picky picky picky.
      He too is doing so much better. Almost acting like his ole self. His feet are better but still flakey as is his elbows and under his tail. He too loves the collagen. I freeze it in containers that I measure it out for the day. Every night I take out a new container. I even add powder whey, protein to it and whisk it in. He doesn’t even know it’s there.
      I know how costly everything is but get the biopsy to know what your dealing with. Like anything else the words “if caught early” May give Maddie her best chance.
      Good Luck, we are all praying for her.
      Keep us all informed.
      Darlene

      Reply
    4. Lisa

      Glad to hear your gal is going better!!

      For my guy, I googled and found a site online that gave me the approximate number of calories my dog should be given per day based on his weight. Then I used a human calorie counter to determine how many calories were in the food I was making (I used fitday.com – it allows you to build recipes) and therefore how much I should feed my dog.

      My vet said a liver biopsy would not be as invasive as I thought. He had a special needle he could insert and clip a bit of liver off with so no anesthesia or invasive surgery would be needed. I still opted not to do it as he said treatment would not change no matter what the results were.

      Hope your pup continues to improve!!

      Reply
  20. Darlene

    Sorry it posted twice! I couldn’t find it and thought what I wrote was lost! I got disconnected to the internet so I rewrote it! Dam, and there it was! Oh well!

    Reply
  21. Erin

    Hi all, it has been a while since I posted but Dagwood isn’t doing too bad! Bad news though he had a vap port put in to do infusions and it is infected and I I think that we are going to have to remove it. I am praying that we can clear up the infection and place another one as it has worked really well. Anyone else have a vap port. Also can you all give me a fund down on how you are preventing infected what amino acid supplements you are giving.

    Reply
    1. Jamiegoff Post author

      Hi Erin, great to hear from you again!! So sorry to hear he has an infection!! I haven’t heard of anyone else using a port. Do the vets treat many other hepatocutaneous dogs? They might have some insight. You know we only use the natural approach with the stock and collagen supplements, since her veins were shot from the amino acid infusions. Thanks so much for keeping us updated, it’s great to hear from you again!! Jamie

      Reply
  22. Lorishank

    My Lab mix, Kelsey was diagnosed with Hepatocutaneous Syndrome, it was heartbreaking to be told there wasn’t a cure. I did what the vet recommended, amino acid supplements, eggs & fish & chicken breasts along with other meds. Our vet didn’t believe she would make through the week but she lived another 3 months before we had to say good bye. I miss her so much & my heart still breaks thinking about what joy she brought to our lives & she had to go like that. I wish & pray all of your sweet pets get through this sad disease. Best of luck

    Reply
    1. Jamiegoff Post author

      Thanks for your email! I’m so sorry for your loss! This is an awful disease and though none of us would choose to go through it with our sweet loves, we at least have each other! Praying for you, too!!

      Reply
  23. Darlene

    Lori, so sorry to hear about your Kelsey. It is a horrific disease for our poor little ones to have . I still wonder why? These little ones are so innocent and loving and all they want to do is be there for us and please us. You wonder why they have to get this and go through this. We do the best we can and have to trust in Gods plan. You did the right thing not letting her suffer and get worse. My heart goes out to you and your family. <3

    Reply
  24. Darlene

    Sparky and I just came back from the Vets his Dr is amazed how well he’s doing! Sparky didn’t have to be muzzled like when he was there 2 months ago. The Dr was able to cut his nails and touch him everywhere with no problem! The Dr couldn’t believe how much he’s improved and how much better he looks and is acting. His blood work has improved also. We are so excited and feel Blessed that we got our Sparky back! Thank you Jamie for helping us and others! You are our Guardian Angel!

    Reply
    1. Jamiegoff Post author

      Oh Darlene, thanks so much for letting me know he’s doing so well!! It’s SO great to hear that others are able to have positive outcomes, as well! GOD bless!!

      Reply
  25. Diana

    Hello to all, our dog Cady was diagnosed hepatocutaneous on Thanksgiving 2012. She was given 6 months to a year to live, she was that bad, but with a special diet and bag balm she is still alive and going strong. She saw her specialty vet last week and was called a miracle dog and would probably pass from old age, she is 13. To curb her foot pads from crusting and, if they start to get crusty, we use bag balm. They were so bad when she got diagnosed that I put a liberal amount of bag balm on them and then wrapped them before bed time. It worked miracles, her pads are normal and on occasion get crusty. Her diet consists of protein (Chicken breast, hamburger, turkey breast and an egg and some potato’s). After reading this blog I am going to include some chicken stock as well as the sour cream and cottage cheese, if she tolerates it. She was on antibiotics (clindamycin 150 mg)for a year and it seemed to make her full of energy. I have stopped the antibiotics to give her system a rest and when she gets mopey the vet says to resume. But for now she likes to play, although not for long. She is doing great and for that I’m thankful.

    Reply
    1. Jamiegoff Post author

      Thanks so much for your comment, Diana! How great to hear another dog is doing well! Let me know if you need any help with the chicken stock! It’s saved Zoe’s life!!

      Reply
    2. Darlene

      Diana, YAY! I’m So happy for you and Cady! That’s great news! Is she on any supplements? My Spark, who’s an 8 yr old Westie was diagnosed last Sept and went downhill fast. He was given less that a year by his specialist who specializes in liver disease. I found Jamie’s site in Feb and I too am excited to say he’s doing very well! He too has been playing for about 3 weeks now and back to himself finally! We saw our Dr last week for blood work and checkup. She called us on her day off and is amazed that his liver is normal as is his sugar. On his last visit she said he is probably headed toward Diabetes! That to is now normal! I make turkey stock and he gets it about 4 times a day. He loves it.
      We are finding out that the vets aren’t that smart when it comes to looking outside of the box. They learn what they learn and that’s it! I’m doing turkey stock because I can get the bones free from our butcher! Plus he gets 2 meals from the meat that’s left on the bones! A win win situation!
      Our Dr said no beef. Now I’m questioning this because I’ve heard a lot of people here say they give beef to their dogs. The Vet had him on a prescription can food for the liver. But he stopped eating it so she changed him to the cat food version. Since I found this site I’ve been cooking for him, chicken, fish, turkey and the can food maybe 2x a week. So to everyone: is beef OK? I’m thinking of stopping the cat food. It’s like mush! Also, he LOVES his veggies!
      Also, Diane, where can I get the bag balm? And do you soak his feet every night? I’ve been and it takes me one hour to do! I don’t mind doing it if it helps but if everyone else is getting good results without soaking, man would that make my life easier and Sparky’s too. He not too fond of this ritual. He knows when it’s time and runs away when he sees the towels and the bottle of stuff I use!
      His feet are so much better. Still a little crusty on the sides and between his pads. Nothing like they were before. Under his tail is still crusty but that too is getting better.
      It’s so nice how everyone here wants to help each other and their furry babies!
      Again, such good news about your Cady!

      Reply
      1. Diana

        Darlene, You can find the bag balm at Rite Aide or Walgreens. It is in a green tin, a solution from the old days. When Cady was first diagnosed her pads were awful, split and infected. I was given an antibiotic rinse that we did once a day and once the infection was gone I did the bag balm wrap every evening until her pads softened. I also put it on her nose, and elbows. Now you can barely find the crustiness. I check her paws every night and if there is a hard spot I put some on and within a few days we are back to normal. It was tedious wrapping all four paws, but it was worth it. I haven’t had to rinse her feet since the first month. I also removed any of the hard stuff on her pads, it just seemed to come right off when I put the bag balm on.
        Not sure why the no beef?? Curious as to that, I buy the extra lean hamburger and the extra lean turkey breast because I know that fat is hard for them to process. She doesn’t get any dog or cat food, I tried some Science diet low fat GI Restore and she just got so lethargic. Once I stopped it she perked right up. So, I cook for her once every three days. She is getting quite bored with her meal so I am anxious to add some of the ideas from above. Carrots are out she eats around them, silly girl. I haven’t tried fish, but I’m going to save that for when she tires of the turkey and beef. She gets fed three times a day because I know small meals are easier on the liver. I boil her eggs and she seems to like them that way. I did scrambled for awhile but she soon stopped eating them that way. Not sure how I feel about the raw eggs, but it’s a thought. Cady’s liver values have not gone to normal but, hopefully with this chicken stock things will get even better. I was going to buy the stock, is it better to cook it??? When we do a turkey I can see that the bones will come in very handy. Glad your Spark is doing so well. Diana

        Reply
        1. Jamiegoff Post author

          Hi Diana, you’ll have to make the stock….it’s important to not give them processed foods, so the best things for them is the stock that is made when the collagen (made up of amino acids) is pulled from the bones
          Beef: haven’t heard that at all and Dr. Dodds actually suggested that I try that with Zoe when she wouldn’t eat
          Zoe’s a walking and tail wagging testimony of how diet can change a life….and make liver values quite normal!
          Thanks so much for the scoop on the bag balm!!!!

          Reply
          1. Darlene

            I’m hoping we’re not in trouble! Sparky is doing so well! He’s finally playing and running after his ball In the hotel room.We are away till Friday. My husband has meetings this week at The Aberdeen Proving Grounds Base in Md. I made all of Sparky’s food and Collagen for this week. The hotel rooms have fridges but the freezers aren’t that good. So I put one in the freezer and the other 3 I left I the cooler. I figured I’d keep adding ice to keep them frozen. Well I was wrong! They started to defrost and a lot dumped into the ice water. So now I’m short ofCollagen for the week. He gets about a cup a day and he’s a 20 lb Westie. My question is, do I buy another slow cooker and try and make more here or is 1/2 Cup a day OK? Any suggestions! I do have extra Collagen pills that I could give him but will they work the same as the liquid?

          2. Jamiegoff Post author

            My suggestion is ration it out and continue to give him some spaced out throughout the day and maybe add the extra supplements as well. I find it’s more important to get the frequency than the amount with Zoe

          3. Darlene

            Thanks, we might be OK because we leave hopefully Fri morning and I have a full container for Friday. Hope so. Now I know better to bring extra and to put it in a zip lock bag for travel! Unfrozen the containers can leak, not a tight fit!

        2. Darlene

          Thanks Diana for you fast reply. Does Cady get any supplements? Sparky gets and LOVES raw broccoli and raw sweet potatoes and loves his carrots! He gets watermelon and canned pumpkin occasionally. He’s never had a problem with the collagen, turkey broth but some dogs may get diarrhea or constipated. pumpkin is very good for both. Only about 2 tablespoons. So he get sir about 1 or 2 a week. I save the little containers that mustard or sauces come in from ordering out. I fill them and freeze them for when needed. Pumpkin keeps them regulated.
          He too gets bored with food. He loves eggs and after 2 weeks doesn’t want boiled eggs anymore. He will eat over easy now. I’d never give raw eggs but some on this site swear by them. I’m uncomfortable giving him the raw.
          With the fish, I get tallapia, I’m sorry I can’t spell it! Lol! I spray the pan with Pam and I cook till flakey. He’s starting to get bored with that. He didn’t want it tonight so I’ll see if he wants it tomorrow. Talk about spoiled! He also wants to be hand fed!
          I’ve been putting Neosporian on his feet every night after soaking each foot for 4 min and he has doggie socks. I do this before bedtime and usually the socks stay on.
          I asked about supplements. Sparky gets Milk Thistle, protein powder and an Ameno capsule that I open up and put in his collagen, Vit E, a probiotic B, Sam-E, Alpha Lipoic Acid. I’m also giving him an extra Collagen pill. I use the pill pockets by Greenies.. I cut them I. Half so he doesn’t get to many a day.
          Hard to say if all is helping but the pills don’t seem to be hurting him and he is getting so much better. I ran all these pills by his specialist.
          Oh and the Dr said no more doggie biscuits, only homemade or children’s animal crackers! They said the Costco brand is better. So that’s his treat now. I also give him sugar free Mini Wheats and Cheerios!
          Something’s working because he was sleeping all day, not interested in playing or walking and didn’t even care when we got company. That’s all changed now! He the old Sparky. He lives up to his name!
          Do make and give Cady the collagen. Broth. Think of it how collagen is needed for skin and hair. It works!
          Good luck. If there’s anything I can do let me know. I am so glad she’s felling better. My vet was against antibiotics for long periods of time. She said it’s not good for the liver to filter.

          Reply
          1. Diana

            Darlene, Cady isn’t getting any supplements, but I want to give her some. What she gets is an imbalanced meal and I’d like to round it out for her. She to is a picky eater and I’m constantly changing up her meals. Going to try the fish and she how that goes, got some pacific cod, love the talapia myself so I may get that for her. I would forgo the soaking and neosporin, once you start with the bag balm it will work miracles. Just makes all the crusty stuff fall off and there are her soft pads. I quit walking her on hard surfaces like asphalt and concrete it seemed to make her pads crusty. She is quite content playing in the yard with lots of grass. I went to petsmart and got some disposable booties (love them) and there is something like athletic wrap that adheres to itself or you can get it at target, plus some gauze. I put on a liberal amount of bag balm, gauze, wrapped with bandage that adheres to itself, put on the booties (just in case she had to go out) to keep the bandage from getting wet. I did this for about a month, keep in mind her feet were split and infected. I haven’t had to wrap her feet for over a year. I check them every night and if I feel a rough spot, I put some bag balm on it for a couple of nights (no wrapping) and she is good to go. You will find the results of the bag balm a welcome relief from the soaking. I feared Cady licking anything like neosporin so I never used it.
            Thanks so much for the different items for her to eat, as for treats she doesn’t get any processed ones, I did buy some hand made ones at Petsmart called Yo Pup, they have probiotics in them, but her favorite is crushed ice, so she gets that a lot.
            Now for a question, I’m not the accomplished cook and I want to make the stock. I saw that you used a slow cooker. If you could give me a little direction on how to cook the stock I would appreciate it. I saw some videos, but slow cooking would be so much better.
            I can’t thank you all for the advice. Cady has good days and bad ones and I’d like them all to be good. I think once I get her a rounded diet and some of the stock she will have all good days.

            Thanks, Diana

          2. Jamiegoff Post author

            Diana, for the first 8 months of making stock for Zoe, I used a slow cooker. The secret I found was to limit the amount of liquid, as the more liquid the more “dilute” the stock becomes and doesn’t turn to gel when cooled. I use a pressure cooker now with consistent results, but the slow cooker is certainly easier! Because I feed Zoe chicken, I just use a couple of chicken carcasses at a time when I make it and add some chicken feet, as they really make great stock! My latest ratio is 2 chicken carcasses and about 1 pound of chicken feet with about 6 quarts of broth (the liquid left over from cooking the chicken). If you are using water and raw bones, I would decrease the water to about 1 quart of water to 1 lb of bones. The way I usually did it was to just barely cover the bones with water 🙂

          3. Diana

            My vet would agree with you about the antibiotics, but Cady developed an infection in her anal glands that would not go away. Finally the glands just scarred over due to the disease and we were able to stop the antibiotics.

  26. Darlene

    Diana, I bought the Bag Balm and used it last night! Ill let you know how we make out. So much easier than soaking every night. Used to take me over an hour . Try the supplements too I’m convinced that they helped too. It’s not just getting rid of the crusty stuff but trying to correct the liver from making it! Good luck w the collagen stock. I put 2 Tablespoons of Apple Cider vinegar in the water . It helps break down the bones.

    Reply
    1. Diana

      Not sure how bad Sparky pads are, so I can’t say how long it will take. Cady’s pads were just awful, split, bleeding and hard as a rock, she didn’t want to do any walking. She went about two weeks with me putting on bag balm morning and night with wraps and booties all day before I could just go to overnight. The only down side to the bag balm is their pads get slippery so Cady did alot of sliding on the tile floor. Once the crustiness falls off you’ll just have to check every day and apply as needed. It worked wonders on her paws and she is so much happier.

      Reply
      1. Darlene

        Hi Diana, Sparky’s pads used to make me cry they were so bad. And I’m not a cryer! It looked like he had extra toes growing under his nails! 3 weeks ago o was soaking and working on them and the extra stuff fell off. His pads were real bad. Now it’s a little crusty on some of the sides and som crust between but now where as bad as they were. His pads used to be covered but now his pads almost look healthy and soft. What’s nice about the Bag Balm is it actually stays on!
        My email is dollyandharry@aol.com. Send me a pic of Cady, I’d love to see her. If you give me yours I’ll send Sparky. It truly is a Miracle how well Sparky’s doing! I made the first stroller for dogs about 18 yrs ago before they existed for our first Westie. She had cancer in her back paw and her leg had to be removed! She did fine but it was tiring for her to take walks so I made her a stroller! We took her everywhere and at an ASPCA doggie walk 2 ladies took a picture and stole my idea. Now they’re sold everywhere! Mine is unique. It’s open and cuter. A basket! Anyway, I walk him in that. He love it, getting out and about. Now he wants to get out and walk! This is good! But as you say the cement irritates his paws still since his skin is kind of new! We live in NJ. Where are you?
        I feel we all have a special bond! Thanks for the info with the Bag Balm.

        Reply
      2. Darlene

        I wanted to ask, do you all use flea and tick stuff that goes on the neck? At first my vet said not to use it because he had sores near to where you out it. But they’re gone so I out it on. She doesn’t want me to give him the cube they chew for heart worm. This makes me nervous because we do have a lot of mosquitoes. We have a lot of land and woods. Our Vet said she’s afraid f what it might do to his liver. Any thoughts?
        Thanks Darlene

        Reply
        1. Diana

          My vet said to give the heartguard and flea and tick stuff. Cady also has allergies and is hypothyroid so she gets an allergy shot and her thyroid pill. Now when it comes to vaccinations she gets only what is required by law. My vets reasoning is that heart worms and fleas would be bad for the disease, so she gets both. With the flea stuff I don’t do every month, I try to go 3 months depending on the season. For winter I practically forgo the flea stuff. I try not to tax her body any more that it already is.

          Reply
          1. Darlene

            Thanks, my vet said to hold off to see his blood work but then I forgot to ask and she forgot. I. Think he needs this also. Thanks

  27. Lindsay

    Hi all,
    I wanted to update you all on Maddie. Her paws are starting to get a bit better… the crust is falling of daily now! She did 4 weeks of Amino Acid IV, and was frightened each time. Although her paws seem to be looking better, she is not doing well. Maddie still struggles to walk, and she has sores under her tail around her bum. But they dont look like lesions… the skin is just red and there is some bleeding. She has very loose stools (I started to give her pumpkin for that) and she has not even been making outside to go to the bathroom.
    Her paws smell so awful, and her quality of life seems to be diminishing. We are definitely at a loss, but don’t want to give up on her. We are hanging in there though!

    Reply
    1. Diana

      Lindsay, don’t give up, it’s a long road to get them back. Cady was given six months to live and it’s been a year and a half. I immediately put her on eggs three times a day and gave her chicken breast. The protein and eggs worked wonders. Her paws also had that awful smell, for two weeks I washed them with an antibiotic rinse the vet gave me and treated with bag balm. I wrapped all four of her paws for two or three weeks. Once the splits and infection went away I went to nightly until all the crusties went away. I put the bag balm on her elbows nose and any where there was crustiness. It took awhile but she rebounded. Eggs are the best source of amino acids, I’ve heard of some folks giving as many as six eggs a day. I found that in the beginning eggs and chicken were my best friend and Cady’s. I didn’t do the amino acid treatments, it was offered but I didn’t want to subject her to it, so she pounded eggs and protein.
      Hang in there, it takes time.

      Reply
    2. Diana

      Hey Lindsay and Darlene, didn’t know if you guys knew that steroids progress the disease. I’m in California and it is illegal to put any steriods, antibiotics and the such in chicken, but I’m not sure if it’s a state or federal law so I do a lot of label reading. Darlene, I sometimes give Cady an antacid, because all the changes in her diet make her tummy upset. I don’t give the pepcid stuff only a generic famotidine 10 mg ask your vet. Could be why Sparky is being fussy, I know Cady surely can be. By the way the chicken stock came out great and she loves it. Not sure if anyone knows the history behind bag balm but it was used back in the day on cow udders. They got raw from the constant milking and the bag balm was used to soothe the udders and make milking not so painful. So feel free to use it where ever there is crustiness, it puts on a protective barrier. I also used the protective booties so she wouldn’t lick all the stuff off. It was hard to keep her from licking her nose once I put it on.
      Lindsay, as I said before it’s a long road. Pound the eggs and protein at least initially until she rebounds. I too used the blue stuff and it cured the infected paws. Just stay with it. The results aren’t immediate, but it will get better.

      Reply
      1. Jamiegoff Post author

        Amen on the steroids! They can be the tipping point of dogs getting diabetes after diagnosis with hepatocutaneous syndrome. Also, Zoe does really well with probiotics used to treat her diarrhea (there are lots of different kinds, but the older the dog is, the more their bowel needs the flora normalized with probiotics

        Reply
  28. Darlene

    Dear Lindsey, sorry to hear Maddie isn’t doing too well. Have you tried soaking her paws? Do you have anything to soak her paws and rear end with? Sparky’s was just like Maddie’s. His was so bad he wouldn’t let me touch it. It hurt him so bad he even tried to bite me! I had to get a muzzle. I took a paper towel and drenched it in the blue stuff that I soak his feet in. I would leave the soaked paper towels around his tail for a while. I would even let him sit in the sink with about 2 inches of blue sit puff and water. If I missed a day it would worsen. It took a couple of weeks maybe just short of a month till he felt better and now no muzzle. He falls asleep now in my arms on his back when I do this. The vet gave me Conzol lotion that I put on it. Try soaking his feet too. Even if you just use warm water it should make him feel better. But the blue stuff is soothing.
    I’m now trying Bag Balm on his feet. It was mentioned buy another lady on this site, Diana. Scroll back and find her blogs. Maybe that will help Maddie better. Don’t give up. It took a while for Sparky and under his tail is still not good. Not I’m able to comb some of the stuff out with a flea comb and he lets me do it until he gets tired if me poking around there. So I try and do a little at a time.
    How’s his appetite? Sparky’s not doing well in that department. He’s refusing to eat any kind of chicken, turkey and fish which he used to devour! But he’ll eat his veggies! I think he’s turning into a vegetarian! I’m stumped because he’s doing well. He’s even back to running and playing. But he has to eat more. I’m going to try some recipes and see if he’ll eat that. He still loves the collagen Thank God. Please keep us informed. If there’s anything else I can do don’t hesitate.
    If you need to talk to someone just to talk, give me a call 732-671-4857. Good luck. What ever happened to the mass that was found?

    Reply
    1. Jamiegoff Post author

      Hi Lindsey, I’m concerned about the smell. What kind of antibiotics or antifungals is she on? Zoe had to be treated for both bacterial and fungal infections 🙁

      Thanks for keeping us updated!!

      Reply
  29. Erin Wilson

    Arghhh Dagwood had to have his port out and in one week hus feet and mouth look terrible! I think we are goung to get another infusion done and we are commencing with eggs, chicken and stock! How do you get him to eat the stock? Also he is not drinking, tips? Anyone else have a bad relapse and puppy is better now?

    Reply
    1. Darlene

      Dear Erin, so sorry to hear about Dagwoods relapse. Has he ever had the stock before? He should love it. We did 4 Amino infusions before we found this site. Are you giving any supplements? Our Sparky so far has done great with all the info we got from Jamie. It’s a long haul but you and Dagwood can do it. If I can help let me know. I’ll be praying for you and your puppy. Good luck. Darlene

      Reply
    2. Diana Compo

      Erin, my Cady has set backs, they aren’t extreme but she does have indications the disease is beginning to assert it’s self. I usually change something in her diet. For Cady, she never had the infusion, it was something the vet wanted to do, but I just wanted to try the protein amino acid diet first. For the first six months she had nothing but chicken and eggs three times a day. It worked wonders. Her diet is now more balanced, but she does fall back some. I just increase her amino’s and protein. Now that she eats chicken stock, I will increase that, she gets only two table spoons a day. Try warming the chicken stock a little, Cady likes her’s a little slushie (she’s a big ice eater). You may have to try several things before you find the right balance. As for the water, change the bowl, if you’re using plastic get metal and vice versa. Cady didn’t want to drink so I got a smaller bowl. She even laid down to eat. I did notice her outer mouth skin was swollen and food got trapped between the gums and mouth skin. Hang in there it takes some time. Diana

      Reply
  30. Erin Wilson

    Thank you all Jamie I will call you tommorow. Better day todaybsix thighs a can of dog food and two cups of stock… I am giving the collagen Jamie suggested and the strip things.. Any other suggestions? ? Thank youbso much I was thinking this was the end, I got confident in him feeling good and now I have tobstart over.

    Reply
    1. Darlene

      Hi Erin, I’m so glad your feeling the hope! I got from the healthfood Vit Store extra Ameno capsules. It’s a complete Ameno capsule. I pull it apart and add it to the stock. Then I add the Whey protein powder and add that to the stock and whisk it all together till mostly dissolved. I tried adding some of his other capsule pills but I guess it changed the flavor or texture and he wouldn’t drink it. Our Sparky is an 18-20 lb Westie and I give him about a cup of stock throughout the day. Am, lunchtime, around 3 ish and before bedtime he finishes what’s left. He loves the stock and runs into the kitchen when he sees the container. Again, Good Luck, I can give you the list of pills, supplements we give him each day if you want. He also doesn’t get any dog food or dog food products. Our Vet who is a specialist said she doesn’t want him to have any kind of by products or additives or preservatives. Liver works too hard to filter it. Hopes some of this helps you to decide what’s good for you and Dagwood. xoxo

      Reply
  31. Kerry

    My Sweet 10.5 year old Bedlington terrier is going in for his biopsies today (liver and skin) to confirm his diagnosis of hepatecutaneous syndrome but multiple specialists seem very convinced that it is what he has and from reading this blog it sure sounds like they are right. Praying that if he has it we can keep it under control because he has lots of life left in him. My heart is breaking for my poor sweet baby. Thanks for having this blog because it is the only hopeful news that I have found on this disease

    Reply
    1. Jamiegoff Post author

      Kerry, I’m so sorry to hear that!! We chose not to do the biopsies, as the liver ultrasound had the tale-tale honeycomb appearance. I do know that others have had those done and found it wasn’t hepatocutaneous syndrome, but their dogs did respond to the chicken stock and diet change, along with amino acid supplements (by mouth, not the infusions)
      I’m happy to talk with you! 205-296-2323. Jamie

      Reply
    2. Diana

      Kerry, there is hope, just as the blog states. I went it alone for over a year until I found this blog. I was under the impression this disease was so rare that I would be going it alone. To diagnose my Cady, all my vet did was take a biopsy from her foot pad, it didn’t take long for the results and now we live from day to day. Although we recently had a yearly check up with her and was told Cady just might out live the disease. Her and I have gone through a lot this past 19 months since her diagnoses. Keep the faith and know that I’m here to help if you need anything. Diana

      Reply
    3. Darlene

      Kerry. So glad you found this blog site. Our 8 yr old Sparky, a Westie is also doing great. It takes some time but it does work! We did the infusions, biopsies, ultrasounds, nothing helped except for the diet and collagen stock. Unfortunately this will be a lifetime nonstop answer but it works! Sparky and the others are living proof. It took Sparky about 3 months to come back to his normal self and he still has the black stuff on his feet but it’s flaking off every day. He didn’t play or do much for about 9 months, it was like watching him slowly die. Now he runs, barks, plays and his normal self. Good luck and he are all here for you and In this together. You are not alone. <3

      Reply
      1. Kerry

        Rough day today for Elvis. They biopsied spots on his mouth, butt and paws and now he is miserable and in pain and crying on and off. We have 2 other dogs and they are nervous about him and keep barking and waking him up. If I sit right by him he settles back down so he and I are spending the rest of the evening on the couch. Did anyone else’s vet do that many skin biopsies in addition to the liver biopsy? Also they say we should start giving him raw eggs (2 a day until we find out for sure that he has hepacutaneous) and more if it turns out he has it. They say the eggs need to be raw, do you give your dogs raw eggs?

        Reply
        1. Diana

          No, Cady had one biopsy done and that was a small portion of her foot pad. As For raw eggs, no I give Cady hard boiled or scrambled. I didn’t feel comfortable giving raw eggs. She gets one egg in each meal and I feed her three times a day. I have not had to increase that since she was diagnosed and I have heard some dogs take as many as six eggs. It’s the best source of amino acids. I feel for your Elvis, hopefully he has some pain meds to help him relax and sleep. Diana

          Reply
          1. Darlene

            Also, if Elvis gets constipated or has diarrhea which he might with the diet change give him about 2 tablespoons or canned pumpkin! Don’t know why it works for both symptoms but it does. I give Sparky this about 2 or 3 times a week cause he loves it and maybe it just helps prevent problems. It’s good for them too. I put it into small containers or sandwich bags and freeze it so it doesn’t go bad once you open the can!

        2. Tira

          We give Kuro scrambled eggs twice daily plus whey protein powder and collagen supplement….he had lost majority of his hair and now all his hair is growing back…

          Reply
        3. Jamiegoff Post author

          Sorry, pressed reply too soon. Raw egg whites can block the absorption of biotin which is needed for skin health. I give Zoe 2 egg yolks in the am and 2 in the evening. I cook the whites in chicken stock and then pour it over the raw yolks. She loves it! (She weighs 57 lbs)

          Reply
          1. Kerry

            Diana, Elvis was in pretty rough shape when we took him for the biopsies (not playing or running just sleeping all the time, but at least he was resting comfortably. Now, he is more irritated by his skin problems because he has six different spots with stitches. Vet says they need that many samples for definitive diagnosis, but no one explained to me that he would have stitches all over and 2 paws bandaged up to his knees. Thankfully he seems a bit more comfortable today. I will definitely email you to get Sparky’s eating and med routine (by the way one of our dogs is named Sparky as well) Thanks again for the information and for your support.

          2. Kerry

            Jamiegoff, thank you for the information about the eggs. Is it preferable to have him eat the yolks raw? Elvis is so picky, right now I cannot seem to get him to eat them (have tried raw and scrambled so far). I have been feeding him boiled hamburger and was wondering if I could mix he egg in with his hamburger before I cook it. Thanks again for the information and the support.

          3. Diana

            Kerry, you can make elvis’s meal which ever way he’ll eat it. I use to give Cady beef but stopped because I feel it makes the liver work to hard to process. She loves steak and hamburger, but she gets chicken and very lean turkey. Not sure I understand why all the biopsies when my specialist only took one, poor guy. You can read my posts about the bag balm, I swear it worked miracles on every single crustie she had. My vet who never treated the disease has a great philosophy give her what she wantsand for the most part I do. Although I’m always on the look out for items that could contain steroids. So, give elvis what he wants and how he wants it, it helps in the recovery. As a side note, most vets have not treated this disease they are as much in the dark as you. My vets had to read up on it, I am lucky that her specialist has treated a couple of cases so she has a working knowledge of the disease. Feel free to email me for any and all questions. Diana

          4. Darlene

            Try fish! Sparky loves it. We’re not fish eaters so I didn’t know what to do with it. I spray pan w Pam and spray top of fish w Pam. And I cook till it flakes apart. If any
            One out there know of a better way to cook it. Feel free. Darlene

        4. Darlene

          If you would like to email me I would love to give you Sparky’s regiment and what we did and gave him to improve him. His paws were so bad it looked like he had extra toes growing. I soaked his feet every night for 5min in Chlorhexidine Gluconate. It’s an Antiseptic/Disinfectant. Our vet had it but it was expensive so I got it on line. I’m sure stores sell it. Then I put on Bag Balm ointment that another person on this site recommended, it worked better than the other stuff I tried. Then I lightly wrapped with gauze and put on a doggie sock so he wouldn’t lick it off. Please email me and I can tell you what supplements we give Sparky and what he eats. He eats better than my husband and me! It’s basically what Jamie told us but sometimes it make you feel better to hear others and what worked for them. Like I said we’re all here for each other so please don’t hesitate to contact any or all of us. dollyandharry@aol.com. <3. Darlene

          Reply
      2. Kerry

        Wanted to thank you guys for your messages, it means so much to me to know that Elvis and I are not alone!

        Reply
  32. Diana Compo

    No problem, I am here any time you need a chat or have a question. You didn’t mention what state Elvis was in, when I took Cady in she was in bad shape. She could barely walk her pads were so bad, but with some work she rebounded nicely. It’s a tough road, but very doable. I took Cady off processed food right away. She now enjoys chicken, Turkey and fish fresh from the meat market. Thanks to this site I’ve added some cottage cheese and of course the collagen plus some sweet potato’s and white potatoes. She got tired of scrambled eggs so she gets hard boiled. I went from large eggs, to extra large and now give her jumbo. Many vets rarely see this disease, I took Cady to a specialist who handled a few of the cases. Of course she recommended the transfusion but there was too many bad factors and no guarantee it would work. I just gave her a lot of protein, eggs and love and it paid off. It took about four to five months but the crusties went away and her energy increased. She turned the corner and her specialist was and still is amazed by her recovery. Hang tough Diana

    Reply
  33. Kerry

    Elvis is doing pretty well this week, he even picked up his tennis ball yesterday which brought me to tears! However, he is getting pickier every day with his eating and what he will eat changes every day. Last week I tried raw egg yolks, scrambled egss and boiled eggs and he would not touch them (in fact would not touch any food that had touched them) but was willing to eat fried eggs on Saturday. However, starting Sunday he will not eat them fried either. Anyone have any other suggestions? Also, he is on 7 pills twice a day including supplements and won’t do pill pockets. I tried them in peanut butter, cheese, cheese wrapped in bacon and he still picks out the pill! I then just put them down the back of his throat, but he is getting increasingly angry about that. Any other ideas?

    Reply
    1. Darlene

      Try hand feeding. Sounds stupid by my Sparky will only eat if he’s hand fed.have you tried any fish? Have you tried any veggies? Sparky loves raw broccoli and raw sweet potatoes. You can try cooking them too. Sparky will eat them any way I give them to him. I even give him frozen when we eat them. Carrots too is good. Let me know f any of this work. He will get hungry and eat eventually but it does get frustrating. In place of milk bone biscuits my vet said kids animal crackers. She suggested Costco because they’re organic but you might find organic in stores. We don’t give Sparky anything processed or with additives. Watermelon or any melons are OK too. I’m not home ther wise I’d give you the list the Vet gave us. Il try and remember when we get home and I’ll list the list. Good luck. Darlene

      Reply
      1. Diana

        There are several things to try. Scramble the eggs with cheese if Elvis likes cheese. You can also use Italian seasoning to try and spice things up, it’s just herbs so it will give the food a different smell. One other thing to check is whether he has an upset stomach due to the food changes, Cady gets an upset stomach so i give her an occasional antacid. Check with you vet on the dosage, but if Elvis has a lot of gas he won’t want to eat. As for the pills, try not giving them to him for a day, it could be changing the taste/smell of the food or upsetting his stomach. Also, the pill pockets come in several flavors, find the one that he likes. Sometimes I use the cat ones with chicken flavor and that seems to work. Try adding some bouillon to the meal. When all else fails, go back to something simple. Just give chicken with eggs and don’ mix it up, keep them separated then start to add things one at a time to his meals to see just what it is he doesn’t like. I’ve had to go through many times when Cady stopped eating or didn’t want to eat. I just went to something simple or changed things so she would eat. Since I’ve been giving the antacids I have found that those non-eating days are far and few between. Goodness she went almost a six months just eating chicken and eggs. I have found that when I was scrambling Cady’s eggs and using pam it upset her stomach, she stopped eating them. Try to use very little oil or no oil, it could be upsetting his stomach. With 7 pills twice a day, that’s a lot of pill pockets, those could be upsetting his stomach. I sometimes use cut up chicken breast to hide the pills in that I give Cady. Well, those are just some ideas or things I’ve tried. Good luck and let me know how it goes, Diana

        Reply
      2. Darlene

        I just remembered! Frozen yogurt is good for them! Try putting his pills in some frozen yogurt! This works for us every time! Turkey Hill makes plain vanilla frozen yogurt. Sparky’s been getting it almost every night! Not much maybe a few teaspoons. Try that!

        Reply
    2. Kristin Brown

      I just pill Lily. I have to be sure she gets them all. She fought it at first. now all I do is say get on your bed and she goes to her bed. I stopped getting upset about it. This is what we have to do period. She has epilepsy so missing any of her pills is not an option.

      Reply
      1. Darlene

        Hi, Sparky been eating and even wanting more. He still has the scabs but I’m trying to control it with soakings n a flea comb. He’s only having problems with taking his pills and the collagen. Right now he’s eating it like there’s no tomorrow. Yesterday I had to force him and he didn’t get what he should have! He’s been getting picky!

        Reply
  34. Darlene

    I pull the pill pockets in half. Just enough to cover n hide the pills. And yes try different favors of pill pockets. But do cut them in half, it’s a lot of pill pockets. You can give him pepsid. Sparky’s 20 l s and if I give him it it’s 1/2 pill!

    Reply
  35. Kassi

    Hi. A lady that my mom works with has a 13 year old Sheltie recently diagnosed with hepatocutaneous syndrome. The vet gave the dog 5 months but it’s been almost 8 months and the dog seems to be responding to what the owner is doing. She is giving Milk Thistle drops mixed in her food every day, boiled chicken in food, and giving vitamins. She said that two different vets had trouble properly diagnosing it. The dog’s only symptoms were back in December — black crusty stuff in the pads of her feet, and she was losing her fur, but it’s now growing back. I am picking up my meat chickens from the butcher today, and I requested that they save their feet for me. I’d like to make the dog some chicken stock, but I don’t know how to properly store it. I will have about 42 chicken feet, so I don’t think she will use it all before it goes bad if I just store it in the refrigerator. Can I use a pressure cooker or water bath to can it? I’ve read that the high temperature may denature the proteins. Should I freeze it in one cup increments? Any suggestions that you have would be much appreciated! Thanks so much.

    Reply
    1. Jamiegoff Post author

      I cook it in the pressure cooker (but used to use the slow cooker). You can freeze it (I use what I have made within a week of making it, just storing in the fridge). Feel free to call me, I can walk you thru how I make it and I’m certain others here have lots of chicken stock experience to share as well! How sweet of you to help her!!

      Reply
    1. Jamiegoff Post author

      I use freezer bags ( after it has cooled!). It does not stay gelatinous once it’s thawed, though.

      Reply
  36. Tira

    hi, all… i am happy to report that Kuro is doing very well now on the supplements and collagen. the only problem i am facing now is that he has gained ALOT of weight! he was always a ‘big boned’ chihuahua but he is now over 20 lbs.! Any suggestions on what i can do to help him lose a little weight? i am nervous about changing his diet too much because he has improved soooo much!! his hair is growing back very well and his pads are practically crust free…also, he has a odor about him (from the diet i assume) that is from his rear end…we wash his rear end almost everyday but he still has an odor…

    Reply
    1. Jamiegoff Post author

      Is he diabetic? You could try to keep the ratios the same, just decrease the amount of food?

      Reply
  37. Erin Wilson

    Hi All! Dagwood is doing better, we go Wednesday to see if his infection is gone so the port can go back in! Its been about a month since he had an infusion and the crustys are coming back on his face! Arghhh we stopped the thighs and supplements, we are so naive always think he is doing okay and doesnt need it!

    Time to reorder, what is everyone giving! I have the Snip Tips Jamie had, but wasnt sure what do do for more aminos or collagen? Jamie, are you still using the Procell?

    Reply
    1. Jamiegoff Post author

      Yes, we still use procell (the capsules, not the powder). I think others here use a different amino supplement. Zoe is so sensitive to the stock that IF we miss one dose, she has a flare up 7-10 days later!! (She gets it 5 times a day)

      Reply
    2. Darlene McCabe

      Hi Erin, we did 4 infusions in the winter and have stopped them since. Our vet who’s a specialist, told us that any more than 4 infusions can make the veins collapse so she won’t do more than 4. I suppose with a lot of time in between it can be restarted but Sparky’s doing well with Jammie’s suggestions. Everything on Sparky has cleared up except for his feet but they’re doing much better. He’s back to acting like a normal Westie, feisty, wanting to play and interested in life again! A week and a half ago he went back for his check up and blood work. Our Vet was amazed how well he’s doing and his blood work came back almost normal! We are away on a business trip, with Sparky so I don’t have his results with me. Only 2 things were elevated but on the low end of high. He gets only people food and no more dog products, not even milk bone biscuits. Instead he gets Costco Organic Animal crackers for treats. The vet suggested it. He gets nothing with preservatives or added products. He doesn’t get beef either. The vet said it’s harder for the liver to digest. He gets his collagen about 4-5 times a day. In the collagen I whisk in extra protein powder, about 2-3 Tablespoons and I pull apart an Ameno capsule and add it to the collagen. He’s been very picky for the last 2 weeks. It’s like he thinks he’s better and doesn’t need the stuff. He won’t drink the collagen like he used to. It’s like I have to prime the pump! I have to put the collagen on his nose with my finger than he’ll take it but only with a spoon! Then he’ll slurp it up. Go figure. I never had problems with his pills but now he won’t take them. Te smaller pills I have to push down his throat. He used to take all his pills with Doggie Pill Pockets but he refuses to take that now too. The smaller ones are Vit E, Milk Thistle, and a prescrip from the vet – Proviable DC. I give him an extra collagen capsule, ALA – Alpia Lyptic Acid, some thing like that, not sure now what the letters stand for, but Vit stores will know what ALA stands for. Sam-E and I used to give him Biotin but I stopped it because his nail kept growing too long! This is for hair, skin and nails. Like I said he refuses to take his pills now. I had no problem for almost a year and now it gets very frustrating for me cause it’s keeping him alive! I take the capsule and pull them apart and put the powder into canned pumpkin, ice cream, yogurt. He’s smart, if he knows it’s in there he refuses to eat it!
      He eats, fish, chicken and turkey, yogurt, eggs, he loves raw sweet potatoes and broccoli. Almost any veg except peas which the vet said not to give him. The vet also gave up a can food for dogs with liver issues. I give it to him occasionally.
      I still soak his feet but not everyday like I used to. Then I put on Bag Balm ointment to soften the black crust that he still has on his feet. Then I put some gauze over his feet and his socks. I don’t let him walk on cement. He’s little, 20 lbs so I made him a stroller which he rides in. He is.a head turner! He looks just like the Westie on the Caesar dog food commercial!
      Well this is what I’ve been doing for our Sparky, good Luck and hope it helps. It’s a lot of work. If you do this you probably won’t need the port. That has to be so uncomfortable for Dagwood.and I’d worry about infections.

      Reply
  38. Darlene

    Hi everyone, now it seems that I need your help with Sparky! He has been refusing to take the collagen and his supplements! I’m at my wits end!! We have tried everything. I don’t know what to do! I tried giving it on a spoon which usually works. He used to glop it down and I used to have to stop him from taking too much and now he tries to run away. I tried poring it down and fighting him. I tried a syringe but he spits it out. He’s very stubborn and just won’t drink it anymore. I’ve switched to another frozen one and still the same reaction! His pills are another problem. I tried pushing them down his throat with the smaller pills and he won’t swallow them. I’ll find them stuck to the side of his mouth in his fur! He refuses the pill pockets which he took for over nine months. I tried opening the capsule and mixing them with everything I can think of and then he just refuses to eat that food! Even if I give him the food without the pills in them, he thinks it’s in there and won’t eat it? He LOVES ice cream and frozen yogurt now he won’t eat that! He LOVEs his pumpkin and at times I can get some down with that. I’m so upset because I know he will die and get worse again if he doesn’t take all this stuff. I really don’t know what to do. At time I can’t even pry open his mouth. I tried cranberry sauce, eggs, cheese spread, I tried hiding them in everything I could think of. Now he thinks I’m putting it in everything and refuses to eat all soft type foods! Any suggestions? I just can’t let him die. He’s still active but he is sleeping a bit more. He is still eating as long as I hand feed him. Still loves his broccoli and sweet potatoes. But refuses to take the collagen and his supplements! HELP! Darlene

    Reply
    1. Jamiegoff Post author

      Are you giving the sweet potatoes raw? If so, it sounds like he likes crunchy. Is he drinking more or urinating more?

      Reply
      1. Darlene

        No about the same. I just gave him the collagen frozen n he seemed to like licking it but I don’t know how much he’s getting! I made him mashed potatoes and opened 2 capsules into it. He always loved mashed potatoes, he fought us but took most of it! So confusing

        Reply
        1. Jamiegoff Post author

          Ok,just worried about diabetes! Appetite waxes and wanes with HS, but one of the tricks is they sometimes like crunchy things…I used to toast Ezekiel bread and then put the collagen on top (like toast with jelly and hand feed Zoe that)

          Reply
          1. Darlene

            He hates that bread. I tried it? He had blood work 2 weeks ago n his sugars good, Thank God. It was a little high a few months ago n Dr was worried about diabetes. We were giving him a lot of watermelon. 2 weeks ago I was watching Rachel Ray and she had a Dr on and he said if you want to loose weight don’t eat any kind of melons, even watermelon. It will raise your sugar level! My daughter reminded me that when she was pregnant her sugar level spiked and her Dr said stop eating melons! I think that’s why Sparky’s sugar was spiking! So he doesn’t get it too often!

    2. Diana

      Darlene, first take a deep breath. Cady is going on two years after her diagnosis and for her first year all she got was eggs and chicken. I knew nothing of collagen and she didn’t get any supplements. If I was in your shoes, I’d stop the supplements and collagen. The eggs are enough for now. Sparkly needs to trust you, sometimes we have to trust our animals instinct on what they want and need. I had to stop the sweet potatoes because the were giving cady an upset stomach. I was giving her some pill pockets and found that she can’t take those because they make her sick. Go simple for awhile, it will be OK. I put some watermelon in cadys food every now and then, it’s cool and crunchy. Her collagen I leave a tad frozen because she likes crushed ice as a treat. But, when cady goes through those bouts I go back to the basics and simple for awhile, then slowly introduce things. As long as sparky is eating eggs he will be getting the things he needs. Diana

      Reply
  39. Darlene

    He won’t eat eggs all the time. Last week he had one egg a day n ate it. Now he stopped! He’s a stubborn Westie terrier!

    Reply
    1. Jamiegoff Post author

      There is an appetite stimulant that you can try, can’t remember the name, but your vet can prescribe it, if he needs it (it just took 2 doses to get her over the hump when she completely stopped eating almost 2 years ago

      Reply
  40. Darlene

    He is eating. No problem there. It’s just the collagen n supplements. He just won’t eat extra food that we put his pills in!

    Reply
      1. Darlene

        Thanks for asking Jammie. He’s still fighting me w supplement. Sometime I can shove small down. It’s hit n miss. He is so stubborn! The others are real hard to give him. Still trying to hide n find food to put them in. I did get him to take the collagen! Frozen! I use my chicken sizzors to cut off chunks. So he’s finally getting that again! Problem is I didn’t freeze it with the Ameno pills and protein powder that I put in there and mix in. So he’s not getting that! This morning I defrosted some collagen, mixed in the stuff n he took it!
        The back of his tail has gotten bad again and the crusty black stuff returned. His feet too and around his muzzle has the black flakes. He’s eating but sleeping more.
        So it’s really his first set back. I just hate fighting him every day!
        So now I guess I’ll be back to soaking his feet everyday and the bandages and bag balm! Takes me 1 1/2 hrs to do this. I try and get out the loose black stuff and I also am able to cut some away that’s big and loose! He’s pretty good about it but I do have to muzzle him. He gets tiered and I try not to hurt him but not always successful.
        Do you soak feet everyday or just do the salve and bandages?
        I’m always up for any suggestions!
        Thanks, Darlene

        Reply
        1. Jamiegoff Post author

          Thanks for the quick response! Glad you are getting the stock in him. It usually takes Zoe about 7-10 days to respond with lesion improvement after diet changes

          I don’t do any topical treatments currently. I did go out of town last week and my husband couldn’t get Zoe to drink the “juice” at the bottom of the plate (which is the warmed chicken stock). So, her face lesions have returned. (She would take it in the eggs, but not lick it from the bottom of the plate). She requires the 4-5 times a day and each time she doesn’t get it, her lesions return. I can usually get her to eat it in the solid format. (I don’t freeze mine, I just make enough for about 5 days and keep it in the fridge)
          She is definitely becoming more difficult to get to the nutrition into!! She was 14 years old in January and her back legs are becoming increasingly weaker, so I know her time is coming (and I would NEVER want her to suffer! I figure as long as she wants to stay around and has a good quality of life, I’ll keep supporting her hepatocutaneous symptoms!

          Reply
          1. Darlene

            Thank you for your quick respponse. So. I guess it’s kind of normal for how he’s responding without the collagen. I have the same problem here. He will only eat for me and not Harry. I even have to hand feed him his food! He will ear the broccoli and sweet potatoes by himself. Just spoiled I guess! We were away for the last 2 weeks in Frederiskburg, Va. Harry’s doing work with the Marines and had to go to Fort AP Hill there. We stayed at the Hilton which doesn’t accept dogs but we stayed there before and I called the Manager and he allowed Sparky to stay there with us. The staff loves Sparky when we come! They even allow him in the dining. Room! He stays on his cot that I bring and he’s just so well behaved and good. They even make him an egg when I take him for breakfast and he ate some yogurt there, which by the way he stopped eating here a few months ago! Go figure! I wish he wasn’t sleeping as much as he is now. He was doing so well! I’m hoping to get him back on track now that we’re home for a couple of weeks. Then end of Aug we go to DC for 3 days, with Sparky! Problem is at the hotels there’s nothing for him to do but sleep in the hotel rooms. I made a carriage for out last Westie who had cancer in her paw so we had to remove her back leg. She got around fine but couldn’t go on long walks. I made her a carriage from a baby umbrella stroller. I put a woven basket in it and I now use it for Sparky. I take him to most stores and he’s the main attraction which he loves! I invented the first doggie stroller! There were none at the time. However we took our first Wetie all over too and 2 ladies were so amazed by what I did they took pictures and about 6 months late the doggie stroller started showing up! Oh well! Sparky loves his stroller because the cement hurts his feet!
            Well we keep on trying to keep our pups comfortable and do what we can for them.
            I’ll keep you informed on how he’s doing !
            Thanks for everything. I know without you he wouldn’t be here today! A big a THANK YOU.
            God Bless
            Darlene

  41. Kristin Brown

    Darlene – I have issues with Lilybelle not eating. I give her Promod by Abbott Labs. She gets it via oral syringe. She has been symptomatic for 3 years. Only diagnosed for a little over a year. She has been lesion free since January. She takes the Promod like a champ. Don’t remove anything you are giving but when he won’t eat you can add the promod. Hope this helps.

    Reply
  42. Diana

    Thought I’d give an update on how Cady is doing. She was diagnosed almost 2 years ago with this ugly disease. Until just recently she was still quite the terror. When I noticed she was sleeping more and just not interested in her favorite things I made a slight change to her diet. I also noticed a few crusty’s on her front paws. So, I added an egg (over easy) to her evening meal and did some bag balm for a couple of days. It is like she was given a shot of go juice, she is back to her old self and wants to play all the time. For a couple of months I was giving her some veggies and sweet potato’s. She just seemed to have an upset stomach all the time and I was having to give her antacids. Vet recommended going back to the basics and she hasn’t had any more problems. Her basics are just chicken/turkey mix, collegen and a hard boiled egg. Pumpkin once a day. Occasionally I give her some watermelon. She doesn’t get any supplements or vitamins they just don’t sit well with her. It’s not the greatest scenario, but it’s working. We will see how long the 4 eggs a day keep her energy up. 3 eggs a day worked well for a year and a half, which I am most grateful. I think of all the dogs that have been posted here and continually pray for their success in treatment.

    Reply
  43. Darlene McCabe

    Hi Diana, so glad Caddy is doing well again. It seems they go up and down. Sparky never really go rid of his crusty feet. I even soak and put the bag balm. It does help and his feet look so much better. It’s around his tail that I’m having trouble with getting rid of. He is doing well and has his ups and downs but mostly ups. He’s getting picky with the collagen though. Yesterday he had very little and today I had to stop him from drinking it. Go figure.
    Keep up the good work and thanks for the update.

    Reply
  44. Darlene

    Hoping everyone is well and their puppies as well. I wish Sparky was doing better. He’s still not wanting the collagen which he used to love. He also used to love Broccoli. He couldn’t get enough. Now he barely touches it. However he will now eat it cooked. But it’s the collagen I’m worried about. He loves carrots so I added when making the collagen. I’ve been cutting the carrots up tiny, they’re baby carrots and put it in the collagen. So he will get some of the collagen but not enough because most of its on his fur and all over the floor.
    Around his tail is pretty bad and he’s now getting the crust on his back. I fight with him to take his pills. I even bought 2 types of pill guns which I didn’t know existed. Our vet gave us one but so far it hasn’t been successful. I’m waiting for the other I ordered on line.
    He’s acting fine, interested in what we’re doing and looking outside and loves going out. But I’m so worried about the crust starting on his back. He’s been getting his weekly Med baths..
    My husband wanted to go to Calif to see our Grand daughters who we havnt seen in over 2 yrs but I can’t leave Sparky. No one would go through what I’ve been going through taking care of him. I do have a really good resort type place we usually take him too and his groomers there also. She’s been so great with helping me with him but they had trouble with kennel Cough and she doesn’t want his to get it. She’s cancelled 2 haircut apptts already. She doesn’t want to take any chances with him.
    I even tried pouring it down with a spoon! What a mess. He’s very stubborn! Say a pray that he starts drinking it again! Thanks for the ear!

    Reply
    1. Diana

      Darlene, do you give sparky eggs? It is the best you can do when it comes to protein. I think three eggs a day would really help. Cady has developed some small crustys in her ears and anal area. I’ve increased her eggs and am using bag balm in those areas. How doyou makeyour collagen maybe you just need to change it up. Let me know how things go. Diana

      Reply
      1. Darlene

        Thanks for your reply. Sparky’s only 20 lbs. would 3 eggs be too much? I do give him eggs but not every day do I’ll try that. I put extra protein powder in the collagen and extra Ameno in it also. I was thinking of making the next batch without it. Maybe it changes the taste. I’ve been making it with the added stuff from the beginning and he used to gobble it down. He is so stubborn and spoiled too. He’s a Westie and terriers are terriers! Thanks again for your fast reply it’s nice to know your not alone! <3

        Reply
    2. Kristin Brown

      Darlene – Please try the Promod. It is collagen protein hydrolysate. This is where I found it referenced http://veterinarycalendar.dvm360.com/management-common-dermatological-problems-older-dogs-proceedings?rel=canonical. You can get it on Amazon or directly from abbott labs. I have a compounding pharmacy order it for me here locally. Lily is very picky, she may love something for 2 days and on day 3 she won’t eat it. But she will eat something else. That’s why I started her on it. She will eat chicken bone broth then refuse to eat anything but turkey. Call me if you have any questions. 251 447 5212.

      Reply
  45. Darlene

    Ya, Sparky started with a crusty ear. The dr took sample and she didn’t think it was HS. So I’m treating that. Sparky’s only 20 lbs. would 3 eggs be too much? He gets an egg for breakfast and I out extra protein powder in his collagen. Doesn’t do much good if he’s not drinking it. I was even thinking if making the next batch without the protein or the extra Ameno I add to it. Maybe it changes the taste. Although I have been adding it from the beginning and he loved it! He’s just so stubborn and spoiled! I will try the extra eggs. Thanks for your fast reply. It’s always nice to know you’re not alone!

    Reply
    1. Diana

      Darlene, I would go to three eggs just to get things turned around. Just increasing cadys by one did a lot for her energy and the crusty ear. Once you see a change and the crustys go away drop to two, but from the sounds of it three is going to be just right. I did scramble and she got tired of it so she is going through hard boiled, which is easy for me, and at diner I add an over easy, which she scarfs. Diana

      Reply
  46. Kristin Brown

    Eggs are great. When I first started all this with her she got 3 yolks per day. She stopped eating them, surprise, so I just separated it from the white and dumped it down her throat. Now she gets 1 per day. She gets the promod everyday also. She is around 25 lbs.

    Reply
    1. Darlene

      Thank you all so much! I will defiantly do more eggs! Thank you all so much! Sparky ate tonight like there was no tomorrow. I mixed chicken, broccoli, carrots, and a hard boiled egg and he kept going back to it and wanted more! Now to see if he’ll have his collagen! Cross your fingers! Thanks again! Sending much love!

      Reply
  47. Darlene

    Hi Kristen, I was able to get some collagen in Sparky last night and a little this morning. I made him 2 eggs this morning and it looks like he ate 1 and a half. I was trying to find the Promod on line . Is it fruit punch? Do you pay $140 for it? Amazon had it got a lot cheaper. Could it be the same ting? I’ll check out the Vit stores here in NJ. I’d like to give it a try.

    Reply
    1. Kristin Brown

      Darlene – yes the fruit punch. I give it to her via oral syringe. I pay $150 per case of 6 at a compounding pharmacy here locally. In the beginning, I just ordered one bottle from Abbott Labs for $40. You can get it a little cheaper on amazon. Here’s one http://www.amazon.com/Ross-Promod-Liquid-Protein-Ounces/dp/B002C60R6M/ref=sr_1_3?ie=UTF8&qid=1410918080&sr=8-3&keywords=promod+liquid+protein. I didn’t check to see if this one was the cheapest.

      Reply
      1. Darlene

        OK, the latest with Soarky is he now has the crust on the bottom of his right eye! It was pussy and in the corners it’s all red! I called the vet and she said to do warm compresses to soak it. He likes that. I guess it’s soothing. I’m going to bring him in tomorrow. He’s kind of taking the collagen but I’m not happy with the amount each time. I’m so worried his eye will get worse. He’s eating well and acting normal but his eye looks so gross! Any suggestions! Thanks, Darlene. I just ordered collagen wafers for dogs it’s by Neucell Anthropet. I hope he like it. I got the ProMod that Kristen suggested but don’t know how much to give him and if it has to be diluted with water. Thanks again.

        Reply
        1. Diana

          Cady had crustys in the corners of her eyes. I thought of that as the danger zone so no bag balm there. I just let the eggs do their job and they went away. She had crustys on her feet, nose and eyes. It took about two months of pounding three eggs a day and chicken to get them to go away. I used a lotion in her danger areas just to take the itch away so she didn’t scratch and create an infection. Diana

          Reply
          1. Darlene

            Thanks for the quick replies! I really appreciate everything and anything I can do. I’m making the collagen tonight. I still have some frozen but don’t want to run out. This time I put some celery in it and dome baby carrots. He’s not getting enough. He just won’t take enough! He’s so stubborn! I have to give him more eggs! I keep forgetting about them! Bad me! What kind of lotion did you use? I’m still using the Bag Balm and that gets a lot off. Im hoping I don’t have trouble with him cause we are traveling a lot the next 2 months! The Sunday before Halloween we’re going to fort AP shill in Va for a month! The car will be packed for him! I’m even bringing a n elect hot plate so I can cook for him! The slow cooker and a George a foreman grill! He was so good when he took the collagen and the extra pill collagen. That’s why I ordered the wafers. I’m hoping to get extra collagen in him. At least he’s eating well and acting normal. I’m grateful for that! I’ll keep you all informed on his hopefully progress! Thanks again, Darlene

          2. Darlene

            No worry. I know not to use that on his eyes! I’m just doing warm compresses on his eye untill we see vet tomorrow.

        2. Jamiegoff Post author

          Darlene, I’m so sorry you are having such a hard time with Sparky! Zoe required ophthalmic antibiotics when she was first diagnosed—she still gets “crusties” on the outside aspect of her eyes when she doesn’t get stock in the middle of the day (usually takes about 10 days until she has another outbreak of lesions)
          We have found we her that she needs about 1/3 cup each time, but also weighs about 50 lbs. (spaced about every 5 hours until we go to sleep and then she goes about 8-9 hours between stock)
          Hope his eye clears!

          Reply
        3. Kristin Brown

          Darlene – Don’t dilute. Start with 5 ccs 5 times per day between 8 am and 10. Maybe 8, 11, 3, 6 and 10. Or 6 cc 4 times a day. Do that for 7 to 10 days. Keep doing everything else (eggs, bone broth, supplements, diet etc). If you don’t see them resolving increase 10 ccs per day for another 7 to 10 days. That’s how I started with Lily until I found her dose. She gets it everytime I give her her epilepsy meds which is 7 times per day. I know… What can I say… She is my shadow. I will email you pics of how bad she was. call me if you have questions.

          Reply
          1. Darlene

            Thanks Kristen, I’ll start him on it tomorrow and hope he likes it. He’s very stubborn! Pray it works! Thanks, I’ll call you if I have any questions!

          2. Kristin Brown

            Sending the before and after pics, and a video Mike just took of me giving her the ProMod. She is so good. Been a year since her face was that bad. Hurts me to look at it.

          3. Jamiegoff Post author

            Kristin, would you mind posting them on the hepatocutaneous facebook page also? I think it would be great for everyone to see the amazing difference?

      1. Darlene

        Hi all, hope your puppies are doing well. Sparky is back to bing great! I started him on some of the stuff Kristen suggested and he had a major turn around! He’s drinking his collagen, taking his pills eating like crazy, which I have to control now more cause I don’t want his gaining weight. He’s playing more and his crust seems to be getting better. You would never know he had crust under his eye! I’m so great full for everyone’s concern and help. I did find collagen wafers that he loves and theyr chewable. It’s ArthroPet by Neo Cell. I hope he continues to well being we are traveling for the next 2 months. Of course he’s coming with us! I just called the Hilton in Frederiksburg, Va to see if they can give us another fridge in our room! We’ll be there for a month! Thanks again for all your help!

        Reply
  48. Jodi

    Greetings-
    Have just spent last hour reading all of the blogs and taking notes. Our situation is a 8 year old lab mix named Chips who used to have a lust for life. You know the rest. Started with weight loss, high liver enzymes, ultrasound – and then the sores really started. Will be going to the store to get bag balm – but here is the question – with a dog lying down, how to you soak the feet? I did wrap them in warm wash clothes to try to soften before we knew what he had. Did anyone do something for the butt area? Poor guy doesn’t want to go. Made a big batch of gelatinous chicken stock, but sounds like it really needs to be concentrated? Anyway – thoughts on feet soaking appreciated and nice to know we aren’t alone!

    Jodi

    Reply
    1. Jamiegoff Post author

      Good morning! I’m SO sorry to hear about Chips!! Feel free to call me at 205-296-2323….I can walk you thru how I make the stock. We used shallow plastic containers and saturated cloths when Zoe’s feet were so bad!

      Reply
      1. Diana

        Jodi,
        Good morning, sorry to hear about your Chips, but you can turn this around. You didn’t say if Chips’ feet were cracked or just crusty. The bag balm works great, Cady had 4 wrapped paws 24/7 for about a month. Her feet were real bad. Petsmart had these great disposable booties for when she went out that I used to protect the wrappings. I also used a antibiotic rinse morning and night that helped with the infection she had. Eggs, get chip on some eggs and others swear by the other stuff. Cady is sensitive to a lot of foods so I have to be careful what I give her. But, the eggs ( I did 3 a day), one each meal did wonders. Her crustys went away in about 2 months. But, they were so bad she didn’t even want to stand to eat. We are going on 2 years now and she is doing great. Everyone here is great, so many helpful things to get your Chips better. Feel free to contact me with any and all question.
        Diana

        Reply
        1. Jodi

          Thanks for your ideas. His feet are cracked. I got Burt’s Bees soothing skin cream and he let me put some on his belly. I can probably get bag balm on the internet. Is it ok to put that on his feet when they are infected? He is on an antibiotic and a fungicide for his feet. Vet has prescribed some opthalmic ointment for his eyes. He weighs 61 so hard to hold up! He used to weigh 75 :-(. He just inhaled chicken, rice, stock and 1,000 mg of predigested amino acid. I am hoping we can get the sores before they get too bad. We only reached the conclusion about hepatpcutaneous syndrome on Wednesday so trying to come up tp speed quickly.

          Jodi

          Reply
          1. Jamiegoff Post author

            Please call me if possible–It’s easier to talk thru everything. 205-296-2323

          2. Jamiegoff Post author

            Jodi, when we spoke on Saturday, you mentioned the vet who diagnosed Chips was trained at Auburn. Was is her name? Just curious if she trained there recently and might have met Zoe.

          3. Jodi

            Hi Jamie –
            Her name is Dr. Jennifer Rainey. I think she graduated in 2007. Is Dr. Gimmler at Auburn? I was reading through your blog to glean more info. I wonder if she knows him–
            Chips came upsatirs on his own last night – small joys.

          4. Darlene

            Jodi, Sparky’s were so bad it looked like he had extra toes! In soaking you can pick them off but Lilly at a time n be patient. Bag Balm can be bought at Rite Aide drugs. That’s where I found it. But ask cause I didn’t know where to find it. It’s in a green tin n inexpensive. Put a lot on and try n get it in between his pads. I tried Berts Bees too but didn’t work as well. Bandage his feet with gauge and the stick to itself tape. I got doggie socks to keep clean. Your pups bigger so you might find kids socks n just tape it on maybe w a little duct tape. I found the stick to itself tape cheap on line. Over the counter gets expensive. Try KV supply on line. I paid $1.05 cause I bought 12 and each one is 5 yrs. you will use a lot of this.
            We did Ammeno infusions at Hospital and they cost $6 – 700 each. We did 4. After 4 the veins can collapse. They helped a little. I think giving the Ameno is just as effective. Give Jamie a call Shes very good and helpful. You can call me also 732-693-6499. I’m in NJ.
            Unfortunately this disease is permanent and does go up and down but it’s treatable and it is work but worth it. Good luck. And keep us all informed.

          5. Diana

            Jodi,
            Cady was on an antibiotic for her feet it was called Clindamycin and she took two 150 mg tabs once a day. They helped a lot in the begining stages and for 6 months. No fungal creme. She really didn’t like to stand her feet hurt so bad. I found a low level pan and rinsed her feet while she laid down. Once the feet dried I put on the bag balm then bandaged her feet. Since her feet hurt her I tried to put as much padding on her pads as possible. I used non stick sterile pads to catch the oozing and I used cotton or what ever I could think of as a cushion. Once I got her a good cushion, she didn’t wince as much standing and walking around. I also shaved a lot of her hair in and around her toes so the medicine could do it’s job. The bag balm was great I put just put it on and with the bandages it was able to soak the crustys. You can find bag balm in a pharmacy store Rite Aid, CVS or the such. The big stores really don’t carry it, but the other pharmacy stores do. One can goes a long ways. I used maybe half the can.
            Diana

          6. Jodi

            Thanks – I can’t believe he would be able to go off antibiotics for awhile. It is just so hard to see him so lifeless – unless he is eating!

          7. Darlene

            Jodi, I feel for you cause I’ve been there. It’s so hard to go through. Sparky slept for months like that. He was diagnosed in May and our Vet said he had 9 months to a year depending how fast it progresses. And he is now 6 months past that due date! I found this site in Feb and immediately started this treatment of collagen and supplements. I’d say he improved in about a month. It does take time.
            He goes up and down only because he’s stubborn and I had trouble with him taking pills, then he wouldn’t drink the collagen! He LOVED the collagen for almost a year. I tried giving it frozen for a while. That worked for about 3 months. Now he’s drinking it again and his crusts are improving again.
            They can’t go off this stuff. I had to switch his supplements because it was getting so hard to get him to take them. Now he gets liquid stuff, easier to get him to take with a squeeze syringe and I found doggie wafers and some chewables he loves. 2 weeks ago I was at my whittes end. He was acting fine but crust was getting bad. It was now on his back! I found doggie collagen wafers that helped to get collagen in him. I still don’t think he’s drinking enough throughout the day. I have to spoon feed it sometimes. He loves it but he’s stubborn!
            He was getting depressed when he was diagnosed. I noticed how he wasn’t interested in kids, company and just sleeping a lot. He missed having his walks and being w people. He LOVES people. So I made him a doggie stroller and what a difference. He was getting out everyday and it helped him. A labs a bit big for a stroller but maybe you can find a wagon just to get him out. Or maybe car rides if he likes the car.
            I still take him in his stroller, he gets a lot of attention which he loves. I take him everywhere in it.
            So your not alone and we all know what you and Chips are going through. He will pick up. Don’t give up.
            I got a list of food our vet, who’s a specialist with livers gave us. Some on this site give beef and theyr dogs are doing fine. My vet said no beef or processed food. She said it puts a strain on the liver to process. He loves raw, can be cooked, carrots, broccoli and sweet potatoes. He gets fish once or twice a week, chicken and turkey. I make his collagen with turkey carcasses. We have a butcher in town that saves them for us. And they give it to us free! Better yet!
            I also freeze his collagen in freezer baggies. Enough for each day. And I put some protein powder in it. They need protein. And if course he gets his eggs every day.
            I don’t know if you have any kids, mine are grown. It’s like having and taking care of a baby! Well, they are our babies! Lol
            He’s a white Westie with shaved back and a long skirt. He’s just like dog on the Mighty Dog commercial. So sometimes I have to put a bib on him! All he needs is a high chair to feed him! Sometimes when he doesn’t want to eat he wants me to hand feed home, yes, you can say spoiled! He’s small so he even has a car boster seat!
            Don’t hesitate to call any of us. Sending Love to you and Chips!

          8. Jodi

            Thank you Darlene. Sparky sounds like a feisty Scot! I am lucky that Chips is part lab and will eat anything – at least at this point. The other three dogs are just a little jealous, especially his littermate, Pie, who is very needy to begin with.

            Good idea on the butcher – I will see if our local one can set some aside.

            Thanks again

          9. Darlene

            Jodi, yes check with your butcher. I freeze as many as they want to give me. And I freeze his collagen. Like I said he got picky so now I put in baby carrots and a stalk of celery. I think that’s why he’s drinking it now.
            What state are you from? We’re near the Jersey Shore

          10. Jodi

            We live in Virginia, but I grew up in South Jersey – so am very familiar with the “shore” as opposed to the “beach” 🙂

          11. Darlene

            Jodi, I know Virginia is big but if you see a lady walking a Westie in a stroller that will be me and Sparky! We are going to Fredericksburg for 1 month! My husband company is working with Marines so he has to go to Fort AP Hill to test! From Oct 26 to Nov 21! So much to bring for Sparky to survive. We’re staying at the Hilton Garden Inn. They don’t allow dogs but the Manager makes an exception for Sparky cause he’s so good. We’ve stayed there before with him and they love him. Thank God we have a big car!

    2. Darlene

      Jodi, so sorry about your puppy Chips. Like the site says There’s Hope and it’s not a death sentence. Our Sparky, a Westie was the same way as Chips. Give the stock as. Don’t water down. What I do for soaking now is the sink, but Sparky’s only 20 lbs and moreortable. However I usually sit with him and I use a container like the ones you get from deli for potatoe salad, clear plastic, round. Just don’t soak in water, use Chlorhexidine Gluconate 2% solution. It’s an antiseptic – disinfectant that you put in water and I soak for 4-5 min each paw. Then use the bag balm and wrap it. It’s a long road and a lot of work but what you’ve read does work and in about 2 weeks or do you will see a difference.
      I started Sparky on people supplements that I was getting locally but he’s stubborn and did well for almost a year and 2-3 weeks ago started giving me trouble taking pills. I asked for help on this site and Kristen gave me what her dogs taking and where the sites are that she gets her pups stuff. It’s mostly drops and doggie pills so it’s more appealing for him. So I’ve changed Sparky supplements last week and he did a huge turnaround and back to normal, playing and running.
      As for the rear end. Sparky was real bad around his tail area. I soakeked with paper towels and now he sits in the sink which yours probably can’t do. I also use a flea comb to get off all the loose stuff and then put console lotion on to prevent infection and it will soothe it. Be careful though, Sparky doesn’t bite and is a very calm dog. However, it hurts and it’s scabs so he might try and bite you. Can’t blame them, I’d bite too if you hurt me! Lol! I got a muzzle for him and he doesn’t mind it. Just a word to the wise! I even got him PJs so I can put the bag balm on it and he wouldn’t get it on carpets. Kind of worked. But the supplements are getting rid of it. He still has soars and crust there. Takes time.
      Hang in there and keep writing to us. We are all in this together and not alone! Let us know if you need anymore help. We are all here for you and each other.
      Darlene

      Reply
  49. Jodi

    Hello everyone–I thought I read on here that someone gave their dog zinc as a treat – any thoughts? Chips is getting wise the the pills in the dog food. Jamie – getting the ResiKetochlor from the vet. She said we can also put that on his belly.

    Jodi

    Reply
    1. Darlene

      Jodi, try the greenie pill pockets. They come in flavors. Sparky took all his pills in those for about 9 months the got wise. I tore them in half because it’s a lot of pills. He got wise too that the pills were in it! Now we are using frozen yogurt for his pills. Yogurt is good for them. The smaller ones I try to shove down his throat. This can be hit or miss. I get 2 tries and then it doesn’t work. He’s figured out how to wiggle his toung. Good Luck!

      Reply
  50. Jodi

    We use pill pockets for his smaller ones. This morning we only got his Denamarin down before he shut us down. He wouldn’t eat this morning – so will try a variety of textures and combinations. I think he is giving up. This is such a cruel disease.

    Reply
    1. Diana

      Jodi,

      It is a cruel disease for both our furry friends and humans. But, you can turn it around. I know it may seem like he is giving up, but he just gets tired. When Cady gets that way I go back to basics and get her back on track. I just give her what I know she loves and she just snaps right out of it. I found that the pill pockets upset her stomach so I used chunks of chicken. to tuck them in. Most times dogs don’t chew so down it goes. If he is on antibiotics then a lot of the good bacteria for his stomach is gone. Use some yogurt in his food or let him lick a spoon. Cady got eggs and chicken three times a day and I was prepared to up that to four. Today she eats, chicken, turkey(lean) and eggs three times a day. We went a spell with green beans, which she loved, but her stomach did not so we had to omit them from the diet. It takes time to find what works, just hang in there. Trying a variety is a good idea. Good luck.

      Diana

      Reply
      1. Jodi

        Thanks Diana – he has been getting fish and an egg with either rice or white/sweet potatoes three times a day. I made some chicken this morning that my husband will try when Chips wakes up. Maybe he has just had it with the fish–and will definitely try the yogurt.
        Thanks

        Reply
        1. Jamiegoff Post author

          For whatever it’s worth, I switched Zoe to chicken because she also stopped eating fish. I had to use an appetite stimulant for just 2 doses to get her to turn the corner

          Reply
          1. Diana

            Try adding some green beans or carrots. Cady didn’t like carrots, but some dogs do. You can try fresh but the canned kind worked great.

    2. Darlene

      That’s what Soarky does. He devoures something for a couple of days then stops eating it! He does this all the time so you just have to keep switching things around. He stopped eating fish and now he can’t get enough of it. He’s doing this to chicken now! Very frustrating. Try frozen yogurt, that’s what’s working this week for Soarky. I can send you what Kristen sent me on my email. I switched a lot of stuff a few weeks ago. One is by Rx Vitamins – Amino B-Plex. It’s given with a syringe and Sparky love it! It’s for dogs. The Pro Mod she suggested has helped him too. It’s protein. Then there’s chewables that he loves too. And another chewable, by Thomas Labs, Amino Plex. I found collagen wafers, a chewable pill by NeoCell. All were on line and mist from Amazon. Chech it out. Darlene

      Reply
    3. Kristin Brown

      Jodi – I know how you feel. I think we have all been there with our HCS babies. I had made the decision to put Lily down last year. She was having 8 seizures a day, was anorexic and miserable. I told my family I just wanted a little more time with her. I think I was balling to Jamie the whole time. Then Lily made a complete turn around. The seizures stopped, she started eating, and she started healing. It was truly miraculous. It took 5 months for everything to heal completely. Her hair on her belly, where they did an ultrasound 2 years earlier, even grew back. As Jamie said, There is Hope. I will keep you and Chip in my prayers. I pray that God will light your path and give you peace that surpasses all understanding throughout. God Bless you.

      Reply
      1. Jodi

        Thank you Kristin – I needed that – to know it can get better at the dark times. The good news is he did have another round of chicken and rice – and my husband was able to get him his drugs, so life is good again.

        Hope my next posting is more positive!

        Reply
  51. Darkene

    Hi everyone, I hope all your puppies are doing well. I have a question. It’s kind of stupid because I’ve been making the collagen it seems forever. This week I made 3 batches because we are going away for a month and I need enough to for Sparky. Even though he’s been giving me trouble drinking it. It’s hit or miss if he takes it! Very frustrating! My question is – do you remove the fat that sits on top after it’s been cooled down? I’ve been skimming it off because I figured he doesn’t need this fat clogging up his arteries. But is this needed to get rid of the crust which he still has around his tail area and a little on his back. I’ve been soaking him in the sink everyday and it’s gotten better. At least it’s not red anymore. I’ve put Neosporian on because of the redness, it was almost raw looking. Now I’m back to the bag balm. I got him PJ’s so he doesn’t ruin the carpet of bedding. It’s gotten better in 3 days but he still has it. At least I can touch it again.
    So do I leave the fat?
    I had him for his checkup before we leave and he had his blood work taken and everything is finally normal! Yay!! It hasn’t been this good in way over a year! Thank you guys for all the hints of supplements. Especially Jammie, Our Gardian Angel!

    Reply
    1. Jamiegoff Post author

      Yes, skim the fat….it can make them sick (pancreatitis, etc). It doesnt have the nutrititional benefits that collagen does, also. You can try giving him one more “dose” a day of collagen, if you think he will respond without getting diarrhea. Hope this helps!

      Reply
      1. Darlene

        Thanks, yes it was helpful. I thought so, fats not good for anyone but I was dividing it and my husband said maybe it’s supposed to be left there. I didn’t think so but I thought idea ask! Thanks

        Reply
      1. Jodi

        Ditto on the fat. I have a question though – Chips continues to lose weight. He gets three meals a day plus two other doses of collagen. Any ideas on how to add some calories?

        Jod

        Reply
        1. Darlene

          Try ProMod, Kristen from this site suggested it for Soarky. I got it on Amazon. Also extra vitamins, try Pet-Tinic, also from Anazon. Our vet said to stop all over the counter dog biscuits. She said to give him Costco organic kids Animal Crackers. Our Soarky loves them. I forget how big your dog is so you might have to give a lot. Sparky get one every time he comes in from outside do he gets maybe 5 or 6. But they are small. He’s maintaining his weight. But it’s something extra you can give him and it’s safe. Good luck.

          Reply
          1. Jodi

            Three eggs a day. No prepared dog food. Chicken breast, tilapia, sweet and white potatoes, rice and chicken collagen. Also omega-3 fatty acids, zinc, ProCel and an amino acid supplement. He gets to lick a vanilla frozen yogurt while I clean his feet. Will try cottage cheese–

            Thanks all–

          2. Jamiegoff Post author

            Jodi, dark chicken meat has more calories than white. (I cook the whole chicken for Zoe)

          3. Jodi

            Will give it a shot as well – thanks. Very little progress for three weeks of the diet – hoping for a breakthrough soon. My poor sweet boy–

        2. Diana

          Potatos or rice. The weight will fluctuate. Protein makes you lose weight, but he will level out. Cadys weight went up and down at first.

          Reply
        1. Jamiegoff Post author

          Jodi, i think i would try increasing him to just under a half a cup per serving (the math is about .4 cup)

          Reply
  52. Darlene

    Hi all, You might remember me saying that we are staying in Va for a month. Being a good Mommy I made Sparky enough collagen to last while we are here. I froze it in baggies so I can defrost a bag a day. The hotel has it in their kitchen freezer for us, I thought! Last night I asked for 2 bags of collagen and they werent frozen! Apparently someone moved them! The guy said they were in the frezzer in water! Confusing to us! Im going to speak to the Manager today bu Im not sure if he’ll know what happened. The guy yesterday said they were in the freezer. I couldnt get an answer why they werent frozzen solid. They were just cold. Im so scared that they’r not going to be good now. The guy said he’ll put them back into the freezer. Can they be refrozen?
    I dont know what to do. There’s like 24 freezer quart bags of collagen that I made. I dont need Sparky to get sick from bad collagen. I am so mad! We stayed here last Feb for 2 weeks without a problem. Everyone here, except for a few new people know Sparky’s problem and how important this is for him to have.
    I dont even know where I can get turkey or chicken carcasses here!
    My guess is they defrosted in the fridge which could take 2 to 3 days. That means they were in the fridge defrosted for 3 or 4 days!
    Im really upset over this because he wasnt taking the collagen for about 3 weeks and now he restarted taking it. He still has scabs on his back and feet. Im working so hard to soak and get rid of them and he’s looking better and now this.
    What do you ladies think? Thanks, Darlene

    Reply
    1. Jamiegoff Post author

      I only use fresh stock and this is my rule of thumb for Zoe: the stock is fine for about 6 days, but if I give her stock that is 7 days or older, she will get diarrhea. That give you a few days to figure out how to make more stock. Maybe they will let you use their kitchen to make it at a time they aren’t using it? Hope this helps!

      Reply
  53. Jayne

    my Jack Russell – April just started with crusty paws, after we noticed she was acting sick. they did blood work and gave us probiotics, antibiotics and steriods, also said egg whites, olive oil and yogurt. Blood work results today diagnose her with this and we are going to start amino acids. I read alot of the posts on here. It sounds overwhelming but I’m hopeful, she is already some better after what we started a few days ago. Is the blog the best place to stay up to date with what works and what doesn’t? anywhere else I should get info? I’m really glad I ran across it, because it was looking very bleak on the internet in all the medical journals. Thank you for posting such a great info.

    Reply
    1. Diana

      Please stop the steroids it advances the disease. This site will give you alot of good information and everyone is here to help.
      Diana

      Reply
    2. Jamiegoff Post author

      Jayne, I’m so sorry to hear about April!! Yes, the blog is the best place….read the comments…..that’s where most people are posting what works and what doesn’t! The facebook page doesn’t get much traction for whatever reason.
      Feel free to call me to talk, I like to actually speak to new hepatocutaneous patients, as there is SO much info, it’s hard to sort thru it all! My phone number is 205.296.2323
      Have you tried the chicken stock yet? Jamie

      Reply
    3. Darlene

      Hi Jayne, so sorry about your April and I’m so glad you found Jamie’s site. We are all here for you and Jamie is the best. I call her our Sparky, my Westie’s Guardian Angel!
      Everything you read here works! Sparky is proof. He has his ups and downs but he’s doing well. It’s a lot of work but worth it. Scroll back and read the posts and take notes! There is a lot of info here that works!
      Our Vet, who’s a liver specialist is amazed how well Sparky’s doing as are we.
      If you have any questions or just need some support just post it here and someone will always be here for you and get back to you.
      Just curious what kind of puppy is April?
      Best of luck and There Is Hope!
      Darlene

      Reply
  54. jayne

    I picked up some amino acids and b12 and a couple other prescriptions today from the vet but April she won’t eat anything and she’s just laying around and she keeps throwing up I, don’t know what to do

    Reply
    1. Darlene

      What are you,feeding,her? No processed foods, no dogie biscuits. The liver has a hard time handling them. If you belong to Costcos get their organic kids animal crackers, or any organic animal crackers. I don’t know what to say about throwing up. Sparky was like that in the beginning and was hosppitalized a few days. He was dehydrated. You don’t want that. Maybe try little at a time small portions. What is she throwing up? Yellow bile foamy stuff? If it’s a lot you should call the doctor and get her in. She may need intravenous to get her hydrated. I’m lucky we have a 24hr hospital where we live in NJ. Our Sparky got this disease from eating poison mushrooms, three times! Of course it was always at night and we were able to bring him in. I’d look in the yellow pages for an emergency vet. This is if she’s throwing up a lot. Pinch her skin together. If it sticks together and goes down slowly than she’s deydrated. Try doing it on the top of your hand and you’ll see what I mean by sticking together and not going down fast. It’s hard to explain.
      Something could have just upset her. Not eating for a day won’t hurt her. She could just have an upset tummy. If you have Pepsid you can give her that for her stomach. What kind of dog and how much does she weigh? Sparky’s a 20 lb Westie and we give him 1/2 pill. I don’t know if this helps you. I feel for you and wish I could do more.
      I found a lot of Sparky’s stuff on Amazon. Some of which I got from Kristen who’s on this site. You can Email me if you want that list. dollyandharry@aol.com. And of course you can always call Jamie, she always willing to help.
      Keep us informed how Aprils doing. Darlene

      Reply
      1. Jayne

        we just found out yesterday she had this, and he gave me the new meds today. I was at work all day and my husband said she was ok and ate today. Before now we just gave regular dog food and the last few days as we were waiting for results we gave eggs, olive oil, yogurt, meat with her pills etc. She is drinking alot, she threw up the food she had earlier today and now it’s just liquid. I was hoping to get the aminos and vitamins started. I would love the list Darlene, thank you.

        Reply
        1. Diana

          Jayne, the most important thing is to get her to eat. Start small and work things in gradually so she has a chance to process things and you can get an idea of what will work with her. Stop the olive oil, oils and grease are hard for the liver to process and will more than likely make her sick. Cady didn’t want to eat either and I had to hand feed her in the beginning. The only thing I gave her was cooked chicken breasts, eggs and rice. The rice helped soak up anything in her stomach and the eggs and chicken were for the disease. It took her about two weeks to come around. She couldn’t stand to eat her paws were so bad. Your dog’s system is going through a change with all the new things added to her diet. Try not to give her any red meat, that is also very hard for the liver to process. I find chicken and very lean ground turkey are good. Many give fish and cady likes it, but i try not to introduce to many new things as she has a sensitive stomach. I give Cady famotidine 10 mgs for her when she gets an upset stomach. You can get it at target and generic, make sure it only has famotidine many other acid reducer’s have other things in their medicine. Cady is around 55 lbs and gets a whole pill. I hope this helps, chicken and rice is your best bet to get her over what’s upsetting her stomach. If I can be of any help don’t hesitate to ask. It will be a rough couple of weeks, maybe a month but you can turn it around. Once you do you will see a happy dog. There will be ups and downs, but you have a treasure trove of information and help to get you over the bumps.
          Diana

          Reply
        2. Jamiegoff Post author

          Jayne, please make sure you get her blood glucose measured at the vet’s right away! Dogs with diabetes will develop symptoms very quickly and increased thirst, increased urination and vomiting are all symptoms of diabetes. Also, steroids increase the chances of them getting diabetes. Even though Zoe never got steroids, she still developed diabetes. Let us know what you find out!!

          Reply
  55. jayne

    thank you Diana, Jamie and Darlene. I asked the vet about the steroids today, he agreed to stop them, told him about your blog. 🙂 this is not new to him, he gave me b vitamins, melatonin and soloxine and a big bottle of amino acids.just trying to give her 1st doses and she won’t eat or come out from under the table. She had been doing so much better the last few days and i was so excited to get the new prescriptions today and start giving her real healthy foods. What do you do when they won’t eat?

    Reply
  56. Diana

    Jayne, one more thing. Cadys specialist says the best source of amino acids is eggs, I started with three a day two years ago and we are still on that regiment. I’ve gone from scrambled, to boiled, to her favorite of over easy. But, Cady is living proof that the eggs and chicken worked wonders for her.

    Reply
  57. Jodi

    Hello everyone–
    Eating thing was the only thing we had going with Chips. Turkey, eggs and pasta – yum. However, we said goodbye to Chips today. The magic chicken stock/gelatin didn’t work. I have an array of amino acids, zinc, omega 3, collagen if anyone would like to benefit. A very hard day – we have said goodbye to three dogs and two cats – and Chips was the hardest. He was such a boy – loved being outside – and would grin when he knew he had done something bad. Well – he better be grinning because he has broekn our hearts and we will love him and miss him forever. His littermate, Pie seems a little lost. Thank you all for your support and all my very best thoughts to you and your pups.

    Reply
    1. Diana

      I am so sorry for your loss. It’s not easy saying goodbye to a family member. You and your family are in my thoughts and prayers during this very difficult time.
      Diana

      Reply
      1. Darlene

        Oh Dear Jodi I am so so sorry to hear about Chips. You did so much for him and I’m sure you gave him many more months with you and your family. It’s not easy loosing such an important member of your family. My love and prayers to you all. Darlene

        Reply
    2. JoAnn Stamplis

      jodi, you have my deepest sympathy. My dog, Abby, ha been dealing with terrible disease since January. She also has eye problems… Does not make tears. These poor innocent animals that love us unconditionally just don’t deserve this terrible suffering. Abby has had her ups and downs, but so far she is still here. God must know when to call his precious creatures home. Again, I am so sorry for your loss. JoAnn Stamplis

      Reply
  58. Jayne

    Thank you everyone so much for the info. April threw up all of friday night and we took her to the vet sat morning. They gave her fluids and an antibiotic shot cause she had a temp. She had edema and erratic heart beat. She just kept getting worse. We took her to the vet hospital where they gave her oxygen and fluids and maxed out the medicine to get her heart rate down and they couldn’t. she was not responding to anything, just got worse by the minute. They did ultrasounds and said her liver wasn’t functioning, and started to do other tests but her heart rate was over 300 nonstop. She had blood in her nose and wasn’t sure why. They said they did everything they could and were stumped. It was the worst 2 days of my life. We had to let her go late last night. Our cat died in august and my family is really having a hard time, I would appreciate your prayers. Thank you again for all your info, I really wish we would have had the opportunity to try all these things.

    Reply
    1. Darlene

      Oh My God Jayne, I am so so sorry for your loss. How horrible for you all. This is such a horrible disease and can be so painful for everyone, puppy and family. . I wish we could have helped more. I wake up every day wondering how my pups going to be today.
      May God help ease your pain and my prayers are with you all. Darlene

      Reply
    2. Diana

      Jayne, I am truly sorry for your loss. An awful experience indeed. My thoughts and prayers are with you and your family as you deal with your losses.
      Diana

      Reply
    3. Jamiegoff Post author

      Continuing to pray for you! It’s SO very hard to let them go, but know that at least they have no more pain. I’m very sorry for your loss!

      Reply
    4. JoAnn Stamplis

      Jayne, I am so sorry for the loss of your beloved dog. You did what you could. I pray for you. May you have peace. Joann

      Reply
    5. Tira Ishikawa

      my heart hurts for you…. but knowing that she was loved dearly while she was here might bring some peace to you… it did for me when i lost my yorkie (hit and run)….they knew love every day

      Reply
  59. Jodi

    Jayne-
    We lost our cat in July and then Chips yesterday. I will keep you and your family in my thoughts. It is so painful when we can do so little for those that bring so much into our lives.

    Jodi

    Reply
  60. Brian

    I just found this blog after making the appointment for our 8yo schnorkie Brutus to be put down in a few days. His skin is so bad, he is wearing a cone full-time to keep from biting his lesions. 2 months ago it started with an ear infection, crusty paws, and vomiting blood. They did antibiotics, bloodwork, and ultrasounds and found a mass on his pancreas. Diagnosed him with HS and Glucagonoma. We went ahead with the surgery and removed the mass successfully.

    It ended up being benign and they ruled out HS and Glucagonoma. His skin and paws continued to decline. Nausea and vomiting returned a couple weeks later (no blood thankfully). Dermatologist re-diagnosed him with acute HS even though the liver biopsy showed no HS present. We declined to confirm HS with an expensive skin biopsy. We put him on the prescription ID dog food that didn’t help.

    He has an appetite for the wet food and treats, walks on his own (very slowly), no diarrhea. Has good days he even wants to play, although mostly sleeps and stumbles around. However his genitals, butt, and back left side are largely covered with lesions and his pads are cracked, falling off, and “growing extra toes”. We soak his feet 2-3x weekly and bathe him with anti-fungal shampoos, but we are at a loss. We haven’t slept well with his lip licking, and heaving every night/early morning.

    Curious if he is too far gone to come back from this with the collagen, eggs, and supplements suggested here? Any other dogs here with skin that bad make a recovery?

    Reply
    1. Jodi

      Brian-
      I think it is always worth a try. We started in the regimen as soon as we had the diagnosis in September. We said goodbye to our dog, Chips last Saturday. He also was 8 – far too young. If anything – he loved the food and that made me happy. We made the broth, turkey, fish, chicken breast and lots of pasta because he was losing weight so fast. You have my heartfelt sympathy – I still think I hear him licking…it is an horrendous disease. Best of luck either way you go.

      Reply
    2. Darlene

      Brian, don’t give up yet! Our Sparky, a Westie was real bad. The crust was so bad on his feet. He too had extra toes and his pads were completely covered! Around his tail was all crusty too. I soaked his feet every night and picked at the stuff. Sometimes getting chunks that wouldn’t come and hanging but a thread those I would cut off with scissors, as close as I could get without cutting him. I was terrified cause I didn’t know where his pads were. After doing this for weeks I got to know what was what. Our groomer was very good at soaking his feet for 40 minutes to soften the crust. I would go into the lobby and hear Sparky screaming. This I didn’t like but she did get rid of the extra toes and most of the stuff. But I didn’t find this site yet so it all grew back, including the extra toes. This was before I was told about the bag balm ointment. Most drug stores carry it. I got it in Rite Aide. It’s a 2 1/2 in high green tin. This worked wonders. After smothering on the ointment I wrapped them with gauze and then the stretchy stick to itself tape. Then I got doggie socks to put over to protect the bandaging. I even found doggie slippers to keep the socks clean! We are away so I can’t give you the name of the soaking solution. Scroll back on this site and you’ll find it.
      Be careful though. This hurts. You know what it’s like to have a small scab on your skin. It pulls and hurts especially if your try and pull it off. I do muzzle him because he did try to bite me. Their feet are very sensitive so be careful. Now, with all of the supplements it just falls off! I got a plastic bathing brush. It has soft plastic bristles. I rub it around his tail and he loves it. It’s soft so it doesn’t hurt him. It’s like a massage. You wouldn’t belief all the stuff that falls off. I’m still working around his tail but it’s improving. Bathing with Malaseb shampoo is also very good. It’s medicated and keeps the skin clean. Sometimes when the scabs fall of the skn will be red, pink and look raw. So this shampoo helps that too.
      Please call Jammie. She’s like our Guardian Angel and she’s very helpful.
      Lately Sparky won’t take the collagen, which he used to love, so I found on line chewable collagen and Ameno pills. He is now drinking the collagen again. He also used to love the ID dog food and now he’d rather have fish and chicken or turkey. He loves raw broccoli and sweet potatoes too.dont give him anything processed not even dog biscuits. For treats we give him kids organic animal crackers and he’s happy with them.
      It’s worth a try. I’d do all of this and see how he is in 2 weeks. You should see an improvement. Sparky’s liver looked like Swiss cheese. And his blood work was off the charts high. Last month his blood work was normal! First time in 3 years! He was diagnosed last Sept. I dint find the site till Feb, March.
      We are all like a family with the same problem with our pups. Anything we can do to help, just ask.
      Darlene
      PS: if you want to email me feel free. Dollyandharry@aol.com

      Reply
      1. Darlene

        Please pray for our Sparky! He’s doing so well with the HS and now this. I took him out this morning and he kept peeing. When I brought him in he tried to pee at lease 10 times with only a dribble coming out. I brought him to our Specialist and she did a Radiograph and he has 3 large blockages in his bladder one that’s blocking his Uretha. So tomorrow he’s having surgury to remove the stones! Darlene

        Reply
          1. JoAnn Stamplis

            Praying that your little dog will do fine. My Abby who has hepatocutaneous disorder has had bladder stone surgery twice. But that was years before she developed the liver condition. My concern is the diet afterwards. Abby used to be on CD diet, then after 2nd surgery they changed her to Us. Both are very expensive. When she got the hepatocutaneous disease, the specialist said to let her eat whatever we could into her that was high protein. She does have some bladder stones confirmed by xray, but does OK. We are keeping her a very high protein diet plus amino acids, omega 3, zinc, vitamin E, C, folic acid and milk thistle to protect the liver. Her pws are healed.She got an A plus from the dermatologist vet. I give the glory to God. And take it a day at a time. God is awesome and can do all things. Praying for you, too. God bless, JoAnn

          2. JoAnn Stamplis

            Praying that your little dog will do fine. My Abby who has hepatocutaneous disorder has had bladder stone surgery twice. But that was years before she developed the liver condition. My concern is the diet afterwards. Abby used to be on CD diet, then after 2nd surgery they changed her to Us. Both are very expensive. When she got the hepatocutaneous disease, the specialist said to let her eat whatever we could into her that was high protein. She does have some bladder stones confirmed by xray, but does OK. We are keeping her a very high protein diet plus amino acids, omega 3, zinc, vitamin E, C, folic acid and milk thistle to protect the liver. Her pws are healed.She got an A plus from the dermatologist vet. I give the glory to God. And take it a day at a time. God is awesome and can do all things. Praying for you, too. God bless, JoAnn

    3. Diana

      Brian, I don’t think your dog is to far gone. My dog Cady was pretty bad, no fur, lots of crustys and couldn’t stand to eat it was so painful. I started a very high protein diet and it took several months, but she is a new dog. No crustys, she has fur and wants to play. You can read my other posts to see my regiment. I don’t do a lot of the things the others do, but they are on my list if I need them. The high protein diet worked well for cady, you will just have to see what works for your pooch should you decide to try. Cady did the id also, it didn’t work for her at all. Most vets start you on steroids and that advances the disease, Cady was no exception to that. It was a tough battle, but we won. If the crustys are that bad, consider loading up the area with bag balm and wrap. Cady had her 4 paws wrapped 24/7 for 2 months. It gave her paws a cushion and helped heal them. I’m always available to answer questions. Good luck to you. Diana

      Reply
  61. Erin Wilson

    Hi all! What tend to be the most effective amino acid pills that you are giving the pups and where are you getting them? Also where is the best collagen supplement?

    Reply
    1. Darlene

      Hi Erin, I got mine from Amazon, I have trouble giving Sparky pills so I found Amino Plex, chewables by Thomas Labs. I also found collagen chewables by NeoCell called ArthroPet wafers. Sparky loves them both! I give him 3 each a day but I’m not sure if he should be getting more. I also give him a liquid Amino B Plex from Amazon. Sparky’s in the hospital now with Bladder Stones so I don’t Have to bottle here. Sparky’s a 20 lb Westie so if your pups bigger you might want to give more.

      Reply
    2. Darlene

      Sparky’s out of surgery. Dr said he did fine kind of. He had 2 stones in his Uretha and they did damage to the tissue. So he’s very uncomfortable. It might heal by itself. We’ll know in about 2 weeks. If it doesn’t heal he may need more surgery! I was happy to hear they gave him his morning Vit and supplements! I was worried about a set back. Thanks for your prayers. Keep them coming. Thanks. Darlene

      Reply
        1. Darlene

          Sparky’s home! He’s still groggy. They couldn’t belive all he takes and eats. Dr said he’s better off home so he gets all his stuff at the right time! Plus they know I’ll take care of him. We did the lapascopic surgery which is a tiny incision instead of a 4-5 inch incision and taking out the bladder. More money but less pain and healing for him. The surgeon was not his reg specialist and she thought they should be writting down what I do and give him for future patients. She thought he looked great for a dog having this disease for so long! Yay! I’m hoping he’ll eat eggs tonight for dinner. Thanks for all your support and prayers. Sending love to you all ❤️

          Reply
          1. Darlene

            The latest with Sparky is he has a UTI that probably caused his Bladder stones. The bad new is she’s stopping the antibiotics that might get rid of it. She’s dtopping it because of his disease! He threw up twice yesterday. He won’t eat his eggs! She thinks the antibiotic gives him an upset stomach. I went on line and found Cranberry Chews for dogs so I’ll try that for him. Any suggestions? His scabs came back since he was hospitalized! Can’t bath him or soak his feet! This is going to set him back severely I’m afraid! He is acting normal which is good.

          2. Diana

            Darlene, Cady had the antibiotic clindamycin, she was able to tolerate it for a year and she has a very sensitive stomach. I’m sure Sparky will rebound, still keeping him in my prayers. For cadys probiotic my vet recommended goat yogurt. I do understand the sensitive stomach. Thanks so much for the update.

  62. Erin Wilson

    Hi all! Wondering about the licking and scratching, we tried changing Dagwoods diet to see what would happen and well didn’t work. His nose and eyes get the worst crusted and he scratches them incessantly. Anyone else have this how can I help?

    Reply
    1. Jamiegoff Post author

      Erin, are you using the stock and “no processed food” diet from the blog? Chicken stock is what makes the difference for Zoe. Unfortunately it has to be given every 5-6 hours during waking hours for it to work for her. also, Kristen had suggested ProMod made by Abbott (it’s for humans and you can order it from Amazon). It is also liquid collagen (the disease is from an amino acid deficiency and that’s why the collagen…in the form of the ProMod OR stock works.

      Reply
      1. Darlene

        We use the ProMo and I found chewable Collagen and Amino on Amazon. It’s Amino Plex by Thomas Lab and the collagen is from NeoCell called ArthoPet. Sparky loves them. I give him 3 of each a day. He’s small, 20 lbs.

        Reply
    2. Diana

      Erin, I applied a small amount of the bag balm just before bed. It was tough keeping Cady from licking her nose. But, I just used a dab mainly to put moisture on her cracked nose. During the day I used a small amount of chap stick. I tried to use it when I knew she was going to sleep so she wouldn’t lick. Around the eyes I used some lotion, Vaseline anything I felt was safe and that would provide moisture. I never used a lot, especially the bag balm, just enough to take away the itching. Right now I’m dealing with her ears being itchy.

      Reply
      1. Darlene

        Does anyone know anything about antibiotics. Our vet just called and is concerned about his UTI infection. The kind he has is very hard to get rid of and resistant to most drugs. She’s worried about his disease HS. She’s doing research on 2 drugs she would like to inject sparky with and she’s calling research people for warnings and drug interactions. She knows I do reach and gave me the names of the drugs. One is Amikacin and the other is Fosfomycin. I havnt looked them up yet. Thanks any input is appreciated.
        Sparky seems to be doing well. He’s picky but is eating well. One day he devours his chicken and the next day turns his head. That day he ate the canned Liver diet food which he wouldn’t eat for weeks. Next day he loved the chicken! Picky picky! But that’s OK, he’s eatting!
        I found online Cranberry chewies that he loves! I know cranberries are good for UTI’s. Also I started him on blueberries. He’ll only eat them if I cut them in half but they have to be cut side up or he won’t eat them! Boy does he have me trained! I’m affraid he wasn’t getting enough protein And I found protein chewies also for dogs! It’s made from hydrolyzed white fish! He loves this too!
        What we don’t do for our fur babies!
        Thanks. Darlene

        Reply
        1. Darlene

          I am happy to say that our Sparky’s vet called with his urine results and his bladder infection is completely GONE! She is amazed how fast I got rid of it without antibiotics! After I found out that he had a bad UTI I immediately found on Amazon, chewable cranberry pills, gave him blueberries and yogurt! She wants me to recheck it with PH testers in 2 weeks and a recheck with her in 3 months! He has his old Sparky’s Sparky again too! Not sleeping as much, playing, following me around and always interested in everything we do! I’m so grateful for prayers, vitamins and supplements and everything that’s made him better!

          Reply
          1. Tira

            Glad to hear he’s cleared up…could you tell us the name of the cranberry chewable and the dose you gave him? My dog has a UTi too.
            Thanks

  63. Darlene

    Sorry to hear that Tira. I found it on Amazon it’s called Soft Chews, Cranberry Comfort. I gave him 2 a day at lunchtime. I also gave him blueberries but I had to cut them in half and feed it to him cut side up! He didn’t like the hard round end. Once I turned it around he was able to smell the blueberry and ate it. I gave him about 6 to 10 a day. Yogurts also good but right now he’s on an anti yogurt faze. I did give him frozen yogurt at night, maybe about 3-4 spoonfuls.
    I also found By NaturVet, Cranberry Relief. This has Echinacea in it. They’re soft chews so I didn’t open it yet. A company called Chewy.com sells them. 60 chews a 30 day supply was $8.00. His vet said to continue these because they won’t hurt him and helps to maintain and support his urinary tract. Sparky loves them.
    Good luck and keep me informed how you make out. Darlene

    Reply
  64. Mona

    Our Sheltie has just been diagnosed with this disease. Found this blog while searching online for any information that might help. We’ve seen 2 regular vets and had an ultrasound done at our Animal Referral Center with an internal medicine specialist. Liver came back abnormal so we decided against doing the biopsy seeing there’s no real treatment anyway. Happy to see at least a little ray of hope with what you all have been trying. I have a bunch of questions and will be calling Jamie for her help on making the stock. A few things I’d like everyone’s opinion on: Vet said to keep feeding the Science Diet food we have been but adding eggs at each meal. Wondering if that’s what you all have been doing or do you quit the dog food altogether? We are giving her Denamarin and Vitamin E once a day. Is it okay to give her Milk Thistle with the Denamarin or is one or the other okay? Can you give them too much? Other questions are the amino acid supplements or anything else that might help, where do you buy them cuz so far no luck on my searches? Waiting on a price for the IV infusions but we will probably decided against them either way. Our dog is not a fan of vet visits in general and wouldn’t want to put her thru that. Would love to get her paws healed up enough for her to enjoy walking around. It’s winter here and we’re putting on boots for her to do her business, but that’s our only outside time. So sad cuz only a month and a half ago she was out with me on long walks playing in the snow! 🙁 Sorry for such a long post – so many questions and feeling overwhelmed. Thanks!

    Reply
    1. tira

      hi…. we’ve been dealing with this for a long time now and i share a few of the things we have been doing: we pressure cook pigs feet and turkey necks every couple of weeks and use the collagen from the broth twice a day with each meal (it solidifies like thick jellow so we cut out squares)… we give him an egg with each meal (w2xday)and we give him milk thistle, collagen tablets and something similar to denamarin. he no longer has crusty feet, nose or back. when he did have crusty feet he developed a sore in between his pads so we put on neosporin, bag balm, and wrapped for a few days and that healed.this care may sound like a lot at first but honestly, it’s become such a habit we don’t even give it a second thought. he is not cured (his ALT was once 707) but our regualar vet and the staff at the LSU Vet school said they were really surprised at how much healthier is looks.
      i hope this helps you…

      Reply
      1. Diana

        Hi, I’ve been caring for our border collie for over 2 years now. I stopped the dog food all together I found that processed dog food wasn’t good for her. She gets chicken and eggs three times a day (1 cup). I was doing the collagen jello, but it didn’t agree with her. She has a sensitive stomach so I am always changing her food. But, protein never changes. Her feet were in bad shape so she got bag balm placed on them at night and bandaged feet for about two months until they healed. Denamarin is good, my specialty vet recommended this. I opted out of the transfusion because it may or may not work and it’s an all day process. There were just to many variables and it just wasn’t right for Cady. This is a good blog with many folks trying a variety of things. All of us are here to help and answer your questions. I do believe some of the items you are searching for you can find on Amazon and there is also a website for pets that has some of the items, I believe that information is under posts by Darlene. It is a bit over whelming at first, but there is lots of hope. Always here to help.
        Diana

        Reply
        1. Darlene

          Mona, here’s what I give Sparky
          In the morning
          Dr Fosters and Smith
          Premium Plus Omega 3. 60 chews $16.99
          2x a day. Morning and night. Liquids. 1 dropper that comes with 2 of the bottles
          (I put this in a small bowl and he licks it up and love it). These I get thru Amazon
          ProMod – Liquid Protein – Fruit Punch. $28.48. It’s a large bottle
          Amino B-Plex. By Rx Vitamins. 4 oz. $20.48
          Pfizer Animal Pet – Tinic Vit/ Mineral Supplement. $17.20. Sent thru Entirely
          Pets Co
          3x a day. He gets these chewables. Both thru Amazon
          Amino Plex. 100 tablets. By Thomas Labs. $10.45. Sent thru KV supply
          ArthroPet. – Collagen. By NeoCell. 60 wafers. $16.88
          Night time – first 4 I put in Pill Pockets
          Proviable DC – Vets Prescription
          Vit E. – 200 IU. rite Ade brand. (it’s the smallest Vit E I could find)
          Milk Thistle. – 200 $13.40. (I believe I got this in the Vit Store – it’s small)
          Niacinamide by Jarrow. 250 Mil. 100 capsules $16.17. Amazon
          Denamarin – chewable. Tabs. 30. $34.95. Amazon
          Also a weekly bath with Malassab Shampoo – helps sooth the scabs and can soften them. Soak at least 10 min.

          For his feet: soak them in Clorhexidine Gluconate 2% solution. It’s a cleansing disinfectant Vets have it but it’s expensive. In the beginning I soaked each foot for 4 minutes! This too I found on line thru Amazon. It’s like $18 but you dilute it. Mine has lasted a year now. And or you can get through Dr Fosters ans Smith website Septi-Soothe Pads. It has the same disinfectant stipuff as the liquid. The liquid is soothing for them and softens the scabs a little. The pads are good just to clean his pads before putting on the Bag Balm, which I got in Rite Ade.
          I even ordered the rolled gause and the sticky self sticking tape on line too. This you will need a lot of if your doing it every night. You will see a huge difference in about 2 weeks. It can take up to 2 months. Keep the bandages dry from wet weather. I put his boots on. Or redo.
          I know this all sounds overwhelming but like, I believe it was Diana said, it becomes your lifestyle and you just do it as a routine. I now don’t have to do this everyday anymore. I do it whenever I see his feet acting up. I check him daily.
          Ah, then there’s the collagen. Jamie will guide you with that.
          Sparky LOVED it for about 9 months then stopped drinking it! I panicked because that’s what was helping him and keeping him alive. Thats when I did more research and found the other supplements Now he’s drinking the homemade collagen again. He seems to get boared with foods. Hopefully you won’t go through this.
          I’m sorry this is so long. If you want me to email this or if you just want to talk I’m here usually. I don’t work. I know I had a lot of questions and problems that we all went through.
          It’s a horrible disease that will never go away but it is manageable and they can have a somewhat normal life. You won’t but they will and that’s what matters.
          All of us are willing to help you get through this.
          Our Vet is amazed with our Sparky and its a top rated hospital where people come from 4 surrounding states! She calls him a miracle dog. And she’s taken notes for what I’m doing and giving him. I have Jammie to thank and I call her Sparky’s Guardian Angel.

          Reply
          1. Mona

            Heard I should be giving Shelby the Missing Link supplement, is it the one that needs a vet prescription? Can someone let me know which other supplements need a prescription? Thanks!

          2. Darlene

            Only one I know of is the Proviable DC, my vet said you need one for the Denamarin but I got it without a prescription thru Amazon. The Hills prescription I/D dog food is obviously also prescription if you choose to use it. I’m home now if you want to talk.

          3. Jamiegoff Post author

            Mona, I used to use Missing Link and ordered it thru Amazon, but now just use poly-vi-sol with iron instead. Because Zoe has such issues with diarrhea and missing link has flax in it, it was making her diarrhea much worse.

    2. Darlene

      Hi Mona, this is a great site! So glad you found it. Our Sparky’s a Westie around 20 lbs. no processed food! No biscuits either. We give him Organic Kids Animal crackers for treats. Our vet said Costco, a huge container is like $9. But I’d say anything organic is fine if you don’t go to Costco. Yes, go to Amazon. I can give you all the companies if you give my your email address. Or I’ll list it here if you want. Yes, give him theDenamarin but get it through Amazon. Vets expensive. I get the chewables for like $34. And chewables cost more so it’s fairly cheap. He gets 1 a day and the milk thistle, 200 mg The Denamartin doesn’t have enough Milk
      Thistle in it.
      He gets Amino Plex, by Thomas Labs, chewables 3x a day. It’s $10.45 for 100 tablets thru Amazon. The company that sends it is Kv pet supply.
      ArthroPet collagen bu Neo Cell. Also thru Amazon. 3x a day
      I also found chewable daily supplement of protein on Amazon too. But I have to be careful with this because he had bladder stones which can be caused by too much protein. Dec 2 he had a $3500 surgery and a urinary track infection. I cleared that up with chewable cranberry. Keep an eye out if he’s peeing a lot and nothing’s coming out get him checked. I’m still giving the cranberry chews. It won’t hurt him.
      I’ll look up the other stuff for you too. It’s on my email and I want to send this to you now. I’ll do it tonight.
      Sparky was real bad last year. He was diagnosis end in 2013. The vet is a specialist at a big hospital here in NJ. She gave him 8 months to live and said its a fatail disease and there’s no hope! He slept all day, wasn’t interested in anything, stopped playing and was so sad! We did 4 infusions T $7 to 800 each! Helped a little but not much. So I wouldn’t do it. You give him the Ameno throughout the day. Just as good even better.
      Do soak and wrap his paws with the bag balm. I got it at Rite Aid. Glob it on. It does take a while but the stuff will just fall off.
      Sparky is playing now, following us around, interested in everything and back to his old self! He’s 9 yrs old.
      For breakfast he gets mini wheats, make sure there’s no sugar! The vet said frosted mini wheats but I notices his sugar was getting elevated so I found them with 0 sugar. He loves the crunch. Sometimes an egg. He gets tired of eggs and refuses to eat it if he gets it every day. Lunchtime he looks for a slice of cheese. Dinner we switch from turkey, or turkey burgers, chicken, and fish. I did some research and salmon has the most protein. He does like tilapia too. I get it frozen and sometimes fresh. This I spray Pam on both sides of the fish and cook until flakey. Every day he also gets raw, he seems to love, broccoli and about 4 slices of raw sweet potatoes. He’s even gained weight! But I think it’s mostly because he wasn’t playing or going for walks anymore.
      Yogut, frozen yogurt, cottage cheese are also good. Fruits good to but be careful not every day. Too much sugar. Any squash. You’re going to find out that he’s going to be eating better than you! Lol
      Hope this helps. Don’t give up. There is hope and they’r worth it. They’re family!
      Good luck. If there’s anything I can help you with please feel free. We have all been in your shoes and it is overwhelming in the beginning. We are all here to help you.
      My email is dollyandharry@aol.com. Phone: 732-671-4857.
      I’ll get you the list! Darlene

      Reply
  65. Meg

    Hey all! I want to thank you from the bottom of my heart for all of the info on this site! My 13.5 yr old Lhasa apso, Simmy, was diagnosed with HS a couple months ago. His paws were so messed up that he couldn’t walk. I will do anything for my pets but I will not let them suffer! The amino acid infusions seemed like a costly nightmare and not readily available anyway. U I started him on the treatments described /recommended here and he is like a new dog! I know we are on borrowed time but as long as he’s comfortable and has a decent quality of life! He’s now walking better and further than he was 3 months ago! I can’t thank you enough for your willingness to share the info that has helped my boy so much!
    I went to order more of the Amino Plex by Thomas Labs and it seems it is no longer available!! Anyone else have the same problem or know of any good substitution?

    Reply
    1. Jamiegoff Post author

      Hi Meg, I’m so sorry to hear about your diagnosis, but happy to hear that he is doing well! We use ProMod liquid protein that I order from Amazon and we use ProCell Collagen capsules (not the powder, as it caused Zoe to have diarrhea). I order it directly from the manufacturer, New Spirit Naturals in California. Most recently when Zoe stopped eating, I added The ProMod and it turned us around very quickly. I believe others have commented that it has been beneficial for them, as well! Please let us know how we can help!!! That’s what this site is ALL about! jamie

      Reply
    2. Darlene

      Qui Meg, I was so upset to hear about Thomas Labs discontinuing the Ameno Plex. Sparkys been on this for years and he gets it 3x a day. I ordered 2 bottles about 1 1/2 months ago. I looked on various sites and they all said discontinued. Tomorrow I’m planning on calling Thomas Las to see why they’re discontinuing it. I also give Sparky Amino B-Plex by RxVitamins. So all is not lost. He gets this 2x a day. He loves it. It’s a liquid so I just use the eye dropper and I put it in a bowel with his other liquid stuff. petTinic, which is a multi vitamin and the Pro Mod which I did stop because he was putting on too much weight. He eats well so I stopped it. So you might want to look this up and give that to Simmy as the extra Amino which they do need. Hope this helps.
      Sparky just turned 10 on Sat. He’s an 22 lb Westie and has had this disease for over 2 yrs and is doing quite well even though 2 weeks ago was diagnosed with Diabeties. He goes back to the vets tomorrow to see if his insulin needs fixing. He’s beenpeeing in the house at night. Really a lot but he’s also drinking a lot at night too.all this in the past 3 weeks. So I’m hoping regulating his insulin better will help and that it’s not his kidneys giving him trouble. He’s eating and pooping good and playing and acting normal so we’ll see. Love to you and your pup ❤️

      Reply
      1. Meg

        I saw that they have a powder form that seems to have a lot of the same ingredients so I figured I’d try it. Let me know what Thomas Labs has to say! I do give Simmy the liquid Amino Plex twice a day via dropper. Unfortunately, Simmy is VERY picky eater and refuses to take meds in pill pockets or any other form of trickery! Hahaha! I’m worried about the powder because I finally have him eating with some regularity now….I don’t want to mess that up by sprinkling powder in it and then he refuses to eat it again! In addition to the amino Plex tabs (twice a day) and the liquid stuff…..he also gets Pepcid AC, vitamin E, zinc, and milk thistle. I am about to add the pet tinic as well. Denamarin before meals is tricky but I try to get it in him. Have you tried the dermapaw ointment on the paws? It certainly smells better than bag balm so I’ve been alternating. Bet also recommended trying kerasalv from local drugstore to help soften up those hard crunchy areas of hyper keratosis. Hope all goes well with your dog and the diabetes! Keep me posted!!

        Reply
        1. Darlene

          I just called Thomas Labs and the girl said they’ve been thinking of discontinuing The AminoPlex Chewabkes for over a year! Not enough sales. I told her about our pups and how the chewables are helping to keep them alive. She said to Email her directly at Mona@ThomasLabs.com. She will forward our emails to someone who may be able to help. So please everyone email her with our sad but true stories and we’ll see what can be done! Thanks Darlene

          Reply
          1. Darlene

            I finally was able to find chicken feet! A Chinese, Korean Market just opened near by. I’m so excited to add them to my turkey stock which I have to make tomorrow. How many feet should I put in? There’s a lot in the package. I bought 2 so I’ll have it on hand for next time. Thanks

          2. Jamiegoff Post author

            I use a lot of chicken feet for Zoe, but she also gets a lot more stock , since she weighs more. I use 1.25-1.5 lbs of feet per crock pot (plus 1-2 chicken carcasses). That usually makes about 2-1/2 to 3 quarts of really good stock.

          3. Darlene

            Thanks, I have a big crock pot and I use turkey carcasses. Our butcher saves themand freezes them for us. So I have them in our big freezer in the garage so I always have them in hand. I guess I’ll put the whole package in. Lots of feet! Never used or saw them before. Kind of grosses me out but it’s for Dparky so I’ll get over it! Lol

          4. Darlene

            Jammie, the chicken feet worked wonders! I never had the collagen cone out so jelled! All these years Sparky was drinking soup! O few times I thought it was kind of jelled but not like this! But it’s so hard to find chicken feet here. There used to be a Chinese/Korean food store here but it closed last year. Luckily they reopened! I think thry were either redoing the store or maybe new owners. I’ve always seen a lot if cars there so I was surprised they. closed. Plus the feet are so cheap! Sparkys used to the soup and wasn’t sure of the jell but he did have some. Thanks again for all your help. We have gotten his Glucose down one color on the chart and his ketone is good. Vet increased the mm from 3 to 4 and now 5 so we.ll see if it goes down more. She’s calling us on Mionday. I’m thinking she’ll increase it again. He’s doing fine and it doesn’t seem to be bothering him. Past 3-4 days he’s not peeing at night in house and drinking less too. So Harry stopped setting his alarm clock for 2AM to take him out. I’m still staying up to 11:30 pm. Hopefully that can stop soon too. I miss going to bed with Harry. By the time I get there he’s taken over the middle of the bed! Lol. Hoping alls God with your babies. ❤️

          5. Meg

            Darlene,
            I emailed Mona at Thomas Labs as suggested. She replied and just stated that they were no longer making it because there was little demand for it. She suggested the similar powder form which I received yesterday. I have a challenge with getting Simmy to eat food spiked with any form of medication. He catches on to it and then becomes suspicious of all food and will stop eating. Now that I have him eating regularly I am nervous about trying to hide the powder in his food. I’ve been more concerned since he’s been vomiting about an hour or so after eating for the past 3 days. This is about the same time we ran out of the amino plex so I’m not sure if it’s related to no longer having that pill or not. I got the powdered stuff yesterday and tried diluting it in some water and syringe feeding it to him (which he hated, by the way). He vomited it all up about 10 minutes later. :(. Will try and get creative to see if I can get it in him somehow and most importantly if it helps.

          6. Darlene

            Meg, try mixing it with Frozen Yogurt. Yogurt it very good for our pups. Sometimes when our Sparky refuses his pills we hide them in the Frozen yogurt. Worth a try. Good luck.

          7. Meg

            Great idea! Will definitely try that! Today I mixed it with some of his leftover canned food from when he was on a strict urinary diet because of kidney stones. He gobbled it right up! Hasn’t vomited all day! Yay!!! The powder amino plex has some of the same ingredients as the tablets but there is still some differences. I’ll keep you posted on how it goes with the powder. Thanks again for your help and suggestions!

          8. Darlene

            Meg, you mentioned your pup had kidney stones. Our Sparky had stones in his bladder in Feb and it was blocking him from peeing so he had an operation to remove them. I read that stones can reoccur so I looked up how to help prevent them. I always knew that cranberries were good for people with UTI and stone problems. I found Cranberry Comfort soft chews for dogs. Had very good reviews and our vet approved me giving it to him. Our Vet recommended giving him a potassium Citrate supplement. So I found by V.E.T. Pharmaceuticals K-CIT-V Cranberry Chewables. Also approved by our Vet. He gets these every day as a prevention. His operation cost over $3000 so I want to prevent a reoccuance. I got them both online thru Amazon. He loves both pills and thinks they’re treats! ❤️

  66. Stephanie

    We have a 10 year old Sheltie, who was diagnosed with HR recently,I’ve read all the comments and suggestions…..our problem is that our beautiful Sheltie refuses to drink or eat. We are using a syringe to feed him water and Vijo Recuperation. His paws are much better, rashes all gone, he just had his first IV infusion, no improvements, he remains very lathargic, sleeps all day, hasn’t urinated since the IV infusion, this past Friday., I don’t think we’re going to do a second. Like other pups, he is always with us and doesn’t like to be away from us. We also have a second Sheltie the same age, had them both since they were eight weeks old, they are totally inseparable. Quality of Life for us is very important but, it’s so hard when he still responds when you call out his name. The Vet keeps telling us that HS is terminal….we get it, we just want him to pass on his on terms, with us, at home. Any advise is welcomed…..

    Reply
    1. Jamiegoff Post author

      Stephanie, I am so very sorry you are going through this!! We all understand the frustration of having a dog who won’t eat…..I think we have all been there from time to time!

      My first suggestion would be IF he hasn’t peed since Friday, he is still dehydrated and needs more fluids.

      The other problem is his appetite. Hepatocutaneous dogs don’t want to eat and it becomes the biggest hurdle in trying to get amino acids into them!
      The one thing that seems to work for Zoe is ProMod, it is an amino acid liquid and you can order from Amazon. Kristin introduced us to it years ago and it seems to make a difference in Zoe’s appetite.

      I am happy to talk with you about everything if you’d like to call me: 205.296.2323. I wish you weren’t here, but we will try to help any way we can!!

      Reply
    2. Darlene

      Stephanie, we have all gone through this you are not alone. We have a Westie, Soarky that was diagnosed 2 yrs ago! Same thing wouldn’t eat or drink, very lethargic. As Jammie’s blog says “There is hope”! Some of our dogs have made it and unfortunately some have not. All you can do is the best you can. Our vet gave Sparky 8 months to live. He’s almost 100% and back to somewhat normal. It’s amazing and out vet who’s a specialist with livers and in a huge Pet Hospital says it’s a miracle how he’s bounced back and she’s taking notes!
      Most of Sparkys recovery we own to Jammie! I call her Sparkys Guardian Angel! First thing she’s going to tell you is to make Collagen. This is the key. ProMod is also very good. I’ve discontinued it a while ago cause he’s eating and it started him gaining weight.
      Sparkys on 15 pills a day! And no more dog food or processed food. We make him fish, turkey burgers and chicken. Occasionally a burger! Lots of raw veggies that he lives and organic Children’s Animal Crackers for treats! Costco brand we buy. Also eggs! These dogs need protein!
      Call Jammie she’s amazing and has helped us all.
      God Bless and Good luck. There is hope! Everything takes time so try and not get discouraged. ❤️

      Reply
  67. Jamie

    Hello,
    I’ve been reading all of these helpful and supportive comments. Today, my vet told me my 13 year old aussie shepherd mix, Cali, may have HS. She does not yet have paw crustiness but has open sores on her torso and elevated liver enzymes. Her skin has become extremely fragile. I am grateful to have stumbled upon this website and want to start a healthy liver diet right away. I am going to start slow. Even if Cali is diagnosed differently, the hope and love created here is beautiful. We all work so hard for our puppies. I read a quote not too long ago that said no matter how much I do for my dog, it will never compare to what she’s done for me. I find that to be entirely true. I will definitely return for more advice if that’s okay.

    Reply
    1. Jamiegoff Post author

      Jamie, I truly hope that Cali doesn’t have hepatocutaneous syndrome!! Just know that if she does, we will be here for you to share what has worked and what hasn’t! I’m always happy to share what we experienced the 3 last years of Zoe’s life! She taught me so much about the importance of food in our life and health!! Praying for you!

      Reply
      1. Jamie

        Thank you so much. I appreciate you responding. Even though this has been a very upsetting day, I’m so grateful to have found your blog. It’s comforting to know there are such nice people willing to help. I see the vet again next week. If it isn’t HS but it is a liver disease of some sort, I think this liver supportive diet is still worthwhile don’t you?

        Reply
        1. Jamiegoff Post author

          Yes, would give liver supporting supplements, as well….we use milk thistle, but you can use others as well….(denamarin contains milk thistle). I’m happy to help any way I can!!!! Blessings and prayers!!

          Reply
  68. Tarah

    Hi all!
    So we just received the news today that my little doggie nephew Terry has this disease. We are still at a loss as what to do and what is best as far as food. The vet is still in the dark about it as well, all I know is that my sister and her husband as well as myself and other sister will do whatever we can to help Terry live as much longer as possible. Our pups are our life and our loves, any tips will be greatly appreciated. Thank you so much.

    Tarah

    Reply
    1. Jamiegoff Post author

      Hi Tarah, I’m so sorry you have received This diagnosis!! Please take the time to review this blog from the beginning. (I am NOT a blogger!!)

      I do think that GOD miraculously provided the amino acid form through chicken stock, so that I could share with others who are devastated by this disease!

      I am happy to speak with your sister and/or your brother-in-law, with instructions of how to make chicken stock as well as what supplements that we used for Zoe for the 3 years post diagnosis that we had her!!

      My cell phone number is 205.296.2323, feel free to call me!! I am praying for ya’ll! Jamie

      Reply
      1. Jamie

        Hello,

        I am so sorry to hear that your doggie has this problem. I’ve read all of this blog and there are so many positive results shared with the chicken broth and supplements. I recently tried to make it over the weekend but it didn’t work. Jamie- can you tell me how you make it and what supplements you recommend? I appreciate all advice. My doggie also has hip issues and her legs are really weak. I’m not sure that she has much time left because of that but I still want to take the best possible care of her.

        Reply
        1. Jamiegoff Post author

          Jamie, please call me…..I’m happy to talk thru making the stock!! 205.296.2323. Leave a message if I can’t get the phone and I’ll call back!

          Reply
  69. Nancy Bianconi

    I have never been so impressed with a Fur Baby blog. The Chicken stock is something I going to do immediately. Thank all of you for genuine love for all of our fur babies. Bless you

    Reply
    1. Jamiegoff Post author

      Nancy, has your dog been diagnosed? If so, I would love to speak with you to let you know what worked for us!

      Reply
    2. Nancy Bianconi

      I have been making my dog chicken broth gel and in a few weeks he is back to his normal life….I just can’t believe it. Duke is 12 1/2 but always acted like a teenager…he now acts like a 30 year old. My vet cannot believe his improvement…will never stop giving him the chicken gel. The bag balm removed all of his crust off his feet in 4 applications. My boy would of died if it wasn’t for your blog…he was so ill that the dog internist said he had weeks to live. How much chicken gel should I be giving him per day? I run a large arts website in L.A. and my 70,000 monthly readers are dog lovers….anytime you would like to do an article or anything you like about dogs…just holler. Blessings to you for all the dogs and moms you have helped. Best Nancy

      Reply
      1. Jamiegoff Post author

        Nancy, thank you so much for your sweet comments!! It truly makes my day!! Thank you for sharing!!!

        Reply
        1. Darlene

          Dear Nancy,mum so happy for you and Duke! Our Sparky is also doing well on his regiment. How long has your Duke been with this disease and what does he weigh? Sparky’s a 21 lb Westie and had the disease over a year before we saw improvement. He’s niw over 2 years past his death sentence! We’ve been giving him about a 1/2 cup 3x a day. Are you feeding him regular food or people food and what if any supplements or vitamines are you giving him? It’s really something how quickly he responded to the collagen and bag balm. I’m so happy for you. Not many of us had such good results so fast and we’ve lost so many pups to this horrible disease. Keep up the good work and God Bless ❤️

          Reply
          1. Nancy Bianconi

            Hi Darlene,
            Duke is 47lbs and is a mix pitbull and lab. I give him Zinc, legames, and a special liver dog food that contains milk thistle and sam -e. I may start cooking for Duke instead of dog food but I have my hands full with the chicken broth. I have never cooked so it has been a challenge. I give him about 6 tablespoons a day but when I was giving him a little less he didn’t have diarrhea so I am going to reduce the amount I give him. Duke also has Atypical cushion’s disease for past 5 years and high blood pressure but fortunately, no signs for that. I took him off his blood pressure medicine and his low protein diet which my new doctor feels was part of his problem. I don’t want to put in writing what I would like to do with my former vet. I am seeing my vet tomorrow and will give an update. Tell Sparky that Duke sends his best

          2. Darlene

            Hi Nancy, cooking is no big deal. He eats better than me and my husband! Lol. If you belong to Costco we get him the already formed turkey burgers and Talapia fish. Although you can get this in any food Store just make sure there’s no extra stuff and no preservatives. Real easy to cook. We use Pan cooking spray and spray the pan and the meat or fish on the top side. I cut the fish in half n down the long side to cook faster. Turn as it Browns a little. It’s fast cooking time maybe 4-5 min.it done when it flakes apart. Turkey burgers take about 6 min each side n frozen about 8 min each side. These too I spray with Pam, both sides. You can cut in half for faster cooking. We also found a meatloaf mix on line that our Sparky loves called Gesorgies meatloaf.. It’s a lot of meat and veggies. It makes 5 loaves but lasts. He shows step for step how to make it and it lasts months frozen. Nice thing about that is all you have to do is defrost n it’s already made! Also he gets lots of veggies, raw or cooked. He prefers raw. Broccoli, sweet potatoes, celery, fresh string beans. Yogurts good too.
            If you need or want any help we are all here for each other! ❤️ You’re not alone. And yes, Vets know nothing about this disease. They think it’s a death sentence and for some pups it is.

          3. Nancy Bianconi

            Darlene, Thank you for your wisdom….I do go to Costco and will pick up the turkey burgers…Duke loves everything you mentioned especially when they are raw. Where do you live? I am from Los Angeles. Really appreciate your guidance. Nancy

          4. Darlene

            Hi Nancy, we live in Nee Jersey but our daughter lives in Burbank . We have lots of family in California. Actually we are supposed to go out there in May for our Grand daughters Communion but not sure if we can go. Mostly because of Sparky! No one to take care of him. We have a great boarding place but since all of this and now diabeties they charge for shots and all meds! $10 each shot and $10 for pills! So it’s $30 a day without boarding fee! And we’ve come a long way to keep him alive and being a normal dog again. If I get out to Ca I’d love to meet up with you. I might flip a coin with my husband! Lol! The turkey burgers and fish are in the frozen section. Also, our vet said no dog biscuits! Nothing processed! The dietitian said Costco kids animal crackers for treats! It’s a huge plastic container for like $8.99. Sparky loves them!

          5. Nancy Bianconi

            A long time ago I lived in Manhattan and Brooklyn. I live 6 minutes from Burbank. I live near and work in the NoHo Arts District. It would great to meet you. Going to Costco over the weekend.!

          6. Jamiegoff Post author

            Nancy, the foods that I use to control diarrhea are fruit pectin (like SureJell) or cooked lentils…..both do wonders to help with diarrhea. (pumpkin never helped us much). Also, make sure to give some form of either yogurt or sour cream, as it is very helpful to keep their “gut” healthy!

      2. Jamiegoff Post author

        Hi again, Nancy…..just realized you asked a question! I gave Zoe about 1/3 cup about 5 times a day. She weighed 47 lbs.

        How much does your guy weigh?

        Reply
        1. Nancy Bianconi

          Hi Jamie, I just want to make sure I understand how much broth I give to Duke who is also 47 lbs. It is a total of 1 and 2/3 cups of broth gelatin you give your baby daily…correct?

          Also, may I share your blog with my readers? Again my thanks Nancy

          Reply
          1. Jamiegoff Post author

            Yes, but I don’t think I started out with that much…..I gave about 2 tablespoons per time and gradually increased it, as too much will cause diarrhea. The key seems to be the frequency! In addition, giving omega fatty acids, diet high in protein and non-processed foods with liver support supplements (denamarin or milk thistle) seems to help.

            Also, don’t forget, this disease waxes and wanes, so enjoy the good time and remember that there will be ups and downs

            There isn’t anything you can do (that we know of now) to cure it and what the chicken stock does is deliver amino acids (since the disease is a deficiency of amino acids)

            Feel free to use anything that I have written…..I believe the disease is more prevalent than we realize, but is often misdiagnosed, so I think making others understand the importance of diet for sweet babies is paramount!

            Thank you again for letting us know your positive outcome! You have given hope to others!

  70. Darlene

    I too am sorry your baby has this. It’s a horrible disease. Our Sparky is living almost 3. Yres past his death date. Sorry to say that vets really know very little about this disease. They just say it’s fstile and usually only have about 8 months.
    Listen to Jamie and don’t start slow. Get started immediately on the chicken stock and supplements. These dogs need lots of protein and ammeno acids. Change your dogs diet too! No preservatives or reg dog food. We cook for Sparky every night. We alternate turkey burgers, fish, usually tilapia, and if you go on line find Georgie’s Meatloaf. Sparky loved this. It’s a lot to make but lasts for months frozen. Veggies! Sparky likes his raw. String beans, sweet potatoes, brocholi squash no peas . Don’t know why. Eggs. List goes on. We give him organic kids animal crackers for treats. No more dog biscuits. Milk thistle is a must for the liver! Get started as soon as you can. Out Sparky is a 10 yr old Westie, 21 lbs. he gets about 25 vitamines and supplements daily. We use pill pockets for some and try to get doggie chewabke pills. Good luck. We are all in this together and we’re all here to help you. we’ve all been thru this. Never hesitate to ask! ❤️

    Reply
  71. Leanne

    Jamie, my 8 year old Scottie, Duffy has been having all of these same symtoms. It wasn’t until a week and a half ago that we took him to the pet emergency with a distended abdomen full of fluid that we learned of liver condition. he started having issues with his paw first in early February which was misdiagnosed as an infection. Diagnosis has not been confirmed with biopsy but he did have an abdominal ultrasound last Tues. Everything pointed to the liver; however now all of his paws are affected with the crusties; we’ve been washing and soaking and we changed his diet immediately to homemade turkey rice oatmeal & vegetables. We definitely want to try the collagen and some eggs as well. I’d love to speak with you about the recipe.

    Reply
  72. Leanne

    Jamie, my 8 year old Scottie, Duffy has been having all of these same symtoms. It wasn’t until a week and a half ago that we took him to the pet emergency with a distended abdomen full of fluid that we learned of liver condition. he started having issues with his paw first in early February which was misdiagnosed as an infection. Diagnosis has not been confirmed with biopsy but he did have an abdominal ultrasound last Tues. Everything pointed to the liver; however now all of his paws are affected with the crusties; we’ve been washing and soaking and we changed his diet immediately to homemade turkey rice oatmeal & vegetables. We definitely want to try the collagen and some eggs as well. I’d love to speak with you about the recipe.

    Reply
  73. Leanne

    Jamie, thank you for all of your insight. the stock turned out beautifully and Duffy seems to enjoy the taste of it. unfortunately, he had another lesion break out on the side of his abdomen after being shaved for the ultrasound. we been applying the bag balm and now it has scabbed up looking like it’s drying out and ready to fall off. We are just trying to do all that we can for him knowing that there is no cure.

    Reply
    1. Jamiegoff Post author

      Thanks for the update, Leanne! Have you gotten the ProMod or other amino acid supplements? It took about 10 days to have the lesions around Zoe’s face and mouth go away, but about 4-6 weeks for her paws to resolve. Please continue to keep us posted!! Praying!!

      Reply
  74. Darlene

    This blog is a little messed up. I didn’t get to see the back and forth replies till I posted mine. I think I’ll be increasing Sparky’s collagen! I’ve noticed a little crust on his paws but it’s not bothering him as of yet. I think it’s super that you have such a blog that might help and inform others! ❤️

    Reply
  75. Darlene

    Hi Jammie, I was wondering if you gave Zoe any flea and tick treatments? We were using Frontline but our groomer said its not working anymore. Our vet doesn’t want Sparky to have any extra stuff. No rabies shots which I’m fine with cause Sparky’s never out without us and at night we take him out leashed. No limes shot, etc. I do worry about files and ticks. Last weekend I found one behind my ear! Sparky was with me in the garden and I checked him all over. Thank God he didn’t get one on him. I hate to keep him inside all summer. He loves being outside with us. And now that he’s better he wants to chase the ball and play.
    I hate fleas and worry about ticks and limes! Any suggestions? ❤️ Thanks

    Reply
    1. Jamiegoff Post author

      Hi Darlene, I didn’t use anything with Zoe….but she was more of an inside girl. (She thought she was a little princess, when actually we adopted her from the local humane shelter when she was a puppy ;))
      I’ve read about some holistic ways to treat. I will say the only thing I did was bathe her with Dawn dishwashing soap intermittently….think I remember that it has something in it that repels fleas. Hope this helps!

      Reply
      1. Darlene

        Thanks Jammie, Sparky too is very spoiled! We got him at a breeder one month after our other Westie, Princess passed. Originally priced $2500! Marked down with his brother to $1800. We wanted another Westie and by chance I just stopped in to see if she had anything. We didn’t have the money right then but I just stopped in to look. I told her it was too much and got in the car. She followed me to the car holding him and said would you take him for $800! The bargain dog! I told her I’d think about it. I had no intention of getting a dog without Harry. We went back the next day and financed him! Best decision we ever made!
        Our vet said no poison on him. But he wants to be with me. Always follows me! He usually loves being in the screen house which is a little safer. But if he’s not out there with me he barks till he’s hoarse! Treating him for flies or ticks could be a bigger problem especially with limes or heart worms. He lays on a cot but that’s not much help. I’ll check out what’s out there for holistic on line. Thanks. I’ll let you know how it goes. ❤️❤️

        Reply
        1. Jamiegoff Post author

          That’s a great story!! I asked another group I belong to (that is totally about treating animals holistically). This is what one person just said:
          I use organic raw apple cider vinegar in their food along with coconut oil and various immune boosting herbs. I also make a mixture of ACV and herbs in a spray bottle to spray for added protection when I feel it’s needed like going out for a walk in the woods or to an area Im not sure has fleas or not. I havent had fleas in 15 years and I do not use pesticides or herbicides in my yard. Ticks can be a problem here and I use Rose Geranium oil for that. I personally have never used Wondercide but many people I know swear by it

          Reply
  76. Nancy Bianconi

    Duke has recently lost his appetite and hates the vet subscribed dog food. He is loosing weight so I decided to take all of your advice and am now cooking for Duke. Duke is on Derian but what other supplements should I be giving him and how much of it should I be giving him? Thank you all for your wonderful help. Nancy

    Reply
  77. Nancy Bianconi

    I read everything on the internet about treating hepatocutanious syndrome and all of the suggestions from the members of this blog but Duke has become so lifeless….sleeps all day and drinking lots more water than usual. He used to have a great appetite but now refuses to eat his egg yolks and veggies but fortunately does eat some of Georgies meatloaf still. 1 week ago he was acting like a puppy. I just want to make sure I am doing everything I possible can to keep up the quality of his life. Any suggestions???????

    Reply
    1. Darlene

      Nancy do you have an email address i can send you Sparky’s regiment of what I give him. My email is dollyandharry@aol.com. Try and give hi as much ameno acids and protein as possible. Is he taking the collagen several time a day? Sparky did the same thing. Slept constantly and not interested in anything. How about the crusty stuff? Does he have a lot! I’ll help you if I can. Have you had him tested for diabeties? Common w this disease.

      Reply
      1. Nancy Bianconi

        my email is nancy@nohoartsdistrict.com. Here is Duke’s regiment:
        1 1/2 tablespoons of collagen 3 or 4 times a day
        Georgie’s meatloaf 3 x a day or chicken or tapida fish
        raw brocoli or cauliflower

        His feet are good since I found out from the blog to use bag balm…no problems with his walking. I have not had him tested for diabetes…scared to do so.

        Reply
        1. Diana

          He could be gassy from the cauliflower and broccoli. Try just green beans for awhile. You can give an antacid but not tums or pepcid. I get the target generic famotidine only.

          Reply
          1. Darlene

            No don’t be scared about diabeties. Be scared if he has it and you don’t know. Spsrky had is for about 6 months now. Is Duke peeling in the house? Drinking lots of water I
            Could be a sign. Giving the needles seems scary at first. Soarky doesn’t even flinch when we administer the stuff. It’s real easy. What’s hard is getting the right dose. Get him checked. It’s no big deal. You don’t want seizures or him to go into schock.
            So your not really giving him any supplements? I’ll emai you what we give Sparky. It starts out expensive cause you have to get all at once. But it’s not so bad cause they last a while and I buy them little at a time now when we run out of something.
            String beans are good as is sweet potatoes, cooked or raw, Sparky loves raw.
            I’ll email you.
            Has he had any blood work? Sparky’s numbers were through the roof! It took a while like almost a year but now they’re in the normal range.
            I’ll help you the best I can and I hope Duke gets better ❤️

          2. Diana

            Pepcid has a lot of other minerals that may not be good for the dog. Especially if the dog has several other issues. My vet steered me clear of both pepcid and tums.

        2. Joni Davis

          Hi, what is the recipe for Georgie’s meatloaf. I’m having a hard time finding the directions for what to do exactly.

          Reply
  78. Nancy Bianconi

    I took Duke to the Vet today because he had completely stopped eating and when he drank water he would throw that up. The Vet diagnosed him with with raging diabetes. Being he was 12 1/2 years old and terribly frail, we decided to end his life. I am devastated and heartbroken and I pray that my boy is happy now and I will see him in Heaven. My Vet couldn’t believe how well he did on the chicken collagen and bag balm for his feet and will tell his other patient’s parents…one saving grace. Your wonderful blog will continue to help other furry babies live longer with SND. Love Nancy

    Reply
    1. Diana

      Nancy, I’m terribly sorry for your loss. Losing a family member is very painful and heartbreaking. I pray the memories you have of duke will help ease your pain. Diana

      Reply
    2. Darlene

      OMG! Nancy I’m am so sorry. That was truly a schock ! Be assured you did the right thing and he’s looking down at you lovingly and waiting for you at the pearly gates! God Bkess ❤️

      Reply
          1. Meg

            I am so sorry for your loss! Be patient for your sign … He’s probably busy taking in all those new smells and enjoying his perfect health!! ❤️ It will come! Keeping you in my thoughts and prayers!!

            Meg

          2. Leanne

            Nancy, I am sorry about you losing Duke and having to make that decision. Find comfort in that you were not selfish and you gave him eternal life without disease now. You WILL see him again one day. Thoughts and prayers. -Leanne

          3. Darlene

            Nancy, you just have to have faith that you will see him again! God Is good ❤️
            I know I’m going to be bombarded with al our past dogs and for those to come. Just have to have faith!
            I hope I made you laugh! ❤️ Time heals all wounds❤️

    3. Jamiegoff Post author

      Nancy, I’m so very, very sorry!!! I’m praying for you!! May you feel God’s peace around you, may HIS grace envelope you. You know that Duke doesn’t have any more suffering now and I hope that you find comfort in that!

      Reply
      1. Nancy Bianconi

        Thank you, Jamie for reminding me to remember that now Duke is not suffering and that is most important. I just feel such and loss and miss him so very much. Please pray that I will get a sign that Duke is happy waiting for me in heaven. Nancy

        Reply
  79. Georgia

    Hello Jamie,
    Our baby, Gwen, was diagnosed with this horrible disorder today. Our world has come crashing down. We are beyond devastated. Gwen is a Shintese (Shih Tzu and Maltese mix). She’s approx 18 lbs. and is almost 9 years old. She was perfectly fine up until 3 weeks ago. Almost overnight she became lethargic, had a loss of appetite, started licking her paws excessively and shedding. She developed crusting on her paws over the last 2 days. We’ve been in the vets office nearly 3 times each week. He drew her bloods 3 weeks ago and she had slightly elevated liver enzymes at that time. Everything else was normal. First he said she had a virus. We kept going back to the vet. He then said she has back pain. Then he said Gwen suffers from severe allergies. She then developed an infection on her paw from licking. Although her appetite improved and she seemed a bit better, we just felt that something was not right. Today, we brought her to another vet for a second opinion. He drew her bloods which showed elevated liver enzymes again. The doctor then did a sonogram which showed the honeycomb patter on her liver. Her paws have gotten worse. They scheduled her for a skin biopsy tomorrow morning although they are fairly confident she has hepatocutaneous syndrome. The doctors are not very encouraging. I’ve been online all afternoon and evening and have been discouraged by all the literature until I came across your blog. You have given us hope!! We want to immediately change her diet and start her on the vitamins and chicken stock. Could you please tell me the recipe and what dosage you recommend for our Gwen? THANK YOU!! You and all the others on this blog have given our family hope that God will not take Gwen away from us so soon. We are praying ….

    Reply
    1. Meg

      Jamie is a God send! My Simmy made it almost another year by following diet changes. In the end it was his old age that caught up with him, not the HCS. There is hope! The supplements help. I’m sure Jamie will fill you in on everything as she so selflessly does anytime there is someone else that has a fur any with this disease. It’s work but it is so nice to have extra time!!!! Keeping you in my thoughts and prayers!!

      Reply
      1. Leanne

        Georgia,
        The information that Jamie and the others on this site have helped my little Duffy tremendously. He is going on his 3rd month since his diagnosis and what has really helped him is the change in diet, the stock, the supplements and the bag balm for his paws to soften the crust and comes off easy. We bought the Bag Balm at Walgreens, after washing his paws each night, we apply it, wrap with a paper towel to absorb the excess oil, then put on infant crew socks (to keep him from licking) secured with a Velcro strap, then fold the sock over the strap. He was able to walk around more comfortably. We used booties (bought at PetSmart) for outside to keep socks dry. The vet even thought our sock booties were quite crafty. We just finished 4th amino infusion, which sort of helped. He’s doing pretty good, hanging in there enjoying life a little slower now. Will keep you & Gwen in our prayers!
        -Leanne

        Reply
        1. Darlene

          Hi Georgia, I’m sorry I havnt called you. I have been thinking of you and how Gwen is doing. I’m hoping to call you soon. It’s been a hectic couple of weeks with my back. I’m now scheduled for surgery June 27 and trying to get so much done before I’m laid up. That’s no excuse for not callin you.i hope Gwens doing better. As I’ve said before it takes time to get them on the right track and it’s not overnight. Is there a good time to call you? ❤️❤️ Darlene

          Reply
  80. Georgia

    Hello Meg. Leanne and Darlene,
    Thank you ALL for your responses!! This syndrome has really knocked Gwen out! We decided to try the amino infusions. She had her first one last Thursday. It seems like she is responding to it, although her progress seems to be very slow. We are planning on doing another one next week. I’m praying her lesions heal! and her paws!!! Up until last week she was eating Jamie’s broth and taking all her supplements and meds. All of a sudden, she won’t eat any broth nor eat anything with medication in it. She won’t even eat the pill pocket which she always loved. When giving her straight food with no supplements, liquids, broth, etc., she eats it. But i know she needs the meds and the broth!! Any suggestions?? The only thing I am able to give her is the amino acid pills in doggie yogurt. I open the capsules and mix it it. She seems to enjoy it for now. Since she still won’t eat the broth, what suggestions do you ladies have for how many amino pills and/or procel pills I should be giving her? I’m trying to give her the basics: the denimartin pill, zinc, amino acid capsules and procel (mixed in the frozen doggie yogurt) along with 1-2 eggs a day and her 2 meals (Gwens almost 9 years old and weights 18 lbs). I am planning on re-introducing the broth this week but afraid she still won’t eat it. Thanks again for everyone’s good wishes. Meg -So happy to hear Simmy lived another year with the supplements! Leanne -Good luck to Duffy!! Please keep me posted. Darlene, I’ve been thinking of you too!! I’m glad you scheduled your surgery. Good luck with everything! Please call me whenever you want! Praying for all of our doggie babies! xo

    Reply
    1. Meg

      To be honest, the Denamarin really upset Simmy’s stomach. My vet had me give Pepcid AC daily and that seemed to help. I washed his paws nightly in the chlorhexidine and then hopped on Dermapaw (you can find it online). It works great..smells better…and he was less likely to try to lick his paws. It is a little pricey….around $24.
      Simmy had ups and downs with the nausea/not eating. The Pecid helped and I always kept
      Some Cirinia (spelling?) on hand. It’s a Rx from the vet but I’ve seen it on Amazon and other dog supply sites. My vet will match prices so if I found it cheaper online I just printed the website page and they would honor the cheaper price.
      Keep us posted on Gwen’s progress!!

      Reply
    2. Jamiegoff Post author

      Hi Georgia, did you get the ProMod? That is what many of us have used when our baby’s appetite took a turn for the worst…..it made ALL the difference in Zoe’s appetite. Kristen found it and shared it with the rest of us! It’s so frustrating because the disease makes them not want to eat and then it’s a just an awful cycle!

      Reply
  81. jennifer barnes

    Hello~ I am a New Jersey person with a dog with this disease. I spoke to Jamie for the first time today and she told me there are quite a few of us out there. My shih tzu Kirby was diagnosed this past December. I am wanting to connect with others! He is on a homeopathic diet and denamarin, Ursidiol, antibiotic (temporarily) and a bunch of supplements and now I will be making the chicken stock.He also eats an egg a day. I am using a very sweet vet here in Manalapan who researches for me. However, I would like to talk to everyone !

    Reply
    1. Jamiegoff Post author

      Jennifer, I’m so sorry! The last week has been a really bad week with several dogs lost to this disease……please don’t give up hope and please call me back to talk though anything!!! I want to help in any way I can!!!

      Reply
  82. jennifer barnes

    Hello! My dog also is suffering from this disease. I would love to share thoughts. My shih tzu Kirby is 10 and we were diagnosed this past December after almost a year of not knowing what was wrong. He is on a homeopathic diet and Denamarin, Ursidiol, antibiotic (intermittently) and many supplements. He is doing ok! He also had irritable bowel his whole life and for that we take Ultra Inflam. His appetite is good but many times I hand feed him. We also have 1 egg a day. I am happy to share thoughts. Sincerely, Jen
    (I live in Freehold NJ)

    Reply
  83. Leanne

    Hello Everyone. My sweet strong Duffy earned his wings and went to the Rainbow Bridge this past Monday. He is now free of illness, lesions, sore paws, etc. He was a trooper from February until his final day. We needed a few days to cope with the loss and are still coping but I wanted to share with you all. You have all been so helpful to us these past months in dealing with this despicable illness.

    I have lots of ‘supplies’ that I would like to donate to the cause in Duffy’s name, including Denamarin for medium sized dog. If interested, please send me an email to lcastel767@gmail.com.

    Sending hugs to you all! – Duffy’s Mom Leanne

    Reply
    1. Jamiegoff Post author

      Leanne, I’m so very, very sorry!! It’s been a really tough week for hepatocutaneous dogs!! I just love to think they they are now all running and playing together…..maybe they are sharing how much their earthly “parents” loved them and cared for them!!
      I’m praying for you, Leanne! Just know that you did everything you could do to make Duffy’s life better!!

      Reply
    2. Nancy Bianconi

      My boy, Duke died 35 days ago and the pain is still there but the wave pounding sorrow comes less frequent. MY prayer for all of us is that we join our fur babies in heaven when it is our time to pass on. Duffy has lots of dog friends in heaven. My Best, Nancy

      Reply
    3. Meg

      Leanne, I am so sorry! It is always so tough! I had a dog named Duff when I was a kid and guess what? He would have been 40 yrs old last Monday!!! Maybe that’s a sign from your Duffy that all the Duffs are happy and healthy at the Rainbow Bridge! Keeping you in my thoughts and prayers.

      Meg

      Reply
      1. Darlene

        Leanne, my heart goes out to you. I am so sorry. You were the perfect Mommy taking such good care of Duffy. Such a sweet baby now running pain free. I wish there was something I could say to make this time better for you. I just know God has a special place in heaven for all our pups with this horrible disease. And yes, this has been a very bad week loosing 3 at once. I wish I had a magic wand but we do the best we can do to help them be more comfortable till that time comes.
        God Bless my thoughts and prayers are with you and your family ❤️❤️
        Rest in Peace dear Duffy ❤️❤️❤️

        Reply
  84. Darlene

    Dear Nancy, I am so sorry for you loosing Duke and I can understand you’re waiting to announce it. Duke was a beautiful fur baby and you too took such good care of him. It’s so draining but rewarding taking care of them to make them feel comfortable and loved. My heart and prayers are with you and your family
    God Bless may his memory live with you forever. Rest in Peace dear Duke ❤️❤️

    Reply
  85. Donna Fedukowski

    I have some questions especially for Jamie.
    We just found out that our 7 year old Golden Retriever has hepatocutaneous syndrome as a result of ingesting slug bait twice (coming very close to dying the last time). After reading through your site I am considering the following regime:
    4 meals a day: Fish 2-3 x’s a week and Chicken, turkey (no beef or processed food-hard on liver) no organ meat too much copper. Ratio is 2/3 of potato mix with 1/3 of chicken . Season with mixed Italian Herbs or fresh parsely, salt and pepper. Chopped carrots and green beans ( both cooked) can be added. Yellow squash can also be added. Raw broccoli, raw sweet potato can be added.

    1 raw egg yoke 3 x a day (raw egg whites inhibit biotin absorbtion but are fine cooked)
    Yogurt/cottage cheese (without salt) once a day
    1/3 c. chicken stock (that makes a jell) 3 x a day ( To make just barely cover the bones with water. Cook overnight in slow cooker, 8-12 hrs. I put 2 Tablespoons of Apple Cider vinegar in the water . It helps break down the bones or/and collagen wafers, a chewable pill by NeoCell collag called ArthoPet.
    DAILY SUPPLEMENTS:
    1) 2 caps of Thorne Hepagen-C for Dogs;
    Each capsule contains:
    Silybum marianum (milk thistle) – 50 mg.
    Curcumin Phytosome (Curcuma longa extract) (CurcuVET®) – 50 mg.
    Dimethylglycine (DMG) – 50 mg. DMG is a derivative of glycine, the simplest amino acid. It is a building block for many importance substances, including methionine and choline.
    Vitamin B6 (Pyridoxal 5’phosphate) – 5 mg.
    Vitamin B12 (Cyanocobalamin) – 50 mcg.
    Methionine – 100 mg.
    N-Acetyl-L-Cysteine – 100 mg.
    Alpha-Lipoic Acid – 10 mg.
    Other Ingredients: Hypromellose capsule, Leucine, Alaska pollock flavoring (dried skins) and Silicon Dioxide..
    2) 200U of Vit E (60 lb. dog) 3) C? 4) 10 mg Zinc daily
    Omega 3 capsules 2 x a day, DermCaps or EFA Caps
    Do you have any suggestions for changes or improvements?
    I have the following questions:
    1. Should vegetables ideally be given well cooked, lightly steamed, or raw?
    2. Do I give collagen wafer and chicken broth collagen or can I do one or the other?
    3. Diamond makes a no-grain fish/sweet potato dried dog food. Is this too processed to use? Is EVO dogfood processed?
    4. Is white or brown rice better? Is flax meal a good addition?
    5. Can you give a child’s vitamin or 1/3 of a human vitamin if it has some copper?
    6. How much apple cider vinegar and what herbs do you use to keep away the fleas?
    7. Do I need to give amino acid tablets in addition to egg yokes and chicken?
    8. How much vit. C should I give. (I read it can be harmful.)
    9. Is fish oil a good idea since oil in general seems bad?

    Reply
    1. Jamiegoff Post author

      I’m so very, very sorry!!! I have copied and pasted you comments below, so I can hopefully get all your questions 😉

      First of all, I would love to talk with you…..it’s just easier to talk about the process (especially making chicken stock!). 205.296.2323

      I have some questions especially for Jamie.
      We just found out that our 7 year old Golden Retriever has hepatocutaneous syndrome as a result of ingesting slug bait twice (coming very close to dying the last time). After reading through your site I am considering the following regime:
      4 meals a day: Fish 2-3 x’s a week and Chicken, turkey (no beef or processed food-hard on liver) no organ meat too much copper. Ratio is 2/3 of potato mix with 1/3 of chicken . Season with mixed Italian Herbs or fresh parsely, salt and pepper. Chopped carrots and green beans ( both cooked) can be added. Yellow squash can also be added. Raw broccoli, raw sweet potato can be added.
      1 raw egg yoke 3 x a day (raw egg whites inhibit biotin absorbtion but are fine cooked).Yogurt/cottage cheese (without salt) once a day
      1/3 c. chicken stock (that makes a jell) 3 x a day ( To make just barely cover the bones with water. Cook overnight in slow cooker, 8-12 hrs. I put 2 Tablespoons of Apple Cider vinegar in the water . It helps break down the bones or/and collagen wafers, a chewable pill by NeoCell collag called ArthoPet.
      DAILY SUPPLEMENTS:
      1) 2 caps of Thorne Hepagen-C for Dogs;
      Each capsule contains:
      Silybum marianum (milk thistle) – 50 mg.

      I used 250mg of milk thistle twice a day. (For a total of 500mg per day)

      Curcumin Phytosome (Curcuma longa extract) (CurcuVET®) – 50 mg.

      I wouldn’t give commercial made curcumin, but rather turmeric given with meals start with 1/2 tsp. and increase to 1 tsp twice a day. Consider Turmeric User Group on Facebook for other ideas about giving turmeric or curcumin!!

      Dimethylglycine (DMG) – 50 mg. DMG is a derivative of glycine, the simplest amino acid. It is a building block for many importance substances, including methionine and choline.
      Vitamin B6 (Pyridoxal 5’phosphate) – 5 mg.
      Vitamin B12 (Cyanocobalamin) – 50 mcg.
      Methionine – 100 mg.
      N-Acetyl-L-Cysteine – 100 mg.

      Alpha-Lipoic Acid – 10 mg. (we used 50mg) twice a day

      Other Ingredients: Hypromellose capsule, Leucine, Alaska pollock flavoring (dried skins) and Silicon Dioxide..
      2) 200U of Vit E (60 lb. dog) Use caution and make certain you use the correct type of vit e…..consider only giving 3 times a week
      3) C?

      4) 10 mg Zinc daily.
      Omega 3 capsules 2 x a day, DermCaps or EFA Caps
      Do you have any suggestions for changes or improvements?
      I have the following questions:
      1. Should vegetables ideally be given well cooked, lightly steamed, or raw?

      I cooked Zoe’s veggies, (steamed, except for sweet potatoes, which I boiled) also……gave her beets raw

      2. Do I give collagen wafer and chicken broth collagen or can I do one or the other?

      I gave procell capsules, plus ProMod plus chicken stock 5 times a day. (Frequency of chicken stock is EXTREMELY important!! Zoe weighed 47 pounds, so you might want to increase stock gradually to a bit more

      3. Diamond makes a no-grain fish/sweet potato dried dog food. Is this too processed to use? Is EVO dogfood processed?

      We chose to only homemade food and after discussing with Dr. Dodds, we felt it was the absolute best decision to protect her liver to give it a chance to regenerate (which was evidently achieved really well, since her labs completely normalized with the diet and supplements ;))

      4. Is white or brown rice better? Is flax meal a good addition? We only used lentils as any sort of grain (mostly because they also helped with diarrhea, which lots of collagen can cause!!)

      5. Can you give a child’s vitamin or 1/3 of a human vitamin if it has some copper? We used poly-vi-sol with iron (for babies and children) as a supplement for her diet…..we also used Missing Link initially, but eventually just used poly-vi-sol

      6. How much apple cider vinegar and what herbs do you use to keep away the fleas? Garlic is great for flea control. Hank (90 lbs) gets about 1/2 – 1 clove per day.

      7. Do I need to give amino acid tablets in addition to egg yokes and chicken? Yes, we used all 3 (see question 2 above)

      8. How much vit. C should I give. (I read it can be harmful.). Zoe got 500 mg twice a day. Hank gets 2000 mg per day. I haven’t read anything other than diarrhea at extremely high doses. What have you read about its harmful effects?

      9. Is fish oil a good idea since oil in general seems bad? Please make sure to give Omega 3 fatty acids (these are fish oil)

      Call me! You have done a fabulous job of researching this disease! I’m praying for ya’ll and want to help any way I can!!
      Jamie

      Reply
  86. Donna Fedukowski

    Jamie, great talking to you. Here’s where I’m at with Amber. I am still researching supplementation, but I started right away with the 3 egg yokes a day, fish oil and trying to make the collagen broth. Mine is turning out runny but I’m giving her 2 cups a day. Since I talked to you, she is feeling much better. Her energy is so much better. The bare patches on her skin are actually starting to regrow hair! Her fur is feeling better but still quit pale looking. I didn’t tell you before but she also has two tumors. Those are staying the same. I am researching supplements carefully before I start. I have a big concern with PROMOD. I was wondering what you think. Because of the tumors and possible cancer, I’m especially concerned about the ingredient sodium benzoate. I read that it can become a carcinogen when combined with Vit. C. I also just read this warning on a site that seemed pretty reputable (http://www.organic-pet-digest.com/dog-dietary-supplements.html): Important: Make sure that your dog is not given a supplement that contains benzoate preservative. This is found in certain human supplements and vitamins and can be gradually harmful if accumulated in the dog’s body. Usually I’m thinking that warnings like that mean they tend to accumulate in the liver and harm the liver. Thanks again for giving me hope, direction, and encouragement and prayers!!!!

    Reply
    1. jamie

      I’m so happy to hear of some improvement!!! That is Very concerning about that ingredient in ProMod! I think it is very useful for a dog who won’t eat IF it improves their appetite, which it did with Zoe, but with tumors present, I agree….it would be risky to give!
      About the runny chicken stock, try decreasing the amount of liquid to bone ratio, so you have less liquid and more bones. Also, chicken feet are the absolute best for making firmer stock.
      Do continue to let us know about how she is doing! Praying for you (and all of our babies ;))

      Reply
  87. jennifer barnes

    hi! how much milk thistle do i give? my shih tzu is on denamarin and usidiol as well. he is 11pounds.
    thank you.

    also, any good foods to recommend? kirby is hungry and eating chicken but tired of my chicken/sweet potato/green bean/quinoa mixture. thanks !

    Reply
    1. Jamiegoff Post author

      Hi Jennifer, denamarin has both milk thistle (silybin) and SAMe in it, so you wouldn’t need to add milk thistle. (I only gave milk thistle and didn’t give Denamarin). It’s what I started with and with Zoe’s labs improving, I didn’t want to change a good thing ;))
      I would just keep giving what you are giving.
      As far as foods, you can try green, leafy veggies and beets…..Zoe got beets and turmeric, in addition to the other foods that are in Dr. Dodds liver cleansing diet. PLUS lots of Greek yogurt and sour cream. Hope this helps!!,

      Reply
      1. jennifer barnes

        thank you jamie! one more question. i really need to change up his diet. he is so finicky! now he gobbles up the chicken in pieces, but no longer wants it ground in the chopper and mixed together. did you use turkey or very lean (93/7) organic ground beef? i was thinking of making a patty with broccoli, carrots, and one of those. he is turning his head at his food unless it is exactly the texture and consistency that he wants.

        also, what about regular potatoes (seems kind of tired of sweet) and/or pasta? thank you. i also asked my vet.
        I understand about the milk thistle. he is on ursidiol and denamarin and my vet thought that was enough, but we weren’t sure. I read about Turmeric. I will buy some today. He has one pump of the fish oil (the free form) in liquid form a day. I am really trying! did your dog take a digestive enzyme? I want him to gain weight and it is very hard with this “healthy homemade diet” he gets very little fat.
        thank you so much.

        ***if anyone has some weight gaining ideas please let me know!

        Reply
        1. Jamiegoff Post author

          We only fed chicken or fish (didn’t really do much turkey and never gave beef). I read somewhere that liver disease dogs want the crunch of the food….not sure if that is true or not
          Yes, Zoe got FortiFlora once a day plus LOTS of sour cream and cottage cheese (all have active cultures in them for gut health). I would also say no on pasta, just non-processed real food!
          Don’t forget, homemade require MUCH more volume than kibble (I believe from Dr. Dodd’s comments that you should feed 1-1/2 times more “real food” than kibble. For example, Zoe got 1-1/2 cups of kibble and when completely switched, she got 2-1/4 cups of “real food”. Hank gets just over 3 cups twice a day (but he is also 90 pounds!!)
          Hope this helps! Let me know any other questions you may have!

          Reply
  88. jennifer barnes

    thank you! my shih tzu is eating almost 2 full cups of food a day plus a scrambled egg. he is barely 11 lbs. i am starting him back on his digestive enzyme. tonight he refused to try the greek yogurt ==he seemed to like it last week when i introduced it. i tried broccoli and regular potato, as well as a tiny amount of carrots. I am being very religious with the collagen! today was day 8 of the “gelled” broth. i am hoping his skin flakes will fall off soon and that he does not get any more.

    thank you for all of your support!!! i am sure i will have many more questions as things seem to change daily.
    and the chicken feet were the key –on my third batch that is what worked. about 15 chicken feet and a few thigh bones.

    Reply
      1. Darlene

        Jen, your doing a fantastic job trying to help Kirby. It is a hit and miss thing with the food. I told you one day they’ll love it and next day might be a different story! Frustrating, I know. Don’t you wish they could talk! Yogurt? Sparky loved it for a couple of days then stopped loving it! Now that he’s better he likes it again. Go figure!
        As Jannie said keep the questions coming.. No question is too dumb. We’ve been through it and I’m still going through it even thigh he’s better. I never know when things could change. Take each day one at a time. All you can do is pray for the best! ❤️ And you know you can text or call me anytime ❤️
        After my surgery next week and I’m on my feet again we’ll have to arrange a play date!

        Reply
  89. Donna Fedukowski

    Amber is continuing to do better. In response to the question above about feeding lean ground beef, I’ve read that beef and lamb are not a good idea when the liver is compromised. I understand that they can end up causing convulsions. Amber had convulsions but those have stopped now that she has only turkey, chicken and fish.

    Reply
    1. Jamiegoff Post author

      Wow! That’s very interesting! I know Dr. Dodds doesn’t like using those in the liver diet, but I had read about seizures! That’s for sharing!! I’m glad that ya’ll are doing better!!

      Reply
  90. Donna Fedukowski

    It was helpful to hear that these dogs need more home cooked food than the dry. Amber is getting 6 – 8 cups a day and she weighs 60 lbs. I feel like I’m feeding a teenage boy!

    Reply
    1. Jamiegoff Post author

      I agree! It is a LOT of food and work, but it is certainly worth the effort when it makes a difference ;))

      Reply
  91. jennifer barnes

    Hi All~
    Jamie, and Darlene, I was going to let you know that Kirby had his follow up ultrasound and his liver lesion shrunk from 3mm to 2mm (Jamie I know I told you this yesterday) now his bloodwork came back and the levels are almost all normal! This is great news. However, he had 3 bacterial skin infections and his antibiotic got rid of 2. He now has one resistant one and it is causing his white blood count to be a little higher than it should be. She wants to start him on Enrofloxacin (Jamie I know what you said and I asked her about that) because she doesn’t want this infection to causes sepsis or get worse–there aren’t many ways to fight Klebsiella bacteria. Anyone have any thoughts, because he is not himself and she said now it is due to the infection (since his liver levels and lesion are much better–it most likely isn’t that)
    I worry so much about antibiotics but not sure there is another way to attack this problem!

    Reply
  92. jennifer barnes

    Kirby began the antibiotic and we are keeping up with all of the supplements. Thank you Jamie, as always, for your support and advice! xo

    Reply
  93. jennifer barnes

    It appears that Kirby’s skin lesions are hardening and falling off, albeit slowly. He has lost a lot of fur too! Is this typical? Will he shed his coat and grow a new one? This is mostly the case on his legs and torso. His head still has hair, and his tail is coming back in. The collagen is really helping and we are being very aggressive, and using a syringe to make sure he gets his bone broth 4-5x a day. I usually mix in one of his supplements! He was hating his yummy homemade food b/c I kept medicating it. The vet told me not to do this. He would literally turn his head. Now, he loves his food again (especially Georgie meatloaf that I have modified) but I have to be creative with the supplements. Any ideas are very much appreciated.
    Jen

    Reply
  94. Donna Fedukowski

    Just wanted to pass on some more research. What do you think?
    I read the following about collagen: Types of Collagen:
    There are numerous types of collagen found in the body, but, there are 3 main types of dietary collagen found on the market (see: product comparison chart). When it comes to choosing a collagen supplement, you should first know what part of the body you want to benefit.
    1. Type I Collagen
    Comprises 90% of skin, hair, nails, organs, bone, ligaments.
    2. Type II Collagen
    Applies to cartilage.
    3. Type III Collagen
    Applies to fibrous protein in bone, cartilage, dentin, tendon, and other connective tissues.
    For skin and beauty (i.e. anti-aging), Type I Collagen is considered to be the best. Research in dermatology has shown that when Type I (overall body) collagen is increased, the results are visible in the skin. (see Collagen Supplement Studies below)
    Both of the types of collagen that I see mentioned on this blog (Anthro pet Neocell) and have only collagen type 2. I am giving Amber the following:

    Youtheory Collagen Advanced Formula features types 1, 2 and 3 collagen along with 18 amino acids. Collagen 1 and 3 are the main collagen types in connective tissue. With our body’s naturally occurring hyaluronic acid, Type 2 collagen is known to aid in joint cushioning and lubrication. Hyaluronic acid and collagen are vital structural components of the skin. This formula also helps promote stronger hair and nails.

    Reply
    1. Jamiegoff Post author

      Thanks, Donna!! I LOVE that you have taken the time to research and add from your experience! We also gave a Collagen supplement that has types I, II and III along with hyaluronic acid ;). (ProCell from New Spirit Naturals).

      Funny thing…..after all the years of giving Zoe chicken stock, I have recently started having it every morning for breakfast ;))). Never thought I could say that i am actually enjoying chicken stock ;))

      Reply
      1. Donna Fedukowski

        Oh good, I will look into that type of collagen. I love how we can all learn from each other to help our dogs.

        Reply
      2. jennifer barnes

        Hi all! Jamie, I was not familiar with that Collagen supplement. Do you think that we need it if all is going well? I did find it online. Also, just a note to all–we experienced such a bad skin infection as a secondary result of this disease. Even when the liver levels were normal, my shih tzu’s skin was covered with black “scabs”…we have discovered the Zymox products and are beyond happy with his improvement! Oral antibiotics were not getting rid of one form of bacteria on the skin, but the shampoo and leave on rinse have helped immensely. Wish I had found this sooner! My vet changed offices and I think they introduced her to it. It is available in certain stores and on line without a prescription.

        Reply
        1. Jamiegoff Post author

          Jen, thanks for letting us know about those products!! IF things are going well, not sure I would change anything….BUT keep in mind that IF things change, you might want to consider adding the collagen supplement ;))

          Reply
  95. Donna Fedukowski

    Oh, you guys probably already know this, but I just found out the hard way that ALL MILK THISTLE IS NOT CREATED EQUAL. I noticed that Amber was starting to go downhill and I couldn’t figure out why until I realized that for 3 weeks or so she had been on “full spectrum milk thistle” and I found out that “full spectrum milk thistle” is only about 6% silmarylin and these dogs need milk thistle that is standardized to contain 80% silmarylin. (I probably spelled that wrong, but you get the idea.)

    Reply
  96. Donna Fedukowski

    I’m thinking of using Zint instead of promod. Do I remember right that you said you used Zint? There are various types of protein supplement (soy, whey, collagen) Both promod and zint are collagen. That seems like the best for these dogs maybe?

    Reply
    1. Jamiegoff Post author

      Hi Donna, I’m not familiar with Zint, so I looked it up. Looks like it is similar to Great Lakes (which I did use initially). I may be looking at the wrong product….is it collagen?

      Reply
  97. Donna Fedukowski

    It is called Zint hydrolyzed collagen. I thought it might be similar to promod. Another question. I am still dealing with the set-back caused by giving Amber milk thistle that was full spectrum. In an effort to get her to turn around, I tried putting her on amino acid pills (8 a day), collagen pills (3 a day) and Sam-E (1 day). I note above that you mentioned that a dog doesn’t need milk thistle and Sam-E since Sam-E contains milk thistle. My concern is that Sam-E only contains 80 mg. of milk thistle. I’m worried about dropping her milk thistle from 450 mg down to 80 mg. Should I supplement maybe 300 mg. of milk thistle with the Sam-E/80 mg. milk thistle? That would bring the total milk thistle up to 380 or does the Sam-E mean you must reduce the milk thistle? Amber seems to be continuing to go downhill right now. I’m not sure what to do. At the same time that I gave her the full spectrum milk thistle, I also cut her eggs back from 21 a week to 16 a week. Should I bring the eggs back up to 21 a week? Is it safe to give a dog so many eggs? She weighs 65 lbs.

    Reply
    1. jamie

      Donna, I think you can also give some extra milk thistle (I gave Zoe 480mg a day and she was 47 lbs). Regarding eggs, I think at that weight, you can give an egg 3 times a day, so 21 sounds right.
      I’m sorry that you are having to deal with all this right now! Don’t forget it’s essentially an autoimmune disease and waxes and wanes, as a result!
      How offen and how much chicken stock are you giving and are you giving omega fatty acids?

      Reply
  98. Donna Fedukowski

    I’m giving her 2 capsules of fish oil a day for the omega fatty acids. Does that sound about right? What I’ve been doing with the chicken stock is that I cook 2 chickens twice a week in my crock pot or maybe 1 chicken and 2 breasts. I pull out the chicken and feed some of it to my family and put 6 cups of it in a bowl along with 2 cups white fish, 4 cups potato, 4 cups sweet potato, 8 cups of a mix of beets, celery, broccoli, squash and carrots. Then I add 8 raw egg yolks, (guess I’ll go to 10) and then cook the whites and add them. Then I add broth from the last batch that has jelled and had the fat trimmed off. It is usually about 1 1/2 quarts. I notice it is thicker broth when I use whole chickens than chicken breast. Then I add 2 1/2 t. tumeric (mixed with oil and black pepper made into a tumeric paste) and a cup of yogurt. This mixture of about 20 cups of food lasts me 3 1/2 days, allowing me a schedule of cooking all day every Tues and Friday.:) I divide her meals into 4 meals a day. She gets her Sam-E first thing in the morning, 1 hour before meals. Then with each meal she gets 1 collagen and 2 amino acid tablets. For breakfast and bedtime I add 150 mg. of milk thistle and 1 cap of fish oil. Also at bedtime she gets 1 ml. of poli vi sol, 1 tablespoon of brewers yeast. Wed. and Sat. evening she gets 2 crushed garlic cloves. (Even with the garlic and brewers yeast she still has some fleas.) When it gets here I will start adding the Zint collagen protein. So at 7 am. she gets Sam-E, 8 am. breakfast, 12:30 lunch, 5 supper, 9:30 bedtime meal. (I’m not always exact on these times). Maybe if that much broth is on the low side, I should give her 2 collagen tab. per meal instead of 1? (6 cups per 14 meals is a little less than 1/2 cup per meal).

    Reply
    1. Jamiegoff Post author

      It cut me off!! IF Zoe was delayed getting her stock, she would have a flare up 10 days later! We gave it every 4-5 hours while she was awake 😉

      Reply
  99. Donna Fedukowski

    Wow! These dogs are so fragile. I was reading that one of their problems is low levels of amino acids in their bloodstream. That would make sense then why timing is so critical. The blood levels need to be maintained through supplementation. Sounds like 1/3 to 1/2 c. every 4 1/2 hours is perfect, but I need to work on my delays. How much of a delay would affect Zoe? Could she tolerate 1 hr. delay, 2 hr. delay, 3 hr delay? I’ve been pretty relaxed about my timing so I want to understand how long a delay I can afford and how long a delay I need to avoid.

    Reply
    1. Jamiegoff Post author

      anything greater than 5 hours seemed to affect her (we did go 8 hours overnight), as we chose to actually get sleep…..but were diligent during waking hours!

      Reply
  100. Donna Fedukowski

    Okay, wow, I’ve really been probably going over 5 hours pretty often so I am definitely going to be more diligent on that and see if we can turn things back around!

    Reply
    1. Jamiegoff Post author

      It was like fitting a big puzzle together with Zoe to try and figure it what worked and what didn’t. Unfortunately, waiting 10 days to find out is always difficult!!!

      Reply
  101. Donna Fedukowski

    Did Zoe scratch and itch herself ALL the time or does that ever calm down? So did you keep a diary and just change one thing at a time to figure out what was working? Ha! I was going to give her one thing at a time and then I got so desperate for her to just get better that I started her on everything you guys had been doing!

    Reply
    1. Jamiegoff Post author

      She did scratch when she was having a “break-out”. We used Benadryl to help with that. Otherwise, she was just “normal”. I wish I could say that I made myself be very scientific and just changed one thing at a time, but quite honestly, when God gave me chicken stock, I also was already doing the ProCell capsules so I just added the stock to that…..I never stopped the collagen supplement, as I was afraid to! I honestly didn’t realize that the chicken stock was the reason she stopped having lesions until 6 months later when I stopped making stock and her lesions returned! Then I accidentally stopped Omega fatty acids (we used Snip-tips), her lesions returned! So the 3 crucial things (that I am aware of) were:
      Chicken stock at least every 5 hours during waking hours
      Collagen supplement (types I, II and III collagen) twice a day
      Omega fatty acids 1-1/2 times the “normal” dosing is what we did
      Her diet allowed for NO processed foods and milk thistle supplement to heal her liver
      ;)). We were beyond blessed (and still are with Hank!)

      Reply
  102. Donna Fedukowski

    So for Omega fatty acids I’m using fish oil. Is that right? 2 caps a day is normal, I guess, so would you up that to 3 capsules a day?

    Reply
    1. Jamiegoff Post author

      Ok, I see….perhaps specific to copper toxicity? (I gave Zoe Vit C throughout her 3 years with the disease)

      Reply
  103. donna Fedukowski

    Did Zoe’s hair turn white and also fall out? Amber now has very little fur on her tail and her back about 1/3 up from her tail. Also she is losing fur from the stomach up toward the chest. I also noticed that whenever she has had a “downturn” her hair starts turning white and getting stiff. When she has an upturn, soft healthy golden fur comes back inl

    Reply
    1. Jamiegoff Post author

      Wow Donna, that’s so weird!! Zoe didn’t have a change of color, but she did loose her hair and then it would come back. Does seem like a stress response, though!

      Reply
  104. Lee Gilbert

    Hello, Jamie:
    Thanks to your help and God’s grace, our Shih Tzu Murphy lasted 17 months past his diagnosis with hepatocutaneous syndrome, and most of it in pretty good health. The chicken stock and other supplements you advised of kept him viable until Procalamine amino acid infusions took their place. Eventually diabetes developed, and he became blind in late August, which really affected his quality of life. He could not overcome the ketoacidosis complication of diabetes. The hope you provided inspired us to do everything we could for him. He passed last Thursday peacefully in my arms in a compassionate, caring manner at the animal hospital which treated him. Murphy will always be a part of our hearts, as we await seeing him and crossing Rainbow Bridge together.

    Reply
    1. Jamie

      Lee and Marcia, I’m so very, very sorry for your loss!! I like to think that God has designed it so these dogs all get to meet each other at the bridge and play together in their new bodies, free of disease! Would love to see Zoe and Murphy running and playing together!

      I’m so sorry that you have had to go through all of this with 2 different dogs with HS, but without a doubt you did everything you could!!

      Continuing to pray for both of you! Many, many hugs!
      jamie

      Reply
      1. Leanne

        Lee & Marcia,
        I, too, am deeply sorry for your loss. Find comfort in the memories you made with your baby(ies) and in knowing that you did all you could to keep them comfortable for as long as possible. I am sure my Duffy has greeted Murphy at the rainbow bridge and I picture all of our babies running and playing together as they look down upon us. They are happy and healthy now.
        Warmest regards and hugs,
        Leanne

        Reply
  105. Jan Randle

    Jamie, our 10 year old Australian Shepherd was recently diagnosed with this disease. May I call you to learn how to make the collagen from turkey necks?

    Reply
  106. Darlene

    Unfortunately none of us live forever. Our beloved Sparky has passed on to doggie heaven. I’m still in a rehab hospital paralyzed from an operation on my back in June. Sparky came weekly to visit and I’ll be coming home this sat. Nothing more they can do. However they think in time it will get better n I’ll be walking again, God willing. I was able to come home for Thanksgiving and he seemed fine except for under his tail he lost half of his fur under his tail and it was black and scabbie. So at least I got to see him.
    Harry had his cousin-God child over last Sat the 26 to help him move furniture. Around 8:30 – 9. Harry went in our room to get him so he can have hus breakfast ans insulin. He was such a fighter lifted his head n put it back down like he wasn’t ready to get up. After 5 min Tara,his cousin said she’ll get him up. She went it the room and he wasn’t breathing. So he had a peaceful death and thank God Tara was there so Harry didn’t have to do this alone. Tara drove him the the vet. We’ll have him cremated and he’ll go on the book shelf in Harry’s office. Our house is going to be so lonely without our Sparky. But I have no regrets cause we did everything possible

    Reply
    1. Leanne

      Darlene,

      First of all I am so saddened to hear about Sparky. I am sorry for your loss You are absolutely right, you did everything possible and none of us live forever. He is happy now and without pain running with all of our other babies. My sincerest condolences and best wishes to you for a full and speedy recovery. Hugs….
      Leanne

      Reply
      1. Darlene

        Thank you Leanne for your kind words. My poor husband Harry said it’s to quiet in the house. I can’t wait to go home but it will be hard not having him great us at the door. Hope you have a wonderful Blessed Christmas. Darlene

        Reply
    2. Diana Compo

      Darlene, I was deeply saddened on hearing the loss of your beloved Sparky. Seems like we both joined the blog around the same time and learned all the things needed to help our furry friend live a good life despite having the awful disease. Sparky is now pain free and in a good place with all the others who have gone before him. It is so hard to lose our furry friends, but take comfort in all the good memories you have had with him. Again I’m so sorry for your loss.

      So sorry to hear about you and your back surgery. Good that you’re going home to try and recuperate. I pray you get your mobility back. My thoughts and prayers are with you and Harry.

      Diana

      Reply
      1. Darlene

        Thank you Diane for your kind words. Sparky was certainly a special sweet baby. Who’s going to be missed deaply. Hope you have a wonderful holiday ❤️

        Reply
    3. Jamiegoff Post author

      Darlene, I’m so very, very sorry! I’m sorry about Sparky but I KNOW ya’ll did absolutely everything possible for him!!! What a blessing that he got to go in his sleep! I used to pray for that with Zoe!
      I’m sorry that you are still in rehab and will continue to pray that you are able to recover FULLY!!! Prayers and HUGS!!!!

      Reply
      1. Darlene

        Jammie thank you for everything you’ve done for me, Sparky and all the other fur babies that have gone down this horrible road. You helped give your Sparky 3 1/2 years. Thank you.
        I’d. Also like to know if I can give anybody Sparkys pills.
        It’s so lonely without Sparky but I don’t have to tell you. Thank you again and God Bless you with a BlessedcChristmas❤️

        Reply
        1. Jan Randle

          Darlene, I’m new to the blog, but please accept my condolences over the loss of your Sparky. Losing one of our fur babies is so very, very hard, especially after what you personally have endured. I am so sorry and you are in my prayers.

          Reply
  107. Jan Randle

    I spoke to Jaime on Monday and she was a great help. However I’m having problems making the stock from turkey necks. I cannot get the bones to crush to release the collagen. I only cooked one in the crock pot as that was all I had thawed out. I didn’t have any apple cider vinegar, but went to the store yesterday and purchased some and put it in the crockpot after the neck had cooked on low for over 24 hours. I still can’t get the bones to crush. What am I doing wrong? My poor baby, Tessi, now has the skin torn off one of her pads. I really need to get some collagen in her. She’s not eating well. I ordered some ProMod yesterday. This morning she ate three fried eggs, a few bites of toast with peanut butter and a heaping tablespoon of yogurt. She is currently taking Keppra, Gabapentin and Cephalexin as well as S-Adenosyl Plus, which our vet says contains SAMe and milk thistle. Any help is truly appreciated.

    Reply
    1. Jamiegoff Post author

      Jan, are you saying you cooked one turkey neck in the crock pot? I used to cook about 3-5 lbs in the crockpot when I’ve made stock with turkey necks. Hope this helps!!

      Reply
      1. Jan Randle

        Yes, I only had one thawed at the time. How do you crush the bones? I will cook more, but need help crushing the bones. Any advice? Thanks in advance!!

        Reply
        1. Jamiegoff Post author

          With big turkey necks, you may not be able to crush them. IF you are only doing one neck, I would suggest no more than 3/4-1 cup of water. It won’t make but about 1/2 cup of stock, so I would do several pounds at a time (otherwise, it doesn’t make enough to be worth your time)

          Reply
          1. Jan Randle

            Thanks Jaime. I will cook a big batch tomorrow and not worry about the bones. Can I feed the turkey meat to Tessi?

  108. Jan Randle

    Tessi doesn’t like the ProMod at all! I tried mixing it in with some turkey and she turned her head. Wanted no part of it. So I guess we’ll have to use a syringe and squirt it down her throat. I hate to do that to her. I also tried it with eggs and got the same turning of the head. She used to be so good at taking her pills in peanut butter, but that’s changing, too. I used to sing “peanut butter” and she’d come running into the kitchen for it. I am so glad my husband found this blog, as I see that most of you have had the same issues we are encountering. Plus, you all give us hope. Tessi seems to be going downhill, but I’m hopeful that we’ll see a turn around soon.

    Reply
    1. Jamiegoff Post author

      ProMod made a difference for Zoe with eating! Start slowly and work up, as it can cause diarrhea, if you give too much too quickly. (I think about 3 cc would be good to start). Have you tried using cottage cheese, sour cream or Greek yogurt?
      Meant to ask if you were able to get your chicken stock to gel?

      Reply
  109. Jan Randle.

    I will try giving her less. I tried giving her cottage cheese the other day and she wasn’t interested. She DID eat some plain yogurt one time. I will try that again. The turkey stock did gel! It didn’t make a lot, just one mason jar full. My husband cooked some turkey necks in the pressure cooker this afternoon. Hopefully it will make more gel. We need to check with the nearby butchering place to see if we can get chicken feet from them. I might try turkey necks and chicken feet in the same batch if we can find the feet. We are in a rural area here in Illinois so I know the butchering place will be very busy with deer right now, as this weekend was the second weekend of shotgun season. They may not have chicken feet right now, but it sure won’t hurt to check. We just finished washing and dressing Tessi’s paws. I can already tell a difference in three of them. The fourth one is pretty bad and sore, so it will take more time. We could tell, though, that she was a little peppier after we finished. It must have felt good! I also decided to put a gauze pad on the bottom of each paw, hoping that will keep most of the bag balm on her pads, not her socks. I can’t bear to lose her right now. My last sibling (5th of 5) passed away recently. I knew it would be hard, but didn’t anticipate this level of depression. Since we have no children, she means the world to us. I told my husband that the older I get, the harder it is to lose our four legged children.

    Reply
  110. Jan Randle.

    Hi! I just wanted to provide an update on Tessi. She is doing much better so I’m almost afraid to mention it for fear that I’ll jinx it. Her paws look so much better. She is walking better and even trotting some. We wash her paws almost every night, dry them and put Neosporin on the bad areas and bag balm on the rest. We put gauze pads on the bottom of her paws and tape the gauze. Then we put on her socks. She usually manages to get at least one sock off during the day. We’ve learned that if she heads for the bedroom chances are good that she’s going to be working on getting one of the socks off. She has destroyed at least two socks and two others have holes. It’s a good thing we love her so much!

    As soon as I get up in the morning I give her her tablet containing SAMe and milk thistle and a Keppra pill. I also give her the first dose of turkey stock and ProMod. After an hour, I fry her two eggs and mix it with turkey. I continue the stock and ProMod every 4-5 hours, except for when we’re sleeping. For dinner I giver her a mixture of either fish or turkey and cooked broccoli, carrots, white potatoes and sweet potatoes. She’s loving it so far. Before bed I try to get her to eat a raw egg yolk mixed with more turkey. I am planning on ordering some collagen wafers to add to her regimen. Does all of this sound okay?

    I’ve seen a few people mention the Georgie’s meatloaf. Where do I find the recipe for it, as I’d like to try it with Tessi! She is still taking Gabapentin and getting an aspirin twice daily, daily vitamins, hip and joint supplements, Snip Tips, and Brewer’s Yeast. We have had no problems with fleas over the last two years because of the Brewer’s Yeast. I have not given her heartworm medication since her diagnosis as I’m concerned that it might harm her liver.

    Last night I realized that we were almost out of stock, so I grabbed about four pounds of turkey necks from the freezer and defrosted them in the microwave. We cooked them in a pressure cooker and didn’t get near as much gel as we did from the previous batch. I don’t know if defrosting in the microwave was the culprit or what. I decided to throw the bones in the crockpot, cover them with water and add a couple of tablespoons of apple cider vinegar. I cooked them on low for about 17-18 hours and was able to crush a lot of the bones and cook for another hour. I don’t think it will gel, but it seems to have made some nice stock.

    I am not seeing any other comments on this blog, other than Jamie’s. Am I missing them or are others not commenting right now?

    Reply
  111. Terry Randle

    Yesterday was supposed to be the end of Tess’s life expectancy according to what we were told when Tess was diagnosed with a liver disease. We were about to lose hope when I came across this blog telling its readers to not lose hope. Since that time, Jan and I have followed the blog’s suggestion on treating Tess with an assortment of collagen (including from boiled turkey necks), other supplements at regular intervals during the day, and nightly treatment of her paws with Neosporin and bag balm.

    We just received the results of Tess’s blood work. Her albumin levels are now normal, her liver enzymes are stable (which weren’t terribly bad), and her liver function is showing signs of improvement. Her paw pads are also greatly improved. Our vet is very, very pleased.

    We are ecstatic and remain hopeful. Our only Christmas wish has come true! We will continue on with our treatments and hope to take Tess to an old age. We’re so thankful for this blog!

    We just wish Tess would stop destroying the special socks we buy for her!!

    Reply
      1. Joni Davis

        Jamie and Terry and all,

        My Sophie was diagnosed on Dec10th. At that point it was appox 4 months since the sores on her feet started. She is going in for her 3rd amino therapy tomorrow. We saw an improvement in her behavior right away, as she was more perky. After the 2nd even more. When I first heard about this therapy I thought it sounded horrible for the dog, but it was NOT at all!!! Which i’m so happy to know. I found a protein supplement called “Great Lakes Gelatin Collagen Joint Care” that is going down waaayyy better than the ProMod, which Sophie would not eat. This product is Collagen protein and comes from vertebrate of animals. It turns into gelatin and has a high protein quantity. It’s tasteless, so she’s eating it with no problem. I’m doing (based on all of your advice – thanks again so much!!!) Denamarin, added supplement of Milk thistle, Vit E, Zinc tablet, Omega 3s, 3 egg yolks and chicken or turkey meat. Sophie is not eating the vegetables but she’s getting so much to eat with the eggs etc that she’s getting pickier! (little poop!). Also my omega 3s taste like fish which she doesn’t seem to like.
        Questions:
        Is anyone adding Omega 6s?
        Any success adding Amino Acid Tablets?
        Has anyone found Omega3s in a pump with chicken or bacon flavor?

        Here is the link to Georgies Meatloaf, which I found by googling 😎
        https://www.youtube.com/watch?v=CFrXiuiplDE

        Link to collagen: http://www.greatlakesgelatin.com/consumer/

        Thanks for your help and support! I’m hoping that all our fur kids will make it as long as possible.

        Reply
        1. Jan Randle.

          Joni, thanks so much for posting the recipe for Georgie’s meatloaf. I can’t wait to try it. I’ll have to figure out how much to feed Tess, as she is considerably larger than Georgie! Right now she’s eating well. Fish, turkey, eggs, carrots, broccoli, green beans, squash and potatoes. She eats better than Terry and me! But that’s fine. I’ll gladly cook for her. She gets shredded wheat as a treat. We give her SAMe, milk thistle, collagen pills, Snip Tips, ProMod, Gabapentin, Keppra, vitamin, Brewer’s Yeast and chondroitin and glucosamine.

          Reply
      2. Terry Randle

        Thank you so much, Darlene. You gave us hope and life saving ideas. Where would we be without you? Thanks so much! Merry Christmas!

        Reply
        1. Terry Randle

          Sorry, I meant thank you so much, JAMIE. Darlene, you have also been an inspiration! Thanks Meg and Joni. Merry Christmas to all of you.

          Joni, we haven’t done the amino therapy, if you’re talking about the injections. We chose not to because of the cost and reported short term effects. We think the collagen from turkey neck stock and the bag balm have made the biggest difference. Good luck to you.

          Reply
          1. jamie

            Terry, it is a Collective Effort!!! The whole reason for the blog is to exchange information and I love it when others share what has worked (or not) for them!!! I’m just so happy that you are in a good spot right now…..the disease waxes and wanes, so there will be some bumps in the road! Praying for all!!! Merry Christmas!

          2. Jan Randle

            Well it appears we have encountered our first hiccup in Tess’ treatment. When washing her paws last night we saw that one pad was very, very red. Of course she tries to lick it to heal it. She is a sneaky little devil. She disappears into another room. When we find her she lifts up her head and gives us the “I’m not doing anything” look. We’re not overly concerned with the hiccup, as we knew we would have them. But we are trying to be diligent in getting her back on track. We recently traveled from IL to FL and Tess would not cooperate in taking her stock, so I’ve kind of been expecting this.

            Do any of you give your four legged kids rawhide bones? Tess loves them, but I’ve been leery of giving them to her.

          3. Jamiegoff Post author

            Hi Jan, hopefully, you’ll be able to continue with the chicken stock consistently now that the holidays are over! You can almost plan on getting lesions about 10 days after a decrease in the stock consumption! I am NOT a fan of rawhides!!! I have recently seen videos about how they are made and the chemicals used and I wouldn’t want any of my dogs to get them! We use real frozen bones instead ;)). Hope everything improves quickly!! Prayers!!!

          4. Jan Randle.

            Thanks, Jamie! We are back to consistently giving Tess her stock. One thing I’ve noticed, though, is that she doesn’t drink much water. Is this common or something we should be concerned about?

          5. Jamiegoff Post author

            Jan, once I started Zoe on her “real food diet”, she decreased the amount of water she drank. That’s true of dogs that have been switched from kibble to either cooked or raw, based on comparing notes with others on a few others ;))

          6. Jan Randle

            Whew! That’s a relief. I was afraid we were going to have another problem. Thanks so much, Jamie, for your knowledge and willingness to share. Hugs to Hank!

          7. Leanne

            Jan, we went through the same sneakiness with Duffy, our Scottie, and the paw licking. His paws were sensitive even to walking in the grass. So after we would wash the paws, we’d apply bag balm, the wrap a paper towel loosely around, then put on an infant crew sock, secured with medical tape at the top, with room to fold down the sock (to cover the tape). His Vet thought it was genius but also recommended some time without the socks. It seemed to help immensely so that he wouldn’t have to wear the cone of shame. There were a couple of times after being left alone I would find a random sock lying around and then find Duffy with a sock missing. The paw must’ve really been bothering him then.
            Just thought I would share that with you; maybe you are already doing something similar. -Leanne

          8. Jan Randle.

            Thanks, Leanne! We do the same. Wash the paws nightly, apply either Neosporin or Bag Balm, wrap the paw in gauze tape and put a sock on the paw. Our vet recommended a sock made by Woodrow Wear. They have the paw pads on the bottom so they are skid proof. However she has destroyed 13 of 16 socks, the little stinker! When she is doing well, she doesn’t bother the socks. We will then leave the socks off during the day. But when she feels the need to lick, she tears the socks up to get to her paws. But we love her dearly! She’s such a sweet girl. I’m concerned that she isn’t drinking much water, though. She was always such a sloppy drinker, slopping water everywhere. That’s how we know she isn’t drinking. There isn’t a wet area around the water bowl.

      3. Jan Randle.

        Thanks so much Jamie! We owe this to you and the other posters, but especially you. We would have had no idea of what to do. We probably would have lost her by now, which is something I can’t imagine at this time. How is Hank doing?

        Reply
        1. jamie

          Jan, thanks for asking about Hank! He is doing well! We have been truly blessed that he is still with us and continues to be completely asymptomatic!! I like to say he doesn’t know he has cancer ;))

          Reply
    1. Meg

      That is fantastic!! Give her extra kisses and treats this Christmas for all of us who will be missing our little fur babies! Keep the faith and enjoy every extra minute!!!

      Reply
      1. Jan Randle.

        Believe me, Meg, we are enjoying every moment we have with Tess, even when having to throw away 11 of 16 socks we’ve purchased for her! I’m so sorry for those who no longer have their fur babies. Terry and I both know that loss and truly feel for you all.

        Reply
    2. Darlene

      I’m so excited for you. Keep up the good work. Our Sparky lived over 3 years past his death date our vet gave him. It’s a lot of work but worth it So Happy for you! Merry Christmas ❤

      Reply
      1. Jan Randle.

        Thanks Darlene. It is a lot of work, but so worth it! I’m so glad Sparky had you for his mom. It was obvious how much you loved the little guy. How are you doing in your recovery? I pray that you are up and walking around. Hope you have a wonderful Christmas.

        Reply
      2. jamie

        Darlene, I’m so happy to see your name again!!! Are you home now? Many, many prayers for your recovery!! Merry Christmas!!!

        Reply
        1. Darlene

          Yes i got home dec 3 and it’s been hell. Still paralized from waist down. And I love Xmas and could t decorate in or out. Thank God Harry found the wreath for front door. I’m still in a lot of pain n event other day 2 therapists comes a home caretaker comes to wash me n change sheets. I can’t wak so I can’t go upstairs. We have a biLevel so kitchen and everything’s upstairs. We looked into a stair chair but it’s $13,000! And it doesn’t do bends so thank God our family room is huge and there’s a guest bedroom down here for Harry to be near me. Sparky passed the sat after Thanksgiving in his sleep. So this is horrible . But he lived over 3 years passed his death date. We miss him terribly but it would have been too much for Harry.
          Are you giving her milk thistle, omega 3 I found at Drs Foster and Smith. The container has a German SHEPHARD ON FRONT. If I can help in anyway just ask ❤ Merry Christmas

          Reply
  112. Kasey

    Hello everyone! Newbie here since my CKCS was diagnosed a couple of weeks ago. I took her in because I noticed the redness around her mouth and the pads of her feet looked like they were peeling. Vet originally thought it was an auto immune disorder but after the blood work and biopsy (feet) tests came back, this was the diagnosis. Her feet got better the next week but she has had another “outbreak” and doesn’t even like to walk or stand especially on hard surfaces. She is on 2 different antibiotics and 2 liver meds along with 1 SnipTip a day. She loves eggs and seems to be the only thing she wants to eat right now. I usually mix in regular dry food and add some chicken bone broth. We haven’t done any X-rays or scans and just trying to take it day by day. Vet has only seen 1 or 2 other cases so we are both trying to do research to figure out what to do. Can I put anything on her feet to help? They are red and painful. Any advice on this and anything else would be nice. I feel so bad for my sweet Lola. Had liver blood work done again last week and the numbers are way higher than they were 2 weeks prior.

    Reply
    1. Jamiegoff Post author

      Kasey, I’m so very sorry you are here! If you are in the U.S., please call me to discuss. 205.296.2323. Would love to talk with you about this! Praying for you and her!

      Reply
      1. Kasey

        Hi Jamie! Thank you, I will call you soon. Since she is only 14 lbs I wanted to know how much of each thing she needs.

        Reply
    2. Meg

      Hopefully, the remedies you’ll read about here will make a difference for your Lola! They made a huge difference inmy Simmy! It’s a commitment and sometimes a lot of work. It so worth it to have more time and more comfort for your precious furbaby! Simmy never liked the collagen stuff but all of the supplements really improved his condition. Some use bag balm on their dog’s feet but I really like Dermapaw. You can get it on Amazon I think or just google Dermapaw . It’s a little more expensive but it smells much better. You will find that multiple people will offer support and guidance!! Good luck!!

      Reply
        1. Meg

          Yes, I would wash Simmy’s feet in diluted chlorhexadine (bought a gallon of it on Amazon. would fill sink halfway up and put a splash of chlorhexadine in it….soak for about 4 min) then dry and apply the dermapaw or bag balm. I would put socks on him that would help to keep the balm on his feet and not track it all over the house. LOL. He loved the socks because he had traction on my wood floors. This would loosen up the scabs and make them easier to remove. Jamie can fill you in on all the supplements. She is a God send for sharing all this with all of us!

          Reply
    3. Diana compo

      Yes, your vet should have given you an antibiotic rinse for her feet if they are infected. Otherwise use the bag balm and wrap her feet. It gives her some cushion and keeps her from licking the balm off. Take some time to read the entire blog there are so many suggestions and ideas to give your fur baby.

      Reply
    4. Diana compo

      Kasey, use bag balm on the feet. It’s best to use the rinse, dry, put the bag balm on then wrap the feet. It seems to work miracles. Not sure what liver supplements your vet prescribed, but the dermatologist i saw said steroids only advance the disease. Jamie has laid out a very good regiment for dogs with this disease. You may have to go back aways in the articles but, it works. I stopped all commercial dry food, and concentrated on what would help the liver. Good luck.

      Reply
  113. Endy's mom

    Thank you all for contributing to this blog for years and your efforts have been extremely helpful. Endy is a 10 years old 30 pounds Cocker Spaniel who has been healthy and happy until last September 2016 right after Labor Day. It started out with all 4 paws with inflammation and was misdiagnosed as allergy for 3 months. By November 2016, he finally got the correct diagnose as Hepatocutaneous Syndrome at GCVS.
    After reading this blog, I have been able to implement most if not all of your experiences that help stabilize Endy’s condition in 3 months from November 15, 2016 thru February 15, 2017. He still has high ALT and increase in liver enzymes, doctor has ordered Endy to take Prednisone 10mg 1 tablet once daily to control his liver inflammation and to lower his elevated liver enzymes aka ALT.
    It has been a difficult journey in the past 6 months and this blog has been my support throughout.
    Thank you Jamiegoff and everyone with all the best wishes

    Reply
    1. Jamiegoff Post author

      I’m so very sorry you are here!! Are you only feeding real food and giving some sort of liver protection…..SamE, milk thistle or Denamarin? In everything I have read steroids are contraindicated in Hepatocutaneous. They cause Diabetes based on my reading (actually very common for these dogs to develop diabetes, regardless, but there seems to be a stronger tie in dogs who have gotten steroids). We gave Zoe insulin every day twice a day for the last couple of years of her life, so i would definitely ask again about this. (Is your vet an internal medicine vet?)

      Reply
    2. Wendy Tan

      Hi Endy’s mom, sorry to hear about your dog! I would echo Jamie’s concern though… my vet also did not want to prescribe Ben any steroids with this condition, even though it would probably have helped with his skin lesions… might be worth checking with your vet again?

      Reply
    3. Darlene

      So happy you found this blog. It was so helpful to us also. Our beloved Sparky an 11 yr old Westie lived 3 1/2 yrs past his death date. He past the Sat after Thanksgiving. I have no regrets because we did everything we could for him and he had a good quality to his life. He past in his sleep. It was just time. We miss I’m dearly.
      If there’s anything we can do don’t hesitate to ask any of us. I always said Jamie was Sparkys Guardian Angel!
      It’s a lot of work but worth it!
      Good luck and God Bless

      Reply
  114. Endy's mom

    Endy’s Daily Routine:
    Prednisone 10 mg
    Balance IT
    Chicken and Eggs and Veggies – Homecook
    Chicken or Turkey Stock – Homecook
    Chlorhexidine 4% shampoo
    Denamarin 225 mg and Pill Pocket
    Free Form Snip Tips
    Mupiricon for infection
    Marin Plus and Pill Pocket
    Merrick Chicken and Sweet Potato Dry
    Milk Bone 12 Vitamins and Minerals
    ProCel Protein Power
    THORNE Hepagen-C Geriatric Bio-Cardio Gastriplex
    Water

    Regarding the Prednisone 10 mg, I am just as concern as you all. I was told to give Endy the Prednisone 10 mg last month which I did not. Endy has improved so much in the past month with his eating, drinking, jumping, wagging, etc. His skin infection is 95% gone, and so is his scrap thanks to Bag Balm. Because of his increased ALT, dermatologist put him on Prednisone 10 mg to lower the inflammation which I did not start last month but I did in the past 3 days. I will make an appointment with internal medicine in the coming week and get a second opinion which the dermatologist has suggested. This journey has been overwhelming at times which is basically a trial and error to see what works what doesn’t. Thanks to this blog, I have started with all the information and headed the right direction.

    Reply
    1. Jamiegoff Post author

      I’m glad you are going to see an internist! We chose not to give Zoe anything that was “processed”, Including treats and no kibble. Because of her dramatic liver enzyme transformation, I think it worked!! Continuing to pray for you and him and know that we are all here for you!!!

      Reply
      1. Lisa

        I’d also agree with the prednisone comments. My vet initially prescribed steroids when we thought the foot lesions were caused by winter rock salt but once the results of the biopsy confirming HS came back he immediately called to tell me to stop them cold. He said that steroids were very hard on the liver and while they may make lesions lessen on the short term they could do irreversible damage to an already damaged and struggling liver making the lesions MUCH worse in a short time. Possibly worse, the liver may not be able to filter them out and the buildup of the steroids in my dog’s system could be even worse. I’d check with your internal medicine vet about them ASAP as they could cause a lot of harm in a short time. Fingers crossed for you and your pup!

        Reply
        1. Kasey

          What kind of veggies are you guys feeds I got your pups? How do you cook them? What’s the ratio of meat/eggs to veggies?

          Reply
          1. Jamiegoff Post author

            Kasey, I gave Zoe raw beets, VERY finely diced, steamed green beans (steamed about 3-4 min), then finely diced, boiled sweet potatoes (quartered them and boiled about 20 minutes, until soft). I could then just mash them up! Zoe took herself off of white potatoes once she became diabetic (white potatoes have a higher glycemic index than sweet potatoes, interestingly enough!!!). I used chicken but would intermittently feed Cod as a break from chicken, just to have some variety. If I think of anything else, I’ll post it, but think that was the veggies…..of course lots of chicken stock and eggs!! ;))

          2. Jamiegoff Post author

            Forgot to answer the ratio question: Dr. Dodds Liver Cleansing Diet was the one we based everything on and it calls for 1/4-1/3 veggies to 3/4-2/3 meat……we wound up using the 1/3 veggies to 2/3 meat ratio with Zoe

  115. Jan Randle.

    Jamie, I have a question. I am about to run out of ProMod. Like the goofball I am, I waited until now to order more and it is back ordered. Is there something else I can give Tess in the interim or will it hurt to not give it to her for a few days? She is doing pretty well, so I don’t want to cause any harm. Thanks.

    How is Mr. Hank doing?

    Reply
      1. Wendy Tan

        Hi! In my research, I read that Procell, Promod, Propass look to be essentially the same, just different trade names.

        Jan – I had actually ordered 2 cans of Procell from the US for my dog but unfortunately, it was too late for him… the two cans are still sitting in the US and I have not sent for them yet (i am in Hong Kong) – I am happy to have them forwarded to you if you like since it sounds like you need it quite quickly? If not, am happy to have this go to anyone else here who could use this….

        Reply
        1. Jan Randle.

          Wendy, that is such a generous offer. Thank you so much. However Tess’ ProMod came the very next day! I’m not sure why we were told we wouldn’t receive it until sometime between February 24-28. Hopefully someone else can use the ProCell. And I’m so sorry it was too late for your fur baby. That loss is so heartbreaking. I know we’ll lose Tess eventually, but I’m hoping she dies of old age and not the HS.

          Reply
        2. Endy's mom

          Wendy,
          I am sad that Ben didn’t make it. How are you dealing with your lost? We all know it is very difficult as we continue to fight one day at a time. Endy has been doing well like an eating machine, jumping, tail wagging, going to the park and daycare, etc. I have to cancel visiting my family in Hong Kong last November 2016 because of Endy’s illness. I won’t be going anywhere any time soon because Endy needs to be closely monitored and diligently administered with his daily regimen. I don’t know how long this will last but is grateful as he is responding well with the guidance of this blog. Thank you for your kindness and continue participation as your heart heals from your lost.

          Reply
  116. Monika

    We have a 11 year old 60 lb Finnish Lapphund mix (rescue), Hunter, who was diagnosed last October 2016. His decline was rapid but we have stabilized him and he is responding well. Here is what he eats four times per day. I mix his food fresh every day:
    1 cup bone broth (homemade or organic if I run short on time)
    1/2 c organic cooked ground turkey or chicken
    3/4 c boiled sweet potato
    1 cup Hill Prescriptive Liver diet kibble
    2 eggs
    1 scoop Premium Collagen Peptides and Amino Acids powder
    1 400 mg Vitamin E
    Zinc w/sulfide (vet prescribed)
    Ursodiol (1 per day)
    Denamarin (1 per day)

    He also gets his feet soaked in the Chlorhexidine solution 1X per day or his feet wiped down 2X per day with the Sogeval Douxo pads. He ALWAYS wears clean socks in the house, sometimes we take them off to let his feet breath a bit as well as he does not go outside without his socks and “shoes.” We ordered pet boots for him from Neo-Paws. He has lost a few toe-nails as they have “rotted” from the nail bed. The nails are growing back, but not in the best form. Luckily he has had very few other lesions on his body except for a few around the corners of his mouth which we treat with Aquaphor. I am happy to say that he still has his spunk, appetite (dog “runs” in his booties if you mention food), and will still play. He is my baby and it kills me to see a dog go through this….

    Reply
    1. Jamiegoff Post author

      Monica, I’m so very sorry you are here!! (But glad you found us!). How are his lesions responding? I haven’t heard good reviews about commercially made bone broth with treating hepatocutaneous. Zoe only got homemade for the 3 years that she lived. We also didn’t use any processed food….only real food…..I weaned her off kibble immediately. Please let us know any questions you have!!!

      Reply
      1. monika hill

        I use the purchased bone broth as a back up. I try to make my own whenever possible as I use it myself. Just curious what was the reason behind weaning off the kibble. I was thinking about it as well. As for the amino acids, they seem to be helping him. His biggest issue are his feet, as he doesn’t really have lesions elsewhere. His feet cycle from good to bad. When he sheds crusty pieces, they are better until the pads reharden.

        Reply
        1. Jamiegoff Post author

          hi Monika, I based Zoe’s treatments on a number of expert’s opinions and one of those experts is Dr. Jean Dodds, whose valuable insight made treating Zoe possible! She believes that dogs with liver issues should NOT receive ANY processed foods! as a result, we weaned Zoe off of kibble and onto Dr. Dodd’s liver cleansing diet. We eventually wound up on the following: chicken (sometimes fish), sweet potatoes, (because she became diabetic, we stopped the white potatoes), finely chopped raw beets, green beans, carrots and sour cream and cottage cheese (along with a probiotic and a dietary supplement like Missing Link or Balance IT) For a long time, I used Poly-vi-Sol with Iron (the kind you give babies 🙂 Hepatocutaneous patient many times have iron deficiency anemia and require addition iron supplementation.

          Reply
      1. Jamiegoff Post author

        Joni, this looks good! the amounts of omegas are similar to the Snip Tips. I did give Zoe double the “recommended amount” and when I forgot to re-order (and had to read my own blog to figure out what I was missing :/)), her lesions came back and when I re-started the Omega’s, her lesions went away again!
        (so many of my lessons learned were accidental experiments on Zoe!!)

        Reply
  117. Kasey

    Here’s what I’m feeding my Lola (14 lbs) twice a day

    2 eggs
    1/4 cup bone broth
    Teaspoon of minced and steamed green beans
    Heaping Tablespoon of cooked mashed sweet potatoes
    1/3 cup of boiled shredded chicken breast

    I mix this all together like an omelette and she loves it. She also takes Denamarin, Ursodiol and 2 SnipCaps daily.

    Her feet are totally healed now! (But her poop is yellow from the eggs, I’m assuming)

    Do you think this is good? Should I change anything? Is this enough nutrients?

    Reply
    1. Jamiegoff Post author

      Kasey, I think adding some sort of dietary supplement like Missing Link or Balance IT might be good to make sure you aren’t missing nutrients, but otherwise looks good and mostly just glad that you’ve had good results!!!

      Reply
  118. Jan Randle.

    Here is Tess’ regimen.
    4 eggs daily, two in the morning and two at night. I cook them as egg whites are a no no.
    Either shredded chicken cooked in the crockpot or the turkey from boiling turkey necks in the pressure cooker. She sometimes will get tilapia or cod.
    Veggies that I feed her are cooked broccoli, cooked carrots (she won’t eat either raw), cooked squash, cubed white potatoes and cubed sweet potatoes, and green beans. She doesn’t get all of these every day. I just like to provide a little variety.
    Turkey stock, usually four times daily.
    ProMod with the stock.
    An aspirin daily for arthritis.
    Keppra-3 daily
    Gabapentin-2 daily
    Snip Tips- 4 daily
    Collagen capsules-8 daily
    Multivitamin
    Hip & Joint supplement-2 daily
    Skin & Coat supplement-3 daily
    If her paws are red, we wash then with an antiseptic wash, apply either Neosporin or Bag Balm, wrap the paws with gauze tape and have her wear her socks with Velcro wrapped at the top. If she’s doing okay, we leave the socks off, hoping the pads will toughen a little. She tends to remove the Velcro and then the sock. We find Velcro strips all over the house.

    It sounds like a lot, but it gets to be routine. And she is totally worth it!!!!

    Reply
      1. Jan Randle.

        It’s so wonderful to see the old Tess reappear! I do have a question, however. From what I’ve read, dogs tend to lose weight once they are off kibble and all processed food. Tess has gained weight!! I just wondered if anyone had any ideas as to why. Could it be the turkey neck gel? Are we giving her too much? Terry cooks it in the pressure cooker and pours it into a 9×13 dish. Once it gels, I cut it into 10 pieces,. She gets one piece every 4-5 hours. I also give her ProMod every time she gets the gel. She gets one capful with each serving of turkey neck gel. She also takes one Keppra tablet, three times daily and one Gabapentin, twice daily. I give her collagen tablets, four tablets twice a day. I also give her S-Adenosyl Plus, twice daily. And Two Snip Tips twice daily, plus vitamins and supplements for arthritis.

        I feed her two scrambled eggs twice daily, chicken breast, sweet potatoes and white potatoes and cooked vegetables (green beans, squash, broccoli, carrots). She doesn’t get all of the cooked veggies with each meal. I tend to pick two. I don’t feel that I’m over feeding her. In fact if it were up to her, she’d eat once a day.

        Any advice would be greatly appreciated!

        Reply
        1. Jamiegoff Post author

          That’s so great to have your dog back!!! Zoe didn’t gain weight, but pretty much maintained! Did Tess need to gain weight or was her weight already good? You could try cutting back slightly on the quantities IF she needs to lose weight

          Reply
          1. Jan Randle.

            Unfortunately she was already overweight. I didn’t know if the turkey neck gel is the cause for the gain. She really doesn’t eat that much food. I know she’d feel even better if she could lose 10-15 lbs. She wants to run and play but then is stiff and limps from her arthritis.

          2. Diana compo

            Has she had a thyroid test? Cady resumed her physical activities once her feet healed, but she did have thyroid issues.

          3. Jan Randle.

            That’s a great idea Diana and Jamie! I need to call tomorrow for an appointment anyway. I’ll make sure they do the thyroid test. I have hypothyroidism myself, so I know to request a thorough thyroid test. I can’t believe I didn’t think of this myself! And our golden, Zoey, developed hypothyroidism a few years before she developed liver cancer and passed away. I’ll let you know Tess’ results. I’m so glad you ladies are here!!!

          4. Jamiegoff Post author

            Good for you! I always have to take a step back and re-evaluate personal illnesses, as I don’t process them the same as I did with “patients” ;))))

          5. Jamiegoff Post author

            I agree about checking thyroid function! Make sure they do a complete thyroid panel and not just a TSH…..hypothyroidism can get missed if only checking one part of the panel!

        2. Joni davis

          Jan Randall, I’d love to hear what exactly your method with the turkey neck in the pressure cooker and the 9×13 baking dish. How do you do them. Also how does everyone get all this food and supplements into your kids?? My girl sophie is turning up her nose at everything.

          Reply
          1. Jan Randle.

            Joni, we buy the turkey necks frozen. You just have to call different meat departments to see if they can get them for you. One place we buy from will cut them up into pieces that will fit in a quart sized freezer bag. So we separate them and put the bags in the freezer. We usually cook the necks from two bags at a time. When I say we, I mean my husband, Terry. I can’t tolerate the smell of them cooking. The other place will not cut them into pieces, so Terry has to use a saw to cut through the frozen necks.

            Our pressure cooker has a line near the top. Terry puts the thawed necks into the cooker and fills it with water up to that line. He puts the lid on the cooker, making sure it locks, and cooks it on high heat until steam begins escaping from the valve. Once this happens, he turns the heat down to 5 on an electric stove and to medium on a gas stove. They cook faster on an electric burner, so he cooks them for an hour and a half. On a gas burner he cooks them for two hours. Once they have cooked, he removes them from the heat and lets the cooker sit for a few minutes. You don’t want to release the steam too quickly or you could get burned. He releases the steam and removes the necks. You can use the meat on the necks, which we did for a while, but we’ve since switched to shredded chicken breasts cooked in the slow cooker. He then pours the liquid into a 9 x 13 baking dish and let’s it cool for a while. After it’s cooled he removes as much of the fat as he can from the top of the liquid. (I keep saying I’m going to get some cheese cloth to strain the liquid, but I haven’t done that yet.) He puts the dish in the fridge overnight and it gels. I usually cut it into ten pieces, as Tess is a larger dog (Australian Shepherd). I give her one piece every four to five hours (with ProMod).

            I hope this helps. Terry isn’t here at the moment, but I’ll show him what I have written and see if he wants to make any changes, so there might be an “edit” to this post.

          2. Jan Randle

            Joni, what works for Tess, regarding supplements, is peanut butter. She loves it! So far she has not refused to take anything that has peanut butter on it. At night she gets 18 pills, so I am extremely greatful that peanut butter works!

  119. Joni Davis

    question – Is everyone doing the Amino Acid therapy treatments? I’m doing those too every 2 weeks and Sophie’s feet are completely healed.

    Reply
    1. Jamiegoff Post author

      Hi Joni, i’m not sure what most people are doing, but once Zoe got the first 4 doses, her veins were shot, so we only treatment with the non-invasive amino acids (in the form of chicken stock….it just requires frequent administration to be successful!

      Reply
  120. Endy's mom

    Endy has been doing great last month but looks like the lesion is coming back in the past week. I have been doing everything accordingly. Probably need to beat up with the chicken stock and snip tips. Is it normal for lesion to come back once in a while? Also, any suggestion on how to lower ALT? Thanks

    Reply
    1. Jamiegoff Post author

      How often are you giving the chicken stock? If we were just a little late, Zoe would get an outbreak (small) about 10 days later! ALT is usually associated with acute liver damage, but can also happen with lead poisoning and some medications
      With diet and milk thistle, Zoe’s liver function numbers become completely normal. It did take time….these dogs didn’t get liver damage overnight, so it many times takes time for the liver to heal and regenerate!

      Reply
  121. Endy's mom

    He has been drinking more water and less chicken stock in February since he has been feeling better. Now with the relapse he is back on chicken stock and not water since March. It is always a challenge to get him to eat the supplements unless wrapped in pill pockets. He has no problem eating freshly cooked food. I need to beat things up with his regimen. Got to be very careful with what he eats for he tends to have digestive issues due to his current medical conditions. So far so good with all the information on this blog. Thank you so much for all that you have done. 🙂

    Reply
  122. Trudy211

    My 7 yo Labradoodle 59 lbs (Lexi)was diagnosed Jan 2016 by open liver biopsy- it was sent to Dr Sharon Center at Cornell as she is a specialist in HS. Lexi had no lesions at the time but developed sudden liver failure w ascites. Also Amino Acid labtest done-very very low in all AA. Things got better but now developing lesions, paws, hips & back elbows. Amino acid infusions started-3% solution as no where in US is 10% available. I am so glad to find this website for advice! Suggestions welcome! We were gone for 3 wks in Mar & housesitters did not give Lexi her protein!
    Lexi’s regiment:
    Am 2 hard-boiled eggs 1/2c Hills L/D kibble frozen grin bean ( not cooked). Just Added 3 oz chicken breast
    Fish oil, lasix, spirinolactone, Phoschol
    Mid day Denamarin. 1 egg or 3 oz chicken (just added)
    Pm. 3 oz chicken 1/2 c kibble. Raw carrots or grin beans -Just Added 2 hard boiled eggs
    Vit E 400, lasix, Spirnolactone
    Treat (new) 1 Tsp coconut oil frozen w blueberry/peanut butter
    Bedtime D-Penicillamine- w biopsy found to Cooper storage issue
    Treating paws w Paw Smooth & or Coconut Oil / socks 1-2 x da. Feet look much better in 1 week but had infusion last Wed & another tomorrow
    All suggestions welcome. Jamie- I have your number & would like to know your availability to discuss possibly Thurs or Fri 3/30 or 3/31 ( I am in OR w PDT) ? Welcome any one else who would like to help also
    Thanks so much in advance, Trudy

    Reply
    1. Jamiegoff Post author

      I’m so very sorry you are here! Yes, please call when you are available. This is a good week for me, so just call at your convenience. I would strongly encourage chicken stock as another alternative to get more amino acids in! I’m happy to help any way I can!!! 205;296.2323

      Reply
  123. Holly

    I’ve been reading entries for days and am overwhelmed with information. Thank you for having this blog as you seem to have more information about what to do about this disease than any of the specialists I’ve been to. I have a 10 yo Havanese, officially diagnosed after 3 different vets treated him for allergies, bacterial and fungal infections, did numerous overlapping blood work, several ultrasounds and finally threw their hands up suggesting steroids and tramadol.-I did my own research, suggested hepatocutaneous early on since he has had elevated liver enzymes since puppyhood and has a syndrome (Ockholm Syndrome) that Havanese can have that includes metabolic problems including liver and thyroid. I insisted on thyroid test as he was losing hair, sleeping constantly, had a rat tail and was cold all the time- numbers were “inconclusive”. I was also originally told “no way” does he have hepatocutaneous syndrome- thus wasting 2.5 months watching my baby getting sicker and sicker and unable to walk due to lesions on feet. Went to Vet that practiced both Eastern and Western Medicine. She put him on thyroid medication and Chinese herbs- feet a little better- could walk short distances. Had been in Florida, came back to North Carolina and saw new vet. She referred me to Veterinary Specialized Hospital of the Carolinas- they diagnosed hepatucutaneous syndrome, cirrhosis, and hypothyroidism. They really hadn’t seen a case like this before and that the only thing I could do for the HS was amino acid infusion and then said it doesn’t usually work- they are also 3 hours away from where I live.They did double his thyroid and also said they weren’t sure he really was hypothyroid. My new Vet was hoping to get diagnosis and treatment plan that she could help me implement- that didn’t really happen. She asked what role I wanted her to have now -I said I needed an ally to help with peripheral problems and research. She’s been great but I’m still missing hands on experience with this disease as she’s never witnessed it before either and we are both learning together- which brings me to why I’m writing-besides needing all the support I can get.
    I started with your bone both recipe and and at first was using a limited diet canned food (kangaroo), then tried dehydrated premix that had vitamins in it and you add protein and fat- he hated that-some progress with feet- went to all homemade and added supplements, wipe feet at night with vinegar and water and rub coconut oil into them and lesions on his feet are now resolving. He now spends some time during the day engaging in “normal” activities but still sleeps ALOT. I do feed him 5x/day. I need to find supplements that combine things together. His current meds and supplements are: Denamarin, levothyroxine, zinc, Wild caught Alaskan Salmon Oil, NAC, Digestive enzymes,crushed egg shells- I read that many use Missing Link- but there seems to be many formulas of this and not sure which one to use. Is there a good multi vitamin/mineral that would be appropriate? Any suggestions would be appreciated-would really like to talk to you.

    Reply
  124. Monika

    Quick question…before your dog became sick with hepatocutaneous syndrome, what type of dog food did they eat? At any time in their life did you give them Nutro dog food? I am beginning to wonder if there is a link between this brand of food (which has had several recalls) and this syndrome. We gave it to our dog for a few years, but he would vomit a lot. When we switched foods the vomiting went away. I am wondering if this product did irreparable harm to his system and triggered the disease…..

    Reply
    1. Jamiegoff Post author

      my dogs didn’t get this particular brand, but did eat kibble, which I think is actually not the most healthy way to feed. Zoe’s was a result of phenobarb given for epilepsy. BUT….there are many dogs with this diagnosis that the cause is unknown.

      Reply
  125. Mel Oliver

    So pleased a friend forwarded this blog to me. I am now in month ten of this nightmare thanks to Rimadryl or Carboprofen and a really stupid vet. My fur baby was misdiagnosed with arthritis when she had a torn cruciate ligament. She ended up getting overdosed and once the skin lesions started it has been dreadful as they resolve and come right back. Eventually, this schmuck referred me to a homeopathic vet in town nearby and she has helped detoxify the liver. I just cannot get the Aminosyn 10% here in South Africa. The condition is so rare that most vets never see a case of it. My new vet came me Kombucha SCOBY and a raw food diet of chicken livers, cottage cheese and tomato sauce with supplements to start. We are now on her raw food with supplements and I give her egg yolks when I can. Have added white rice and more veg and cottage cheese and a bit of coconut oil to her raw food as I have no other fat source for omega fats and she desperately needs to put on weight, but will be very grateful if anyone can help me source the Aminosyn. The other thing the doggies need is Zinc Glucagon, which I get tomorrow, but will also make the chicken stock. Money just very tight due to a hectic vet bill from vet no 1 and buying all the raw food and supplements, but I make my baby fruit and veg juice to help her liver. Good to add pills to. I use spinach, cucumber, apple and parsley now and then. Works very well and their are other recommended veg, but dandelion root/leaves can also be added. Lots of hard work and I am still battling with the torn ligament. Right now she has sores on all four paws. I treat with homemade comfrey and thyme, but unless I get the amino acids and zinc she needs, it is a waste of time.

    Reply
    1. Jamiegoff Post author

      Mel, I’m so very sorry you are here!!! The other thing you need is omega fatty acids….we used double the amount of aminos and that seemed to work really well! It is a LOT of hard work!!! Moray ing that you are one of the lucky ones!!!!

      Reply
    2. Trudy211

      Mel, My vet here in ORegon has tried all over the US to get the 10% but can’t even from the manufacture. We are using Procalamine 3% solution 750 cc, they give it over about 10 hours. It has made a huge difference, we did 3 one week apart, then another in 2 weeks, the next will be at 3 weeks. Then we will see from there. It is expensive -$350 each time!! We are also giving the collagen w chicken & chicken feet 5x a day that Jamie Goff has a recipe at the beginning of this blog. Jamie has been very helpful. When my dog was first diagnosed w liver failure the first thing we did was put her on Denamarin which helped immediately. Also chicken breast & cooked eggs are the highest in amino acids.

      Reply
  126. Jan Randle.

    Here’s an update on Tess. We had her thyroid tested. The full thyroid panel. It was all normal. So we have begun to cut back on eggs, Pro Mod, a little less turkey neck gel. Hopefully this helps the weight go down but doesn’t negatively affect the HS.

    Reply
  127. Rachel

    I am so happy I came across this blog. My labbrador, Hunter, is 10 1/2 years old. He has had skin issues most of his life which was attributed to allegies. The last few months have been difficult. In February he has a breakout and was put on another round of antibiotics and predispose which seemed to help. His blood work at taht time showed elevated liver enzymes and was to be rechecked 3 months later. In April he had another breakout. The doctor put him on apoquel for allergies and at that time he started developing skin lesions within a week and lost 10 lbs. I stopped the apoquel immediately and did allergy testing which revealed nut allegies. He was put on 4 week corse of antibiotics but his skin lesions are getting worse. He did want to eat or drink so i Took him for a 2nd opinon and an xray showed enlarged liver and spleen and blood work with elevated liver enzymes. They put hime in cipro now and The next step they recomend is biopsy and ultra sound. I fear putting him under for the biopsy . He still has no definitive diagnosis but the vets have happily taken almost $2000 so far. I love my fur baby and would do anything for him. Everything describe with this disease are all symptoms he displays. I really thought I was going to have to say good bye yesterday : ( Still not feeling 100% but at least he is eating and drinking with a little canned dog food mixed in. I don’t want to self diagnosis my baby but I am looking for any suggestions you may have. I don’t know where to go from here.

    Reply
    1. Jamiegoff Post author

      I’m so very sorry you are here! I agree about the biopsy….we chose NOT to do that, BUT the liver ultrasound is non-invasive and can give you the diagnosis, not with 100% certainty, but with enough to start treatment! I would certainly try him on chicken stock and Omega fatty acids (we gave double the amount of Omegaa). Also, eggs are great source of amino acids. We used Dr. Dodds liver cleansing diet and added beets…veggies get finely chopped or puréed. Also, get probiotics is important to get the gut involved in helping the body heal. Don’t know where you are, but I’m happy to talk with you….my number is 205,296.2323. I’m praying for you and your baby!!!

      Reply
      1. Rachel

        Jamie, Thank you so much for speaking to me. After we talked I had to take Hunter to the emergency vet hospital where he spent 3 days in icu for a high fever. I thought I was going to lose him. His fever finally broke and I did do the biopsy on the vets recommendation. He is doing much better now. He has been on cipro, clyndamiacin, protonix, and high dose of presdisone. The biopsy results came back and he has pemphigus foliciaceus which is an autoimmune disease. I am still feeding him chicken and some of his regular food which he is highly enjoying. We have along road ahead of us but his lesions are starting to heal and I have scabs throughout floor of the house. Everyday that goes by he is getting much spunkier and wants to play again and take walks. So happy to have my baby home. Thank you again for your recommendation.
        Rachel

        Reply
        1. Jamiegoff Post author

          Rachel, just so you know, autoimmune diseases respond very well to omega fatty acids and all healing starts in the GI tract. I’m so glad you aren’t dealing the hepatocutaneous syndrome!! I do think diet is important, regardless of the diagnosis and I will be praying for both of you!!!

          Reply
    2. Diana compo

      They can diagnose from a biopsy on foot pad if you’re worried about going under for liver biopsy. Odd as it sounds but a dermatologist will be the specialist you need to see. The one i saw knew just by the smell, but did the pad biopsy.

      Reply
  128. Brenda Perry

    As everyone else, I am grateful to have found this blog. My dog Zoe, a 13 year old cock-a-poo has been diagnosed with HS. We were in Auburn on Wednesday, (Jamie you will be familiar with this) and they are 99% sure but waiting on the skin biopsy for complete certainty. I have read about the diet, and the chicken stock. I have certainly been encouraged about the positive results some of you have had. I am just beginning with chicken stock, and eggs and the supplements. I am going to use Dr. Dodds diet as well. I am curious about the amino acid infusions. Should you definitely give these? I have read much of this blog, but may have missed it. Jamie I know you had these at Auburn, and just wondering about your thoughts on it. Certainly anyone else as well. My thanks to everyone that has contributed here. It has made some of my sleepless nights a little more bearable.

    Reply
    1. Jamiegoff Post author

      Wow!! Another Zoe treated at Auburn! I’m sorry you are here, but glad you found the site! Which service at Auburn are you on: dermatology or internal medicine? Feel free to call me to talk through everything! 205.296.2323

      Reply
  129. Brenda Perry

    Jamie, In answer to your question about which service at Auburn…I don’t know! They didn’t specify that we were on one or the other. I would definitely like to talk to you. I know you can help give be a better understanding of this process. I know it’s the week-end so you can just let me know when a good time would be, next week or whenever.

    Reply
    1. Jamiegoff Post author

      Just call me! I actually just finished with appointments if you want to call me now! 205.296.2323

      Reply
  130. Donna Fedukowski

    Hi Jamie, I haven’t written on this site for a while. I found the site and started on the recommendations on May 31, 2016. Amber was 7 at that time. She has done pretty well, but has taken a real downturn that last couple of months. Every time she has a down turn I have upped her supplements and she has turned around. I’m looking back at your recommendations and see that I’m need to up her EPA and DHA. (She’s only getting 320 mg EPA a day and 200 mg DHA a day. I see that you were giving Zoe 3 capsules a day of Free Form Snip Tips and it looks like each capsule contained 515mg of EPA and 338 mg of DHA. Can you tell me how much Zoe weighed? Then I can adjust the amount for Amber, a Golden Retriever.
    With the collagen, I’m relying on zint beef hydrolyzed collagen to supplement the chicken bone broth. I live in a small town and haven’t been able to get ahold of extra bones without paying more for bones than for one would pay for a nice cut of meat!
    I noticed that you fed pumpkin and lentils along with the food to help keep the stools firm. Can you tell me what quantities of pumpkin and lentils you were using. That might give me an idea of how much zint collagen I should give Amber.
    Also, I am currently giving Amber 4 feedings a day which are 1/3 vegetable, 1/3 potato and 1/3 meat and am including the pumpkin as part of the vegetable ration. Did you do it that way or did you add on the pumpkin extra? How about the lentils? Were they part of the meat or potato ration or added on extra?

    Reply
    1. Mel Oliver

      Hi there.
      I was lucky to get a referral to a homeopathic vet once my idiot vet finally decided to accept that three courses of antibiotic’s, milk thistle supplements, IV drip of nine days and horribly expensive high protein food was not working and she was still losing weight. She immediately said that Olive’s liver had to be detoxed and suggested 1kg chicken livers per 1 tub of low fat cottage cheese. Add 2tsps of good quality tomato sauce for antioxidants. She also gave me two powders, one probiotic and another with things like Spirulina and Wheatgrass. I also got a Kombucha scoby (mushroom fungi) to make Kombucha with, as it is a very good probiotic. She calls it “weed, feed and seed”. One has to detox the liver for two weeks with the chicken liver/cottage cheese mix followed by a long long stretch of probiotics. She recommended a product